Covid for 4 weeks & still bed ridden. Anyone else had prolonged severe illness without hospitalization

Hi Jim glad you moved us I'm busy at work today but will tell the others we have moved try and stay ok in the sun and enjoy the rest of your day Gary

Take it steady my pal.

I'm back from Paris now and finding the heat is playing with my chest.

Was coughing quite a bit last night which obviously always frightens me cause i think,oh no, what if it's 'new' covid?

Have to say going away was great for my mental health but not so great for my fatigue.

Was a lot more active than usual which I paid for the following day.

Glad you are managing the walks Jim!

Hope the exercises help!

Hi everyone!

Found you!! I love the sound of the dip - do you live by the sea Jim? I would love a swim in the sea am hoping the weather holds until next week. Good work on the steps too.

Hope work ok Gary, drink plenty of water (not Peroni!!) and chill out this evening.

I think we underestimate going away Res, when I went on 4th July I really struggled but think it was just too soon. So glad you found it good for you overall and sure you will bounce back - I know exactly what you mean I had a real coughy day on Thursday and started wondering if I had Pneumonia! Hate feeling so worried all the time but it is understandable after going through this. I am trying to do my yoga every morning and it helps me a lot.

I have felt the best today that I have felt for months - I paced myself all over the weekend - did everyting I wanted to but literally rested in between. Also stopped the Gaviscon Advance I am pretty sure I do not have reflux I think it is just inflammation in my airways from the virus and the Gaviscon was making my mucus feel more cloggy. Any way enjoying feel well and just praying it will last.

Take care everyone

Lx

Hi lulu sounds like your getting a lot better I'm still working on taking it easy when I have to at home now but feeling it today fatigue wise I don't think Jim meant a dip in the sea lulu it's well hot today the tension from the head has eased but still there same as shoulder and neck I'm praying the lungs are OK like most of us really Gary

LOL!! or I see he meant a downward dip! I must have holidays on my mind!! Funny how easy to read things out of context!

How is your breathing feeling now? Is it back to normal? I wouldn't say mine is completely better but much better than it was. I reckon everyone struggling today with this heat Gary - there is just no air and must be hard for you and everyone working.

Think it cools down end of week and you can guarantee it will be raining and cold next week when I go away - don't think Ive ever been away when it isn't - except of course when we go abroad and then a heatwave starts in the UK as we go up the steps of the plane 😂🙄

Lx

Sorry Jim, hope you are feeling better - I had a vision of you swimming through the waves on a nice sunny morning!

Lx

The breathing is getting a lot better and the sore throat is its crazy how it moves on to something else I was telling one of the blokes at work who knew someone who has had the same trouble as us and he said your ill and should be at home but everyone else who sees me thinks I'm fine but if I don't get fatigue will carry on with it tension on the head and ears has eased but still there neck and shoulder tight chest now and again still get a little tingling in my hands and just praying for the lungs enjoy your holiday the best you can lulu crazy the way we have to battle on with it Gary

That's a lovely thought Lulu. A small dip in energy levels that's all.

If it wasn't for the mucus and fatigue I'd be okay.

Hey ho.

Yes only people who understand are those who have either been through it themselves or know someone close to them.

I really think we are on the home stretch Gary but we mustn't overdo it - I know easy for me to say as only working a couple of days but if you feel rough phone in sick and take a day off don't just push through. Get early nights and REST!!

Such a relief the breathing is better that was the worst part and the sore throat - my throat is just beginning to look normal after 5 months!

Take care, we will be cracking open a bottle of sparkly soon - I reckon another month - 6 months in total which is exactly what specialist told me 4 - 6 months - same recovery time as for Pneumonia.

Lx

Hope so lulu I really do can't wait till that bubbly day even though I don't drink it I would celebrate with any drink going to be rid of it Gary

Yes wouldn't it be lovely?! My mucus is definitely tailing off at the moment but makes me nervous in case it is just building up - will be able to judge better in a few more days. The fatigue is getting much better too - it is just a bit more time Jim and I know you are a week or two behind me and Gary and think maybe you had a tougher time overall - so pleased you are making progress now. We will all be well again I am feeling positive today!

Lx

Lulu,

Your very kind.

I think we have all suffered more than our fair share.

The past couple of weeks friends have noticed an improvement in me and when I think about it I must have come a long way like we all have.

I'm going to give a conservative estimate of Christmas for me.

I've my scan result call this time next week, so that should help me mentally.

Hi everyone

I'm on the right page now!

So we're all getting there at our own pace.

Just been to work for a couple of hours, not as tired as last week, so I'm giving myself a score of 9.

But I'll be there for a while as I'm far from normal regarding getting out and about. I couldn't imagine going away this year, and like you, Jim, Christmas seems to be more realistic for me. Slowly but surely 😃

Hi Jo glad you found us!!

Brilliant I think you were you 8.5 last week? Glad you've made some progress. I'm probably stuck on 93/4 for a while too! Good you are not so tired this week I noticed the same when I look back to my first week at work over 4 weeks ago I can see quite a bit of improvement and also feel my confidence coming back 🙌 So long as we all are improving and will fully recovery that is the only important thing.

I am a bit worried about going away as last time wasn't that successful as felt really unwell although at the time I thought I felt much better than I had been feeling (not difficult!) Will be interesting this time - it will be exactly 5 weeks since last trip and going to same place so will be a good comparison!

Take care Jo, happy you are heading in right direction.

Lx

Morning!

Google Guardian Covid Long Haul why some people are not getting better - really interesting podcast - it is one of the Guardian reporters being interviewed Luke Harding been sick since March - first thing he mentions is he is on Omeprazole for refluz! Take a listen when you have time it is about 15/20 mins.

Have good day everyone.

L x

Thanks Lulu, that's really interesting, and so true. It's reassuring as well that we will get hopefully recover from this virus.

I'm feeling a lot better, but after working yesterday, and the heat, my HR did a huge spike. I had a lift to work and felt fine afterwards so set off to get the bus home. I checked my HR and it was very high, so I got a taxi. It gets quite high when I'm walking, but never that high. Maybe it was too much walking in that heat after working and being normal.

Hope you have a lovely holiday Lulu, I'm sure you will as you have recovered so much, and you know how to pace yourself! 😃

Yes it's reassuring to know so many people and medical staff in the same boat - that is why I believe people are now taking notice of people who have been ill since March as has affected medical professionals too and people will listen to them and not pass it off as anxiety.

It sounds like it was combination of work and heat - the heat is so intense at the moment and humidity high the worse combination for us. Sounds like you did the right thing though getting a taxi I think we need to listen to our bodies.

My friend who I do my 4/5 mile hilly hikes with is out of action at moment as she fell off her bike but think maybe I am feeling better doing shorter 2/3 mile walks - so will carry on with that for time being and yes, of course, pacing myself 🙄😂 - I used to cram something into every second of every day - I'd never say no to a lunch or meeting with friends - I am now limiting myself to one social event a day!! I recover on my work days as I sit at a PC all day and can't leave house so I look at Thurs/Fri as my days of physical rest!

Take care, hope HR is more consistent today.

Lx

Hi everyone I've found you on page 72. I've just listened to the podcast Lulu thanks for sharing. Sounds so familiar we all seem to have had similar symptoms. My breathing's not been great but I think the weather's effecting it. Hope everyone's ok

Hi Guys,

The heat doesn't help my breathing at all. I don't know if anyone else is the same?

It's very close here tonight and from the forecast it's going to be very humid for the next couple of days.

Hope you all sleep well.

Yep have struggled more today too Jim - chest feels a bit tight which always make me anxious.

Take care,

Lx

Looks like another incredibly hot humid day again.

Lets hope our breathing stands up to it.

Have a great day everyone.

Hi Jim and everyone

Yep another scorcher. Just done a walk in the woods so was a bit cooler now off to see a friend. How you getting on? My mucus seems less but still builds up every couple of days and chest goes a bit tight. Seems better when I walk and keep moving - funnily enough sitting down for too long seems to make it worse than ever so need to keep on the move but also pace myself 🙄 - it's complicated getting it right isn't it? Too little exercise not good and too much not good either!! How amazing will it be when we don't have to think about this stuff any more.

Lx

Oh Lulu I can't wait to be able to do things without planning etc.

I'm alright today. We've just had a picnic up on the Strines, which is moorland in the middle of nowhere. Glorious.

I finally feel happy to be alive.

Hi guys I'm sweltering at work but I have good news as well glad to hear you're getting somewhere finally Jim I have been really worried about the fatigue this week but like you said lulu get to bed early and take it easy when I can the good news is that the tension headaches and earaches have eased right down and I can tell that my shoulder and neck have as well still a little tight chest and eyes are stinging in the shower glad everyone is feeling better Gary

Nice one Gary.

As Terry Wogan said on Top Gear, slowly, slowly wins the race.

Hi everyone glad to hear everyone's having a good day. I've just picked up my prescription for the mucus tablets you Jim and Lulu are taking , the GP's finally gave in and prescribed them !! He's also given me Beconase spray so hopefully they give me some relief. Enjoy your evenings everyone.

Steph,

Watch the video in nasal spray use on Asthma uk website. It will ensure you apply it correctly.

Thanks Jim just watched it.

I'm just excited about the mucus tabs working, because till now I've not had any it's all still in the back of my throat and chest !! I hope it's start moving now I'm taking tablets.

Fingers crossed for you Steph.

If the mucus is at the back of your throat get your GP to prescribe an acid reflux tablet. Apparently that can cause it.

I know that feeling Jim - I had that feeling about 3/4 weeks ago when we went to friend's for dinner - it was the first time for months I felt somewhere near normal and felt so happy! Am SO SO pleased for you I really am. You have turned the corner!

Lx

How times have changed Steph when we can get excited about mucus tablets! Great you've got them and hope they help. I am too scared to stop taking have been on them from the start but now down from 6 to 2 a day. Trying to wean myself off all the meds but have been talking too much today so just had to pop a couple of Flarin - not sure I've done very well with the pacing today!

Take care,

Lx

That's made me laugh Lulu thanks. Yes I've given up most of the meds, give our bodies a break. You're making up for lost time lol just take it easier tomorrow. You'll be ok in front of your laptop working from home tomorrow it has its advantages . Think I could get use to working from home permanently !! xx

Lulu,

Yet again thank you for your positivity.

This has been and remains the hardest challenge of my life but as you say I've turned a corner. There's a way to go but we'll all get there.

Morning guys and girls looking good to see everyone getting somewhere I think I'm not certain but the mullein leaf I take twice a day has helped with the mucus I have come off all medication just using vitamins and oils I've given up with gps don't know why I changed should have just carried on with what we were doing I've got today and tomorrow then resting for the weekend I have had to pace myself at work but so glad most of the tension has eased waiting game now unless it's got a surprise symptom to give me enjoy your day Gary

Hi everyone 😃

Yes great to see we're all returning to normality with fewer symptoms to deal with. We've definitely done a lot of it ourselves with limited help, but we're getting there.

Good luck with your mucus tablets Steph, it reminds me of how excited I was when I first sneezed, after being completely blocked up for several weeks. I'd tried everything, even sniffing pepper to get a reaction!

Well I'm so glad it's a bit cooler, I've found it quite draining this week. I've managed to get a nice walk in before the rain came, half an hour on the flat still seems to be enough, so I'll stick with that for now

Enjoy your day

All good news seems to be going on with most of us now it would be so good to get over the finish line but more improvement is good news Joanne got to still hold back for a couple more weeks before I push it again great that the tempature has dropped off Gary

A good sneeze is the best feeling! The blocked nose was AWFUL - felt like head was going to spontaneously combust! I thankfully didn't have it for too long maybe a couple of weeks but I do randomly get one nostril block completely - all very strange.

Still waiting for the rain here - very humid and muggy. Just hope it clears for when I am away next week and get some sunshine without melting temperatures.

Sounds like you are making good progress Jo with the walks etc. and generally am feeling a lot of positive vibes on here over the last few days 🤞 Don't think this weather will have been helping us so maybe when it cools down we will feel even better 😀

Enjoy rest of day everyone,

Lx

Hi all hurray can get on here now. Its good to read everyone improving especially jim 😍 like all of you I'm doing OK I give myself 9 3/4 this week still not 100% but have more energy now and doing alot more running around with the grandkids. Lulu I went swimming in the sea where I live on tues it was so warm I was scared at first incase it made my breathing bad again but all OK. Its so nice to be on the other side of this virus now 😁😁

Have been wondering where you were Susan!! That's brilliant - am so hoping can swim in the sea next week - will let you know, just weather dependent.

So lovely you can do all the things you enjoy again and can't agree more such a relief to be feeling so much better. I am the same definitely not 100% but feel like things are improving more quickly now. Brilliant, we are both 93/4 so nearly there!

If the Government put out a statement saying if you catch a mild/moderate case and even if not hospitalised it can take 6 months or more to recover perhaps people would follow the guidelines better - I really wish they would. The mild flu message has made everyone complacent.

Take care,

Lx

I read a article about the long haul and they recognise it now that some people are taking months to feel alot better. One guy fit and young is still really bad after 4 mths spends half the day in bed and half up its so bad he went to hospital and they said recovering pneumonia and sent him home that was before we got tested as well. They were saying if all your bloods come back normal you def had covid all of ours did apart from a little higher white cell result which meant fighting virus off. I'll find out what it was called

It's called long covid.

It is really good that there is more information out there now about how long the recovery period can be and we are definitely not alone. I have also been told it is a similar recovery time to Pneumonia for many which seems to be around 6 months. I follow the #longcovid on Twitter - it is interesting to hear what others think and are going through also good to hear people are gradually recovering.

Enjoy the evening.

Lx

Hey everyone,

Back from holiday, it was lovely and I did surprisingly well! Not a relaxing holiday with 4 adults and 8 children more like non-stop action 😄 we ended up doing some really active stuff with climbing loads of stairs and walking for ages up hills to see the most beautiful views. It was really hot so I found it quite difficult but I think everyone else complained way more so I felt really normal 😁. Found I just got put in situations that pushed my assumed comfort barrier like having to piggy back my son while walking on a mountain or doing a desperate run with another child who urgently needed the toilet when we were in middle of a massive country park and actually apart from mild muscle aches, feel ok after all that. Oh and went for a first swim (a short one cos I was worried to overdo it but hey, I did it!). Best thing was to see the children having a good time and creating lovely memories ❤ Topped it off with a pizza and milkshake dinner when we got home, haven't eaten pizza in ages because of worries with reflux, but as the holiday was wild, decided to go all the way!

Great to read your posts and see that things are looking up all round. Super!

That is such amazing news!! Am so pleased you had a wonderful time and spent quality time with your family. Swimming in sea sounds amazing! Hoping I cope as well next week when I go away with my son as I am so looking forward to spending time with him!

My reflux seems so much better too - still taking the Lansoprazole but seeing specialist 1st September and hoping can stop.

Take care,

Lx

Thanks Lulu. Am very relieved and pleased it went well.

Swim was in a pool at the cottage we stayed in, mostly was too knackered from our trips to try a swim but one time it was so hot and the pool looked so refreshing that went for it. Swim in the sea also sounds great so hope you manage to do that on your holiday. It really is good to get away for a bit. Hope you get good weather, we were supposed to have thundery showers nearly every day but weather was fine in the end.

Great your reflux is going, not sure I have it any more, still taking famotidine just in case. Must have been some inflammation that has now settled down. Am supposed to book in for an endoscopy to check, not sure it's needed, but hubby says to go for any test I'm offered, he's probably right!

Well, what a difference a couple of days makes.

Sunny Yorkshire is overcast, foggy with drizzle but it's still quite warm.

I hope everyone has a lovely day.

Don't think will be as lucky as you with weather but sure it will be fine and good to be away! I'll keep you posted about the swim in the sea that may have been a bit optimistic!!

I am still taking Lansoprazole - I don't think I ever had reflux I think I just presented with the same symptoms as reflux but was in fact all the inflammation of throat from the virus. I had an endoscopy and would definitely say have it if you can - it is not at all painful and it is good to get properly checked out. My voice box is still not 100% right and gets a bit sore/achey but that is my own fault as I talk too much 😂 Specialist said to rest voice for 6/8 weeks to give time to heal but easier said than done!! So glad you are feeling much better.

Lx

How are you Jim, still progressing well?

Hope you can rest over the weekend Gary after a long, hot week at work.

Hope everyone else is doing well and looking forward to the weekend 😀

Lx

Hi Lulu,

I'm feeling okay at the moment, thank you. Today, I've had two 3k step walks, so far and the sun's come out!

I must admit though in between said strolls I've sat watching snooker without moving.

I hope work hasn't been taxing.

How have you gone at work Gary? Are you okay?

Hi everyone I'm so pleased to read everyone's on the mend it's fab news...Joanne thanks for good luck with mucus tablets, nothing yet but I think they take time to kick in. Dane you've done really well being away from home on holiday and going back to eating normally well done you !! Lulu, Jim, Gary hope you're all having gd days. I'm off work now for 2 weeks. I have said to work mates that this time I'm off work I'll hopefully enjoy as before I've been off was really ill, It was not a holiday. Hope you enjoy your weekends everyone.

Hi everyone I have made it through the week at work but my boy decided to get into some trouble with other boys so had today go police station and early this morning had to ring work and tell them I had to take emergency leave so it was more tiring than going to work felt tingling in my hands and legs not sure if that's the fatigue took him home a couple of hours ago nothing serious so his mum can smack his back side I've got the weekend off so I will take it easy start seven nights next week and feeling like it will be tough but so was this week I'm so glad everyone is feeling a lot better tension really for me came back today it is easing still a little problem with the eyes still stinging but I like the rest of us would rather be where I am now than two months ago hoping everyone has a good weekend gary

That's good news. I think that is what we are supposed to be doing resting in between so sounds like you are pacing yourself perfectly!

Had a good couple of days at work getting more confident and all going well.

Just felt my sinus start a bit today but think that is the change in temperature but would never have had this before!

Enjoy your weekend.

Lx

Amazing, enjoy your two weeks off Steph and so good you feel better and can enjoy it. I was thinking today wouldn't mind doing another lockdown now I feel better and I could actually enjoy not rushing around and get all the jobs done that everyone else did during that time.

Have fun!

Lx

Have been there Gary having two boys myself and know it is very stressful - they do stupid things and takes them a while to mature! Glad nothing serious and you can rest over weekend before your night shifts. Think stress makes symptoms much worse probably why the tension came back. Have noticed if I am rushing around and am late my breathing gets worse so am trying to leave myself plenty of time and not get too stressed out.

Enjoy the weekend.

Take care,

Lx

Yes I know lulu he is a little sugar some times back with his mate who is a bit more wiser than some of his other friends so will keep an eye on him for a few weeks needs to get back to school tension eased again now I'm hoping we are all in the home stretch and we seem to be so like you said before mind over matter might be the way to the finish line it's a horrible day here so resting could be good hope everyone has a good weekend gary

Morning Gary,

Its overcast here pal.

On my morning sabbatical, there was a slight drizzle in the air.

Hopefully, it'll improve like we are doing.

Fingers crossed fir everyone.

Morning Jim I'm really glad you're finally talking about something other than your suffering even if it is the weather have a good weekend mate and hopefully not too much mucus Gary

Just fighting with it now pal.

Take care.

You're win it just keep battling Gary

Yep think all the kids need to get back to school and people need to get back to work if they can safely. Do you feel "safe" at work or does it stress you out being in contact with others? Do you wear a mask? No sign of us going back to office any time soon.

Hope everyone else doing well think the change of weather/temperature affects sinus - I think that hot weather actually did us all good even though it was pretty unbearable we all seemed to improve quite a lot last ten days or so - maybe we need to go and live somewhere hot and sunny!

Enjoy your day.

Lx

Hi everyone 😃

I tried to post yesterday but it took ages, as it kept freezing, then it deleted my post! Seems fine today though

Great we're all recovering, holiday sounds fab, Dane. You must be going soon, Lulu, I don't think I could cope with all that packing etc, it takes me ages to get ready to go out for a couple of hours!

Hope all settled down with your son, Gary, kids are a worry, but luckily we're more able to cope with it now, even though it still stresses us

I survived another shopping trip by bus yesterday, and there was a huge difference from when I did the same trip 3 weeks ago. I was fine wearing the mask this time and still had plenty of energy left when I got home. Things are looking up 😃 😃

Hope everyone has a great weekend

Morning lulu I feel safe at work that's not a problem because I know all my mates and staff are not showing any signs of being unwell and a lot of people are still working from home I don't suffer from stress or anxiety that's why I think the doctor was wrong to say I was I'm not using any medication now either just vitamins and oils if I get a fierce headache I still have some flarin just speaking to my sister who agrees the kids need to get back to school I'm tired today but got a chance to rest up enjoy your weekend lulu and everyone else Gary

Hi Joanne its good news your starting to feel better about the bus and shopping I was watching in the police station yesterday morning when they were all coming to work and go through the same door I was thinking do they have hand sanitizer the other side of the door or do they do it when they get to their office because it only takes one to start off the chain reaction silly really but I went through the door with an officer and didn't touch it I suppose they must do enjoy your weekend gary

Hi Jo

Great news that you have improved since 3 weeks ago - I find that is the best way to gauge progress looking back to things you have done a few weeks before and comparing. Really pleased things are getting easier for you and you have got used to wearing mask - it's not ideal with the breathing issues but think that is now improving for most of us too.

Am a bit anxious about going away on Monday as holidays are often more stressful than we think - I remember that from last time!

Enjoy the weekend.

Lx

Ah that's good that you feel safe at work - I agree I think the only anxiety was being ill with C-19 and not knowing which way it was going to go. I'm the same definitely not an anxious person. Good you are off the meds I am going to wait till early September when I see the respiratory guy and ENT guy and speak to them - can see them both in person this time as opposed to a phone consultation.

Flarin works well and I'm same if my throat sore or headache etc I just take it and it seems to settled it down.

I feel tired today too think just after hot busy week and have been doing much more. You are entitled to feel tired after working all week!

Lx

Agree lulu I think when we were a couple of months into it and not knowing what to expect next we would have been anxious but when I last went to the hospital I was not sure what the doctors were saying about anxiety and stress or depression they probably told a lot of people who had to deal with it at home the same thing and sent them on their way I am really calm now but still getting tension headaches and earaches only slightly and now and again and tight chest you rest up for the rest of the weekend gary

Happy hols Lulu

Relax and enjoy 😃 x

Thanks Jo!

Have had the head cold feeling again and tight chest today seems to be the change in weather - just hoping it will pass.

Anyone else had a problem since the weather changed? Just seem super sensitive to everything now and was never sensitive to anything before this!

Hope everyone doing well.

Lx

Yes I've felt congested last few days, nose blocked, chest a bit tight when walking. Must be the weather. Can't win! I prefer this weather as I have more energy but don't like this blocked up feeling, and lots of mucus too.

Hope weather improves for you x

It must be the weather too much of a coincidence. Yes the heat was unbearable but think humidity is still quite high.

Just seems that it is all extremes this year nothing is settled - including the weather!

Take care,

Lx

Morning everyone lulu enjoy your time away hoping everyone is well I'm not sure how long we have left with the little sugar I'm hoping soon we will be there a lot of tension has eased from my head and ears I'm still getting it across the shoulder and neck and tight chest heavy hands and legs that's it I have to start nights tonight that will be interesting Gary

Morning!

Just about to leave but all the roads around here are flooded - not a good start! Feeling a bit doomed this year was hoping for a reprieve and be blessed with some sunshine this week but not looking too hopeful 😂 It rained every day when we went away in July too!

Good luck with nights Gary - must be a bit daunting for you, try not to over do it. I am feeling very chesty since the weather changed - feeling a bit fed up with all the extremes - extreme heat, extreme rain, extreme Covid!!

Anyway catch up with everyone during the week, take care and hope you have a good week and continue to improve.

Hoping the sea air will help!

Lx

I reckon we should say good riddance to this year lulu you sure you're not jinxed try and enjoy your holiday hopefully you will get some sunshine ☀ and relief from the symptoms maybe lose another one it's raining here as well till about 7 today take care Gary

Hi everyone,

Firstly, Lulu have a great holiday and enjoy it. You deserve it after the year we're having.

Gary, you take it steady on nights my pal. Remember your pals will help you.

I've finally some good news to share. I've had my CTscan results, which show there are no abnormalitites.

That's great news Jim now you can concentrate on getting rid of the mucus and improving your health so pleased for you Jim I know that will be a weight off your mind as well Gary

Thanks Gary, it is.

Dr Barber suggested a heart echo gram, so I'm having that done.

As Lulu's consultant said and Dr Barber confirmed its down to the lungs still being inflamed.

That's good Jim Did he say how long before the inflammation settles or goes or when the mucus will stop being a problem Gary

Unfortunately, he couldn't put a time limit on it Gary.

As he said, its a new virus no one knows.

I can understand his point it would be guess work.

I like that though Jim honesty is always the best way for me I don't like the ones that lie and make it up like we have said all along battle on Gary

Hi Jim and everyone what a difference a week makes it's defo a lot cooler this week. Good news about your CT scan Jim what a relief for you and peace of mind. It's just a waiting game now until all symptoms disappear !! Hope we all carry on improving. Have a fab time away Lulu enjoy quality time with your son and hope the weather's not too bad. Hope nights go ok for you Gary.

Thanks Steph.

Definitely money well spent.

Hi Steph and all,

Weather has changed, we've got fallen brown leaves in our back garden from neighbours tree, little ones have been saying it must be autumn now 😄

Lulu, enjoy your holiday and I do hope the weather's lovely for you, good to get away.

Gary best of luck on the night shift and Jim great news about the CT scan, nothing like a big dose of reassurance!

I've had a bit of a disappointment today, we took the children horse riding and that was fine and then we drove to the the Galleria and on the way I started feeling a bit unwell but ignored it. Unfortunately we had to cut the shopping short as I felt tight in the chest and really fatigued, also feel the reflux quite a bit more since yesterday. I'm now feeling exhausted and have no appetite for dinner 🙁 Disappointed as been doing so well and thought I was pretty much over it. Oh well, hope tomorrow it will be better...

Sorry to hear that, Dane, it's really disappointing when you start to feel better and that happens. As Lulu says, though, it could be the change in weather. I felt better last week, even though the heat drained me, but I'm really tired this week, with tight chest etc.

Great news about your ct scan, Jim, that must be a huge relief, really pleased for you.

Good luck with nights, Gary, hope all goes ok

Hope you're ok, Steph and we all start to see the end of more of these symptoms

evening everyone. I've been following this page since the beginning. I am unfortunately one of the long haul sufferers. I'm just wondering if any one has symptoms of pressure on the nose , popping in the ears and jaw pain at times?

never suffered with the sinuses before this year.

thanks

Hi Tara

Yes I've had those symptoms, I still get nose blocking and sometimes ear problems. All these problems seem to come and go. Steaming and seawater nose spray seem to help with sinuses, but it still keeps coming back. Hope you can get some relief from it

Hi steph thank you it certainly is a lot cooler and a long waiting game but hopefully we all will get there soon Gary

Hi dane thank you and sorry that you did not get to do the shopping it still has that habit of stopping us when we think we are there just like the horse riding get back up and start again I'm hoping you are better tomorrow Gary

Hi Joanne thank you I'm not busy at work tonight so should be OK I'm getting pains in my left chest near my nipple tonight hopefully they will do one still getting tight chest now and again keeping hoping that will do one oh well gotta crack on with it hopefully a good day tomorrow for us all Gary

Hi Tara yes I have had pressure on the nose and popping in the ear not the jaw pain though Gary

The exercise is a minefield.

I've tried to push myself a little more last few days and chest tightened right up and not stopped coughing. Even my Rib cage aches.

Saw my respiratory consultant again today and he says he still thinks its just scarring of my lungs and inflammation but he wants to see me in 6 weeks again before virus season starts as he said I should be noticing real improvements by then. He wants to check my immune system also, just incase something is amiss there as i have a history of long respiratory illness without any known underlying conditions and he wants to check whats going on there covid aside before the next virus season comes round.

Am glad it's a little cooler now too! That heat didn't help!

Morning everyone!

That is such amazing news Jim!! - it is so reassuring and if there is no damage you know it must just be the healing process - need to remind ourselves of that when we have a bad day. My son said to me yesterday about body healing and said do you remember when you broke your ankle and you thought it would never heal? It is same as that took months and it was so gradual then suddenly it was healed but with a few twinges every now and again so probably be same! Sadly the body takes so much longer to heal the older you are.

Having a really chilled time, my son is so good for me to be around - great to chat to and super positive and sees the best in everything - couple of evenings I've said I'm really tired after being out all day he has said yes so am I and I'm only 26 - sometimes I think I expect a lot of myself!

Dane so sorry you had a dip but pretty sure you will come back from that quickly - it is so unsettling though never knowing exactly how you are going to feel day to day especially with kids and you need to plan things - must be so hard.

Gary hope you are doing ok with the night shifts and your mates are helping you out if you need it.

Res, lovely to hear from you sorry still having problems with chest, you are definitely not alone we all seem to still be getting that. I am finding pure peppermint tea helps if you drink in evening - think it is the pepermint oil that helps.

Jo - sounds same as me I was better in the heat once I'd adjusted but feel better now but could be the sea air. I am still doing my overall body assessment when I wake up every morning to see what am dealing with!! If my chest feels ok I am happy!

Spoke to guy in shoe menders before I left and he told me he had it early March still struggling with chest tightness and then met a friend who is a fireman, super fit, in his 40s and same story - it is taking a long time as we all know but we will get there.

Anyway sorry for the long waffle am waiting for my son to wake up!, stay positive and catch up when I'm back next week.

Lx

Lulu,

Enjoy your holiday and spend that quality time with your son.

I saw a program yesterday and the Doctor was going through post viral fatigue. Apparently, the syndrome is associated will various viral illnesses.

They do take a long time to recover from, eg glandular fever etc.

Unfortunately, its a waiting game.

On a lighter note, we're all improving.

Evening,

How is everyone been today?

I woke up this morning and my chest felt clearer than normal but it has become congested through the day.

Anyone else the same?

Hi Jim I seem to have been congested on and off all day. It doesn't seem to have stopped me doing anything though, just been annoyingly there.

Lulu, sounds like you're having a lovely time with your son, he sounds really supportive and helpful in his advice to you. It's useful sometimes to hear someone else's point of view especially as he is so positive about it.

Hope you're feeling better soon, Res, and things improve for you

Hi guys and girls not been as busy as I thought I would be on nights been pacing myself and so far so good had to take some flarin Wednesday night got a bad headache most of the tension seems to be going or easing still a bit on my shoulders and neck a little tight chest now and again besides that all good I'm hoping everyone is improving as well or there would be nice to see Gary

Well done Gary on the night shifts, slow and steady is the way forward.

Been feeling somewhat worse and don't get why. Very strong cramps today, fatigue, a little breathless and temperature up, not feeling good and not happy about it ☹

Sorry to hear that dane it doesn't want to do one I'm managing to not push it while I'm working I had so much tension from the head shoulders and neck still getting it even though I keep thinking or really hoping it will go it is a lot better it must be really annoying for you and all of us hope you feel a lot better for the weekend gary

Dane,

Sorry to hear your not well. You you will be remember that.

Gary,

Too news you made it through your night shifts. I'm really impressed.

Thanks Gary. Yes it feels like quite a setback. Have actually got a fever, thought I was done with that a long time ago...

You keep it up, I need to hear everyone else is ok that always gives hope.

I don't know why but sometimes every few weeks I get sweaty for no reason I don't get the night sweats anymore just very dry mouth but I find that I get a few more hours sleep than before dane it's certainly a weird thing I know that we are getting there its just very slowly try and enjoy your weekend gary

Hi Jim not made it through the nights yet I have two more to go and like dane I'm feeling it but work at the moment is not as hard as it was last year otherwise I wouldn't have been able to do it plus we have covid rules so when we finish we get to go home last night was the toughest so far my symptoms have eased somewhat and I'm hoping tonight will be easier my hands and legs feel heavy I'm hoping everyone is improving and lulu is enjoying her holiday Gary

Keep going Gary we're all proud of you.

I can't fathom how hard it must be pal.

Thanks Jim but I think you have had it tougher than me so you should be proud of yourself all of us on here have done so well considering flu like symptoms still got that letter from the hospital would love the doctor who sent it to try dealing with the flu like symptoms he put on it hope your improving Jim it's a long long road with many a winding turn mate Gary

Indeed it is my pal.

We'll all get there, some sooner than others but we'll get there.

I hope your night shifts go quickly and without incident.

Morning Jim well that's the week of nights done didn't really have to worry it wasn't as bad as I thought it would be I have a week off now and I feel a lot better little tension on my shoulders and neck and tight chest now and again but I think that is easing headache every so often tired but not exhausted little niggles in my lower back and lots of sleep in my eyes when I wake up I hope everyone is getting better Gary

Good stuff Gary.

That's a major hurdle past.

Hi Jim how is it going for you I was just wondering how Stuart and maciek were getting on has anyone seen anything from them Gary

Hi Gary,

Mucus and lethargy are still with me, unfortunately.

I've heard from Stuart who's much the same as he has been.

I messaged Maciek 5 weeks ago and not heard from him nor has he read the message, so I would suggest he hasn't been on the forum.

Just keep doing what you can Jim I have been lucky this week I have felt fatigue but had an easy week really I will start walking again tomorrow haven't done that since last week wanted to conserve my energy a week goes by so quickly now I think maciek would have recovered by now he seemed to be a really strong character hopefully Stuart is getting somewhere as well Gary

Words of wisdom there Gary. Thank you. How far do you normally walk and in how may segments?

Hi everyone 😃

Well done on the working nights Gary, a whole week that's a great achievement!

I've got that lethargy too Jim, everything is so much more effort. Also still have these head cold symptoms and chest tightness.

Walking helps, but like you Gary I try to conserve energy when I'm working

Hope everyone ok and enjoying week

Hi Jim I'm awake early body clock all over the place I only go about half a mile to the park and walk around it may be 4 time's depending on if I'm feeling good then I will see how I feel each day I'm going to get back on the bike soon as well when the tension has gone and it nearly has but I won't over do it because I know what will happen if I'm not working I can step it up our bodies will let us know if we over do it I hope you are getting better Jim I've stopped taking medication now just oils and vitamins Gary

Hi Joanne it was a easy week of nights to be fair to the lads they helped me out even though to them I look normal to them I had all the headaches and earaches shoulders and neck tension I've been taking hemp oil which I think has really helped me and mullein leaf for the mucus and I know that is helping me because before I was getting tight chest in the morning and it is not as bad now maybe it's just a time thing like lulu says and it heals on its own just wish it would hurry up like all of us Gary

Morning everyone,

I've been and had my echo cardiogram and the lady who preformed the procedure said everything looks fine. She also said she had been doing the scans since 81, so I trust her opinion.

So that's a 24 hour 7 day ECG and an echo cardiogram, both okay,

Have a good day.

That's good news Jim all you have to do now is push on with getting yourself fit and mucus free I didn't go for a walk been hit with bad weather so resting today and only symptoms I have at moment is little tight chest Gary

Hi everyone glad to hear everyone's doing ok. I've had some time away in Devon and it's been really nice. My main symptoms now are congestion body aches and sometimes internal shakes. Good news about all your tests Jim it's peace of mind for you and hopefully in time all our symptoms will subside. Dane how are you feeling ? I know you mentioned you weren't feeling well again hope you're doing ok. Joanne how are you ? Gary enjoy your week off.

Nice to hear you've had a nice time away Steph. I don't think I could manage that.

Week 21 on Thursday.

Every test I've had fortunately has had good results.

Fingers crossed the fatigue goes quickly.

Thanks for reminding me that we're nearly week 21 Jim, I've given up counting now !! Yes things can only get better. We deserve to enjoy what's left of 2020 summer !!

Hi Steph,

Happy to hear you had a good time away in Devon and that you are ok save for the lingering symptoms which will hopefully go sooner rather than later.

Jim its great all your tests have come out ok, now you can concentrate on building strength without worrying if you have anything serious going on -great news.

I'm okayish thanks for asking. Had a difficult day friday with strong cramps and a fever, thankfully fever has gone and cramps are less but getting stomach aches especially after eating started worrying about reinfection but husband keeps saying there are other viruses out there so maybe was something else. Anyway I'm doing a covid swab on monday as I have to for endoscopy I'm having on Thursday, the hospital is covid free so all outpatients have to test prior to attending.

Have a face-to-face respiratory consultation 22nd September, taken ages to get one -that'll be over 6 months post covid!

Hi Steph

Good to hear from you, that's great you got away and enjoyed your holiday

I'm ok thanks, just trying to remember to pace, as I get really tired when I do too much. Still got the usual congestion etc

Great test results again Jim, must be a huge relief

Good luck with appointment Dane, hope things settle down again for you soon

Enjoy your week everyone

ps this page is really lagging for me!

Hi steph thank you I will enjoy my week off it does go so quick though that I don't mind as long as we are getting somewhere I'm still a little congested as well and tension comes and goes but I'm feeling a lot better so hopefully we are all nearly there Gary

Hi everyone!

Am back from Suffolk. It went really well and I felt so much better than when we were there 5 weeks ago - had one day when I woke up with tight chest and had a bit of a sore throat on and off. It was a good comparison to look back 5 weeks and see the improvement.

Dane, really hope you are feeling better and good news about respiratory consultant - about time! I have follow up appointment next week with ENT consultant and the respiratory guy the following week so maybe we will get some more info between us that we can all share.

Jim, great news about all your results - positive news gives you a real boost and really hope you are making good progress now. How many steps are you up to these days?

Steph, so glad you had a great time in Devon - 21 weeks that must make me and my Covid buddy Gary around 23 weeks! - maybe we need to be counting months now !- I know we are all approaching 6 months - unbelievable who would've thought it.

Hope you have recharged your batteries this week Gary and ready to go again with work! Hopefully you will notice an improvement.

Jo, seems we all still have some congestions in chest/lungs and definitely get tired easily - am definitely going to ask consultant about the chest tightness etc. I seem to get it every 4/5 days as if it builds up - anyone else find this?

Anyway, let's hope another few weeks and things will improve even more.

Take care,

Lx

Hi lulu it's right what you are saying improving all the time but it's lingering work should be fine next week days are easier for me I'm feeling pretty good but like you the tight chest is coming and going I'm getting tension on my left side ear neck and shoulder not bothering me but it's there I've not taken any medication just oils and vitamins I'm glad to say no flarin needed maybe just time can't wait until the chest gets better hopefully we all will be done with it soon Gary

Welcome back Lulu, sounds like you had a lovely time 😃

It's a weird one that congestion, I thought it was usually worse in the wet weather, but today has been torrential rain, and it doesn't seem quite as bad. Oh well, we never know what to expect next!

The only medication I'm taking is the omeprazole, I tried to go down to one capsule a couple of times but the indigestion came back. Looks like I'll be on them for a while, I noticed on my prescription it said review due next January!

Hi Jo, everyone

I have given up trying to work it out but think I definitely suffer when there is a change in weather - seem to be super sensitive to everything these days! Had the head cold feeling and sore throat today - not had that for a while so makes a change 😂 had really congested chest last night but woke up this morning and seemed better - it's all so weird.

I have decided after I have seen specialists I am going to try and get GP to refer me to one of the local post covid hubs set up - surely that is the least the GPs can do after having had to fend for ourselves for 6 months?! I also think it is a good idea to get acknowledged in the NHS Covid system and hopefully be monitored over the next year or so. Am feeling a bit weary of trying to fathom this all out without any medical support.

Hope everyone has had a good day despite the weather!

Lx

Morning Lulu and everyone, typical Bank Holiday weather , hope it gets better.

My chest feels tight and congestion bad feels like a never ending cold. Good call on asking to be referred to covid hub Lulu. When i asked they said that as I was coping I didn't need to be referred. Now it's nearly 6 months I think we deserve to be seen and like you mentioned be on their radar. Hope you're all doing ok

Hi lulu I was just thinking it would be close to six months soon a long time to do this with basically no help really I'm starting to wonder about the throat and tight chest I'm feeling good but like you I'm still unsure maybe they go when the lungs heal glad most of tension has gone I was going to wait to see what the ent specialist says when she rings back must be due soon I changed my holiday back in April to next month don't fancy that either will go somewhere next year with my kids it's good that you had a good time last week it shows how much better we are getting Gary

Yep we are approaching our six month anniversary Gary!! - I am see ENT specialist Tuesday so will ask him lots of questions - he was really helpful when I saw him a couple of month ago and he had also had it which I think helps. Then following week seeing respiratory consultant, another one who had it too! so will ask him loads of questions!! If you do the same when ENT rings you maybe we will get some more answers between us. I still think the throat and chest is caused by inflammation - it is slowly getting better but still have flare ups and would like to find out why.

Have you cancelled your holiday next month? I wouldn't fly at moment but hoping can go early next year as am really missing my son who is now in NY.

Take care, hope you have something nice planned for the BH weekend.

Lx

Morning lulu and everyone I've had a really lazy week not done a lot at all really Ive just got tension on the left side of my ear neck and shoulder and tight chest be interesting to find out from the ent specialist and respiratory consultant lulu I will ask the ent when she rings she said 4 weeks and it is nearly that now I'm concerned about the throat left ear only because the tension seems to stay there and the throat just seems to come and go it might be the tight chest I don't know happy anniversary by the way never thought it would take this long Gary

A lazy week must have done you good. I think when I cough the mucus up it makes my throat sore - both the coughing and also think there is something acidic in the mucus which aggravates the throat (sorry not a nice topic for Sat morning 🤨) was very chesty this morning lots of coughing and then it settles down when I have cleared it and I feel ok but definitely shouldn't still be getting this after so long. Have to say am worried about the autumn/winter we definitely can't afford to get a bad cold/chest infection - if I do I think I am going to take antibiotics straight away as a preventative - will ask the respiratory guy about this and see what he says.

Anyway enjoy the BH weekend, weather is a bit rubbish but we have friends coming over later so can feel a few glasses of Prosecco coming on! I'll toast our six month anniversary 🥂 😂

Take care,

Lx

Hi lulu I kept the antibiotics from my so called chest infection so should be OK incase same thing happens it is weird why we both still have the same problem with the throat I'm pretty sure we will be over everything one day enjoy yourself with your friends I'm going to indulge in a few pints as well later meeting friends to watch football wash some more mucus away gary

Yep me too stashed mine away in case I need them! I think so too just think we will be a bit vulnerable this winter and if we get any sign of chesty cough or chest infection need to get straight on the antibiotics.

Have a great evening, enjoy the beer and the football.

Lx

Morning lulu and everyone that's another week done off to work soon not a lot to do so easy week I'm hoping for just a bit of tension across my shoulders and neck tight chest comes and goes little stabs in the back now and again besides that I'm good to go I'm glad the head tension and earaches have gone sore throat feels OK have a good week Gary

Good news Gary hope things continue to improve. Had a late night with friends Saturday but feel ok and probably in about same place as you. Underlying sore throat but seeing guy tomorrow so will ask all the questions about that and everything else and will report back.

Have a good day and be interested to hear how everyone else is getting on - it has gone pretty quiet last week but generally think that is good news as everyone busy doing other things! I really hope so!

Lx

Yes think your right lulu feeling okay at work can feel the chest and got mucus and tension hopefully everyone else is getting better maybe we have only got a few weeks to be completely there hope so Gary

Hi everyone

Yes feeling more normal, hope everyone else is too. My nose feels clearer, I'm walking a bit faster and a bit further, working more getting out and about more. I think I may be heading for 9 1/2!

I'm still confused about the mucus, not sure where it's coming from and how long I should be spending getting rid of it as it sometimes makes my stomach sore. Maybe your specialist will have some good advice, Lulu.

Enjoy your day 😃

That's great news Joanne it certainly is a mystery but getting better is a result in itself I completely forgot about the scoring I would have to go for 9and a half as well maybe in a few weeks we can grab that ten hope the others are getting there as well its been one hell of a slog Gary

Afternoon all,

Glad to hear everyone's improving. 9 1/2 is brilliant.

Can't score myself really, as I've nothing to judge against but I'm far from right.

Still plagued with intermittent nasal congestion, mucus and fatigue.

At least the weathers nice.

I read an interesting article on the bmj site, which is for medical professionals etc and how they should look after us. It lists tests and when they should be done etc. They've certainly fallen far from the mark in my case and I'm sure all of yours.

Keep going everyone, we'll get there.

Hi Jim I know you have had it rougher than most of us and you are right about the help we have not received I have given up trying with the gps now last time they gave me physio exercises to help me but I gave up on them because they were not working just going to have to rough it through I think I'm hoping not too far off now Jim I think you should just try and get yourself better gradually with time looks like we all have tried everything else to some extent Gary

Hi Jo and everyone

That is good news 91/2 and good to hear you are getting out and about more and generally feeling better. I am probably stuck at 93/4 nearly there but still not quite right! Did long hilly walk this morning and all the mucus starts up again so will definitely ask about that - think that will be the respiratory guy who I am seeing next week - it is the ENT guy tomorrow so will ask about the throat.

I agree with Gary think between us we have literally tried everything possible to speed up recovery and now it is just down to time and healing. The progress has been so slow sometimes it is hard to see it until you look back a few weeks.

Will also ask about the nasal congestion Jim as I have that quite badly still - I just find the way the symptoms start and stop so randomly hard to deal with. I can wake up with a tight chest and end the day with a sore throat then the next day I feel like I have a head cold with no tight chest and an hour later have no head cold but a sore throat and blocked nose and any combination of the above!

Lx

I think you're right Gary.

Time is the only thing we have.

We'll get there!

Thanks Lulu,

Would you be do kind to disclose the questions and answers from your consultant please.

Of course Jim, appointment is 6.25 tomorrow evening. Will try and post when I get back or if not Weds morning. As i've said before he is very chatty and upbeat so hoping to get some more info.

Lx

Hi Lulu and everyone, glad to hear most are scoring high. Good luck with specialist tomorrow Lulu. If he has any idea of time frame of when we'll be back to 100% would be good.

I thought I was doing ok then had a funny turn on Saturday when I was out socialising with friends. Thought I was done with paramedics but because I fainted they called one. I'd recovered before they came but got checked out as a precaution. They were happy with all tests and they said only concern was low blood pressure which must've caused it. While I was chatting to paramedics I mentioned my long struggle with covid and they said it's very quiet now but April /May time there were loads of people ill and a lot that should've been hospitalised but weren't , they were left at home !!

Hi Steph

That must have been awful for you, really scary, but glad you are ok and were checked out properly. Might be worth monitoring your bp for a while. I seem to remember being told to drink a large glass of water if it is too low as this pushes it up.

I was just saying to my this partner that I think had I been as ill as I was in April/May in normal times, before C19, I would have definitely ended up in hospital and reckon that would have been the same for all of us - it was because we were basically being told to stay at home or if you went to A&E sent home if you could just about breathe that we were not taken in and who knows maybe we would have had the right care and been given some oxygen which would have helped the lungs repair quicker and not had this long ongoing battle - on the other hand it would have been very traumatic to be admitted to hospital and be on your own. Interesting though that the paramedic said that. I reckon the Government is aware how many people who stayed at home are still unwell and are hoping it will go away - I also think they know more about the seriousness of the virus than they are letting on - even for people with mild cases.

I will find out what I can tomorrow - I am definitely going to get my £250 worth of questions in! - he'll be booting me out the door after 30 mins 😂 I think after 6 months the medics can't just fob us off with "it's going to take time" - they must know so much more about the virus by now.

Take care,

Lx

Hello Lulu and everyone. Its been a while since I wrote and updated. I'm sorry to see you all here still, and I mean that in the best possible way.

Last time I posted I was having vision problems and had to keep off the forum as I couldn't focus without headaches. Well I got my eyes tested and was told they were fine although I was given an altered prescription that turned out to be wrong - so I had a week of further headaches and eye problems! Just what I needed 🙄😂

The prescription has been changed now. Unfortunately I have had a headache every day since then for the last week. So I don't know if it is virus related or a mixture of that and a bad prescription hurting my eyes. What a palaver.

The headache the last few days has felt like I have a low fever to be honest but my temperature seems fine. Paracetamol and ibuprofen don't seem to touch it and it's really getting me down. The top of my neck where it connects to the skull is sensitive as well and full of tension. Anyone got any good ideas to deal with it?

I've also got the breathless thing back with a cough! I was sure that was finally done with but it's back and feeling like it did maybe two months ago. PF results are lower than normal too and energy levels.

All a bit disappointing and mood lowering. Sorry folks, I'd love to give you a positive update, although I notice lots of good scores from people so that's great. I hope you all get to 10 soon.

The throat lump and congestion thing has mellowed and isn't quite so prevalent at least so that's good.

Has anyone else noticed hair loss? I remarked to my family yesterday that I had never seen so much hair in my comb the last few days. Strangely enough later that day I saw a news article mentioning hair loss as another symptom! Hopefully it's nothing too baldness inducing 😓

Anyway enough complaints from me, I never feel good talking about myself like this but I'm sure you can imagine, like all of you, I'm pretty fed up. Lulu glad you had a nice break and I hope the appointment goes well and you come back with some useful info.

All the best to everyone. Have a good day.

Stuart

Hi Stuart

Great to hear from you but a shame not better news on health front. Maybe the headaches are related to prescription and even when you get a new prescription can take a while for the eyes to adjust so hopefully will settle down.

I just go with the flow these days, as I've said, never know what is in store from one hour to the next - was sitting here last night feeling pretty ok and then suddenly felt like had a really bad head cold! Not the first time this has happened or probably the last - same with the chest tightness and breathlessness just comes and goes for no particular reason - have literally given up trying to work it out - I used to think it was if I over exercised, then I decided it was because I hadn't exercised, then I thought maybe it was too much dairy and in the end I have absolutely no idea what causes it! I still cough regularly and am still getting rid of mucus a few times a day - all part of normal life these days!

Have been following #longcovid on Twitter - amazing how many people experiencing same symptoms for same length of time as us. Pretty certain the Government don't want people to know about the huge number of people still sick six months later as no-one would leave the house or go back to work - probably for this reason BJ has downplayed his own illness. On a positive we have improved and can only hope the improvements continue but it is hard to see that when you are in the middle of a bad dip.

I did read about hair loss but can't say have noticed it but maybe someone else has had similar - seems so many symptoms and everyone gets a different mix of them!

Take care,

Lx

Hi Stuart I've had the headaches I told my gp they were migraines but was told head tension I also get the earaches as well at the moment both did ease but I have overdone it at work an easy day turned into a nightmare they have come back so it looks like if we over do it they will come back like the fatigue I was feeling good this morning not so now early night and see if it affects me in the morning Gary

Hi Gary and everyone

Back from appointment. He obviously wanted to know how the last 6 weeks had been and when I told him about all the symptoms coming and going, day to day and even hour to hour, he said that was VERY (!!)positive 😯 - he said it proves it is nothing sinister and not structural (his exact words!!) if it was he said the symptoms i.e. sore throat or blocked nose would just get worse and worse rather than come and go.He said the virus has caused the lining in the respiratory tract to be more sensitive to everything - pollen, pollution, dust and it will gradually settle down over period of time. He did an endoscopy again and said throat and mucus improved since last time but still some inflammation but nothing to worry about.Told me the mucus is the response to the inflammation and as inflammation is subsiding so will the mucus which to be fair it is but very slowly.

Said to stop taking meds (Mucodyne and Lansoprazole) see how things are - he said shouldn't need Mucodyne now and if throat gets worse again can always start the Lansoprazole again. He did ask if I had used the nasal wash he recommended last time (Neilmed Sinus Wash) and when I said no he said should definitely use it as will help with the mucus in nose and back of throat and clear the sinus so have bought that - something else to add to the medical repertoire!

I asked if they were making progress with understanding the virus more and he said they had made progress with regards to the lungs but I would need to speak to respiratory consultant who I am seeing next week so not sure if that is going to be good or bad but overall he was quite upbeat and said "I do believe you will fully recover" and "just try and live your life as normally as possible and slowly things will settle down". Am seeing him again in 6 weeks so be interesting to see how things improve and whether can manage without the meds. Am really hoping so as have never taken so many tablets in my life - was on 16 a day at one point so to not be taking any will be amazing 😀

Anyway, hope everyone doing ok, think the constant change in temperature doesn't help us - especially the cold air in the mornings and evenings last few days.

Lx

Hey Lulu and everyone,

V. interesting what the specialist said, consultant I spoke to weeks ago said the exact same thing about changing symptoms that come and go being a good sign! It sounds strange but I guess it makes sense. Mine told me if there was one specific place in my body hurting all the time that would be a concern otherwise its very post viral.

Good to hear from you Stuart and sorry you're still feeling poorly I hope things improve for you soon.

I'm still not over my tummy issues that started over a week ago but I'm managing to get by just not feeling very comfortable right now. And of all the weird things I've got a smoke smell in my nose here and there which started yesterday. Joy. 6 months on and still strange stuff...

But otherwise ok.

Have endoscopy on Thursday and pretty nervous. It's not the endoscopy you've had Lulu, it's the one that goes into the stomach. Hopefully it will see what's going on as have had quite a bit of GI issues.

School starts Thursday 🥳

Hi Lulu,

Thank you for publishing the details of your meeting with your consultant. The news is promising especially there's nothing seriously wrong but having to wait for the inflammation to abate.

Have a lovely evening.

Hi lulu thank you for updating what he said could be in for a little longer haul than we thought it caught up with me today I've had to double my doses of hemp oil to get the tension back down I had a long hard shift today am hoping to be OK in the morning had a broken rail on the main line so had to do a bit of work 😭 taking the mickey out of me making me work 😂 I think you will be OK without the meds and actually feel better I've kept some flarin and will continue to take the vitamins if I get a headache or tension I take hemp oil the stronger version it seems to help not that I'm sure maybe none of it does and it is just time I'm hoping we all feel great soon Gary

Thanks so much for sharing that interesting and useful advice, Lulu. It's good to know that it's ok for these symptoms to come and go and it's nothing to worry about. It's also reassuring to know that the cause is inflammation which is gradually improving.

Of course as soon as I said my nose was clearer it started blocking again and giving myself a high score was a mistake as I feel a bit run down this week with cold symptoms.

I'm tempted to get some of that sinus wash Lulu, although I'm still steaming and using saline spray a couple of times a day

Have a good day everyone

Hi Dane and everyone

Definitely interesting what he said about symptoms coming and going and he was very certain it was a positive sign!

Sorry to hear about the stomach issues and didn't you or someone else maybe have the smoke smell right at the start of this?I had it for a couple of days months ago and remember thinking oh here we go another symptom but it went away thank god it must make you feel really nauseous.

Good luck for Thursday Dane, it is nerve wracking but will be good to be checked out thoroughly.

Also good to get the kids back at school will give you some time for yourself - heard presenter on the radio this morning saying how probably all the mum's and dad's were desperate for the kids to go back to school and are now missing them terribly - I did think to myself ermm.. I don't reckon they are after having them around 24/7 for six months, they are probably just breathing a big sigh of relief and sitting doing nothing much for a while enjoying the peace and quiet!!

Take care, let us know how you get on tomorrow.

Lx

Yes how dare they expect us to do any work?!! - I was a bit indignant the first time someone asked me to do anything challenging but I think maybe we have lost our confidence a bit over last few months and also must be so hard to have a physical job as you are just not sure what your limits are at the moment. Sorry it was a hard day but you got through it and let us know how you are feeling today - hoping you have bounced back after a decent night's sleep. Have stopped the meds and am just going to not think about it too much and see how things go. I'll take a dose of Flarin if I get a sore throat.

Lx

It is always the same Jo, as soon as you think something is better it comes back to bite you. I was the same Monday night just sitting minding my own business and literally felt like I had the worst head cold and then by yesterday lunchtime it had gone again - really hope same for you that it doesnt last. I have not tried the sinus wash yet, my partner said it is disgusting he has used it, so not exactly encouraging but will give it a go and let you know. Specialist told me last time to use it and I didn't bother so no point keep going back to him if I don't try what he suggests - although I did wonder if he had shares in Neilmed as he seemed to have an awful lot of leaflets lying around on his desk!!

Lx

No problem Jim, think we need to share as much info as we can. How are things with you, any improvements?

Lx

Hi lulu good afternoon I'm having a better day today not so busy and just got off the phone with the ent specialist told her basically feeling better but the headaches and earaches and tension hasn't gone tight chest is still there and little stabbing pain in the back now and again told her I done the physio exercises for a few weeks but not working told her I feel better in myself but I am concerned that the symptoms are still there she is going to speak to my gp good luck with that I will like you just get on with it Gary

Glad you are feeling better today Gart and not so busy! - yep good luck with the GP feel lucky if the phone gets picked up at our surgery these days. Specialist last night said just get on with your life and I do remember he did say even though none of us think we are particularly anxious the whole world is anxious at the moment which is probably true and we must have an underlying health anxiety from being so ill will so little support which may not be helping our recovery but not sure what we can do about that other than get plenty of rest and try not to worry - easier said than done though!

Enjoy your evening,

Lx

Gart?!! must read what I type before hitting post!

Hi Lulu,

Thank you for asking how I am.

Much the same, the usual intermittent nasal congestion and drip. Sporadic sore throat and mucus I think on my chest but I'm not sure about the last.

My pal can see a change in me over the past few weeks regarding how I look and the fatigue. One thing I've noticed is I recover quicker from a dip now. That could be either me realising a dip is coming, so I stop what I'm doing or I've a greater resillience. Who knows!

Definitely feel better than I have.

Your sounding good Lulu.

Hi Lulu, and hi to Gary and Dane too. Nice to hear from all of you.

Thanks for your update Lulu. Its very interesting and I appreciate you taking the time to let us all know.

I always thought that the coming and going of symptoms was a bad thing and reminiscent of a sort of post viral syndrome (which I dread) so it's interesting to hear this different viewpoint. I've been feeling pretty down and desperate about that lately so your news is very welcome.

The Neilmed thing is great fun if you don't mind feeling drowned in salty water! 😄I have used them in the past. After a couple of times it's fine. Well I found it okay and I remember you commenting that salty water was something you didn't mind too much. It's a more powerful version of the Sterimar spray I guess.

I had a better sleep last night. The previous night was one hour in total 😲I've been finding it very hard to relax at night even if I'm exhausted. I took a bromezepam pill which a friend gave me. She uses it for flight anxiety. I gave it a try and slept like a baby. Removed a lot of tension from me. I'd sure like a supply but it might not be easy getting a doc to give me such powerful stuff. I've realised there's a lot of background tension going on behind the scenes in my body. Hard to recognise it's there as it is a constant companion I think, and not something I can try to alleviate with breathing or thought exercises either. It's like the body is on high alert. Anyway, it certainly doesn't help and probably makes everything feel worse.

Chest and cough are still here today and low level headache. Feel pretty run down.

As far as the headaches are concerned, a bad glasses prescription from the optician didn't help, but the eye blurring previous to that and headaches were mostly virus based I think as my actual prescription has hardly changed and my eyes are in good shape. The optician said long term illness can affect the vision sometimes.

I have seen Flarin mentioned a lot, is that liquid based? And is it easily available? What are people's experiences of it on here?

Joanne - I wrote that my lumpy throat and nasal congestion was better yesterday and today its back, so.... I know how you feel. It's weird isn't it?! 😲 Say nothing positive about symptoms seems to be the tactic!

Dane good luck with your endoscopy. I know how nerve wracking those invasive things can be. I had one at the 'other end' last year. But it was fine. I'm sure you'll be well looked after.

Anyway, thanks again Lulu. And all the very best to everyone. Good health and good wishes to all.

Stuart.

Hi Jim,interesting what you say about 'the dip' and recognising it when it's coming. That's the trick I think. I don't think I've figured that yet. But your post has made me remember a few days ago I went on a walk and went too far, with not enough food /fuel inside me. I got home totally exhausted so I'm now realising it's no surprise I've had a relapse. It seems that energy management is key.

Thanks for jogging my memory! 😃

Hi Stuart,

Been put in contact this afternoon with a chap who has ME by a close pal.

We spoke for an hour or so and his one underlying piece of advice is to time how long you do specific physical actions. For example-gardening, 20 minutes then an hour or two sitting down reading or watching tv and then repeat. He says that way you don't end up with exhaustion.

He started with an ear infection three years ago, which lead to the post viral fatigue. He explained how it suddenly came on and how he had a real struggle for doctors to recognise it. He can do more than 20 minute bits of jobs now but had to work up to it slowly.

Poor chap, that sounds terrible. I hope it isn't us. Did his symptoms match ours at all?

Good advice though concerning the timing of exercise.

My thoughts exactly but there were no similar or the same symptoms.

Just an ear infection started it off.

He's in a group of sufferers all with differing originating illnesses, lengths and severity of suffering.

Said he knew a couple of people that just woke up better on morning.

Bizzare.

Like you say good advice on effort expenditure.

That's really good news Jim and sometimes people close to us can see the improvements more than we can. I agree about seeing the dips coming now I think we probably recognise the change in symptoms and take a rest from what we are doing which helps.

Take care and hope things continue to improve.

Lx

Hi Stuart

That sums it up perfectly being on high alert! I feel exactly the same and am aware of every pain or twinge in my body - it must cause anxiety and also be exhausting to have been like this for 6 months.

I might save the Neilmed experience for another day - you haven't sold the experience to me! even though I do love swimming in sea don't fancy squirting salt water up my nose!! Flarin is just a lipid form of Ibruprofen - still capsule form but easier on the stomach apparently - it works fast and gives good pain relief. I do wonder if we had taken Ibruprofen from the start it might have helped with the inflammation but back in March we were being told not to take it but to only use paracetamol.

I think sleep makes such a difference I only started feeling better when my sleep improved - you can buy Nitol otc - would that help you maybe?

Stress also affects eyesight badly so probably combination of the virus/stress and prescription all affecting eyesight but hoping will improve now you've sorted prescription.

Agree, don't ever mention to ANYONE that you feel better or a symptom has gone as it is the surest way to set yourself up for a crash!!

Take care, keep in touch with how you are doing.

Lx

Afternoon all,

I've been reading various reports on the internet about chronic fatigue syndrome.

One via the NHS is aimed at clinicians and goes through a whole host of symptoms and the varying treatments/drugs for them. Having read in the report in it's entirety all the symptoms listed are those of our happy cohort. I know across the forum we vary in symptoms but the report lists them all.

Apparently, there isn't any know drug to assist with the fatigue.

Have a google when you've a minute.

Hope everyone is okay today.

Afternoon everyone I've nearly done another week at work with a few symptoms I've been taking hemp oil and mullein leaf oil with me to work it may help may not but when I overdone it the other day I took it and rested should have an easy one tomorrow tight chest came when I got home I don't know when the gp will ring don't worry about that now I think we all now got to the stage where we will have to wait for that day when we can go great everythings gone then wait another week just in case just hope you all have a symptoms free weekend someone has to get there soon please Gary

Totally agree with you Gary.

Well done completing another week pal.

Thanks Jim days are easier than nights except Tuesday but sometimes it is going to test me I'm really lucky though like you and steph I haven't fainted yet all the tension came back and I felt my hands and legs all tingly same thing happened when I over done it riding my bike so we have to just judge it I've got a holiday after 4 nights next week Jim so I'm looking forward to taking it easy you have a great weekend mate and don't push it Gary

Yep bring on Friday! How long does the tight chest last for? My chest started feeling tight last night and isn't right today but not too bad. Do you have to cough to clear it or does it just ease up on its own. I am feeling bit nervous as stopped the Mucodyne and am worried the mucus will now collect on chest.

My son said today the tube is packed again so people heading back to work but no chance of any social distancing going on - just waiting for my team to be summoned back to office, think large corporations are getting a lot of pressure from Government to get back into offices.

Enjoy your evening.

Lx

Hi lulu yes it's weird because I get the tight chest and it comes up to my throat for a while then goes and come back I've not had the mucus as bad that maybe because I get the tension headaches and earaches I was told when the mucus comes up to spit it out not so easy at work the trains are getting busier because I go through Watford Junction car park on my way to work and there is a lot more cars in there than a couple of weeks ago so I imagine that will be the case for the next few weeks Gary

Morning everyone,

It's a strange morning, feel really out of sorts.

Just as though I've a head cold but my nose blocks and unblocks with bizarre regularity with a burning sensation in my nostrils. Feel uncommonly cold too. I've managed to get up some mucus though.

Even my stomach has joined in, churning away, feeling an acidic burn. I won't mention what's taking place further down.

Hope everyone is feeling okay.

Jim.

Hi Jim

Sorry you're not well, I've had a bit of a week like that, feeling run down with cold symptoms, sore eyes, nose blocking, sore stomach etc. I think it must be from overdoing it at the wkend, I don't learn, and did far too much.

Hope it eases off for you soon

It's a tricky one, the tight chest, Lulu, it comes and goes, sometimes can clear it, sometimes not. I know what you mean about giving up medication, especially after so long, it's scary! I forgot to take one of my reflux capsules yesterday, and I survived 😃

Hope your eye problems improve, Stuart, mine have been really sore this last week. I tried wearing my contact lenses for a few hours at the wkend as they seemed better, but now they're sore again

Hope all went ok for you Dane, at your appt, and you're feeling better

Have a good day everyone 😃

Hi Jim

I had this exact thing last week - it did pass after a couple of days. Had a few stomach issues but not as bad as you by sound of things but the head cold literally came on whilst sitting watching tv and then passed the next day. If you google non-allergic Rhinitis that is what the specialist has put on follow up letter I received today.Basically inflammation and swelling of the mucous membranes of nose and you get runny nose and stuffiness - sounds same for you and others who have had the head cold feeling on and off.

He said to drink more water I sometimes don't drink enough - felt a bit ropey yesterday but better today - just no rhyme nor reason why only difference was I slept really well last night so maybe that helped.

Take care, let us know how you are feeling tomorrow.

Lx

Hi Jo

The tight chest is the thing that freaks me out the most - I had it night before last and couldn't sleep in case it got worse but in fact was better in the morning - I find walking each day helps but if I walk too far it makes it worse, it's a balancing act.

I am trying not to worry about not taking medication and actually feel ok today so fingers crossed! Doc seemed chilled about it and just said you can always start taking again if need to.

We must try not to overdo it this weekend, but easier said than done!

Hope you got on OK Dane yesterday and things are better for you.

Have a great weekend, everyone.

Lx

Sounds like you've been through the mill again Jim how you feeling today looks like a nice day here up early can't sleep Gary

Morning lulu tight chest again this morning feeling like just gotta go with it now I'm just taking mullein leaf and vitamins added zinc now just in case for the immune system play the waiting game don't think I will here anything from the gp for a while I've only got four nights next week then off for a while wishing it will be over by the time I go back to work somehow not so sure who knows maybe it will Gary

Morning Gary,

Thank you and everyone else for their kind words.

This morning I feel better but with a bit of nasal congestion.

As down in your neck of the woods Gary the sun is out, so looks as though it'll be a nice day. It's a bit cold but an extra layer will sort that.

Glad you've a short week Gary. I'm sure you'll have no problems and then your off!

Your right I should be fine with work now Jim I was wondering before about the fatigue it seems like I got close to pushing it then rested just sitting here typing this and noticed my stomach is going mad weird noises ive been getting that a few times lately my daughter told me the other day hope that's normal and just goes good to see you feeling better today Jim I'm going to be a devil have a few beers later see if I feel OK tomorrow hopefully everyone else has a good weekend gary

Glad you are feeling better Jim, I think maybe the change of temperature etc. that causes the nasal congestion but hopefully it improves, I've been the same this morning but was fine yesterday!

Enjoy your beers later Gary and have a good weekend everyone.

Lx

Thanks Lulu.

I've neilmed my nose twice today. First time was the best. Ages after I'd done it I bent down to pick something up and water poured from my nose. Bloody hysterical.

My test today has been cutting the front lawn.

Hi Joanne and everyone, thanks for the words about my eyes. I have my new prescription now and I think they're okay. My eyes haven't changed much so I think the post viral stuff is the culprit. I told the optician about my eye problems and I was given some drops for them. They're for dry, sore eyes. Very good so far, they're called 'Thealoz Duo'. Not sure how widely available they are but might be worth trying Joanne. I was given a free sample so it's worth asking for one maybe.

I didn't post for a couple of days as I called my new doctor's surgery, hoping for a fresh new start. Unfortunately, by all accounts I got the worst doctor at the place and he was so disinterested and unhelpful it drove me to the upper reaches of stress. I had a whole list of things to ask and got nowhere. I could have cried. Anyway I couldn't talk about it for a couple of days as I needed to forget about it.

My main symptoms at the moment are the tightness in the chest, a feeling of having restricted breathing, and general unwellness similar to the grotty feeling you get with a cold. I have the need to cough to try and shift the feeling of heavy mucus on chest but I see very little. I even wonder if it is coming from my throat instead. As mentioned at an earlier post I find the tight/breathy feeling comes on stronger after I eat in conjunction with nasal congestion. Can't understand it.

The other weird thing is that if I have a drink of say rum or bourbon whatever, in the evening (straight) all my symptoms disappear. Chest, cough, congestion - I suddenly feel normal. I can't figure it out and it says to me that being relaxed and sedated a little have a big effect. Lulu I mentioned high alert to you, that feeling that my body is operating in an emergency state and I am starting to think we need our bodies to be told to 'stand down'. Don't know how but I really think its the key. I can't figure out how a glass of rum magically removes a tight chest that I've had all day and the lump in my throat etc. Weird! Anyway enough of my musings. I hope you're all doing better today and that tomorrow brings positivity. All the best to everyone.

Thanks for the eye advice, Stuart, I've been using celluvisc eye drops for dry eyes for a while and they're not helping at all with the sore eyes. I think maybe I need to get some different ones, I'll have a look for those. That's good your eyes are better, I'm not sure about my prescription, glasses seem ok, bit blurry, but my eyes are different when I'm wearing contact lenses, so will have to wait and see.

Sorry you had the doctor from hell! Haven't spoken to mine for a while, they're really not interested at my surgery. I think we're doing a better job sorting it out for ourselves.

I've been reading about post-viral fatigue, and I'm sure that's what I have now as all those cold symptoms seem to be part of it. (trying not to read too much stuff now though) Anyway decided to order some co enzyme Q10 which is supposed to help with energy levels and the immune system. And I wasn't going to order anything else...Well this is definitely the last??

Hope you're feeling better and enjoy your glass of rum! Sounds like the best medicine

Enjoy your evening everyone 😃

Hi Jo and everyone,

Haven't spoken to my doc in a while either, a couple of times when I've been feeling particularly out of sorts I thought to pick up the phone for help but then decided...nah, what she going to say already...I just pray whatever problem I'm having will go on its own. Anyway I've got some further testing going on now so that's helpful.

Had the endoscopy on Thursday. Was a bag of nerves before it, couldn't sleep properly the night before. Just to help me calm down the nurse asks me right before if I've ever had it before, I told her no and she says, it's not very comfortable but it will be over quick. Gee, thanks for the tip! Same nurse couldn't get a canula in my hand she kept saying my veins were collapsing. I was getting so anxious! Eventually she got it in my arm and once the sedation went in it was ok. No picnic but thankfully it was over quick. I've never been sedated before but have to say it felt awesome to be so relaxed (it lingers on post procedure) Stuart you were saying our bodies are on high alert and we need to calm them down, I think we all need a shot of this stuff 😁

My throats sore now from the endoscopy, hopefully that will ease up soon.

Results so far are non erosive gastritis which is inflammation in the lining of the stomach and waiting for further results from pathology which can take up to 6 weeks! Not been told if I need treatment for the gastritis so carrying on as usual.

Jim sorry to hear about the tummy troubles, sounds similar to what I had 2 weeks ago, no idea what provoked it. Hope you're feeling better now.

For those that mentioned eye issues, mine still sting at random moments, I wonder when that will go though doesn't bother me too much.

Hope you're all ok and are able to enjoy the rest of the weekend.

Hi Joanne, thanks for the reply. I did enjoy my glass or two of rum last night and thankfully the tight chest and other symptoms left me again. The symptoms are back this morning. Unfortunately I can't drink rum all day 😂

On the subject of eyes, the optician told me that we tend to blink less these days as we're looking at screens so much more. The blinking lubricates the eye and as a consequence of not doing it so much we can get very dry eyes without realising. I'm not saying that is what causing any of your problems but I thought it was a useful piece of information to keep in mind.

As soon as you mentioned coenzyme Q10 I was straight on to the Internet. Is there any particular brand you were considering buying? I'll try anything if it might help!

Have a good day today. Hope it's a better one. ☺️

Hi Dane, well done with the endoscopy. It must be a relief to get it over with. I had a colonoscopy last year and was very nervous beforehand. It took three nurses to manage to get a canula in properly as i was so dehydrated and anxious by the previous 36 hours of preparation for the procedure, so I know how you must have felt. I'll be interested to hear what treatment you receive for the gastritis.

The sedative I had was great too. As you say - if only we could have a few days of that to give our bodies a chance to rest. I'm sure it would help.

Hope your sore throat settles down quickly and you have a good week. 🙂

Hi Stuart and everyone

I am the same as soon as I drink alcohol all my symptoms seem to disappear 😂 In the early days I used to have a glass of wine every night and for an hour or so after would feel so much better - I suppose alcohol suppresses the senses so probably similar effect as taking Ibruprofen you get some relief but unfortunately doesn't last long! I think quite a bit of the mucus is now in my throat and nose, the ENT guy could see it when he did the endoscopy but I do still get mucus on chest but I think better than it was a few weeks ago.

Still not used the Neilmed Jim, probably should as my nose is blocked and have the head cold feeling again today but am just enjoying no meds or procedures at the moment after so long, will leave it a few days and see if it resolves on its own.

Glad you got on ok Dane and the procedure went as well as it could, it must have been stressful for you - it's amazing that we all seem to still have inflammation in different areas of our bodies - god knows what was going on 6 months ago if the inflammation is still there now?! Hopefully it will gradually resolve or you can be given some treatment to help.

I am same Jo and am not going down the post viral fatigue route, I believe the mind is powerful and so easy to read stuff and immediately project it onto your symptoms - I am just telling myself that at 6 months I feel so much better than at 3 months so hopefully by 9 months/1 year all these issues will resolve - I have to believe that otherwise it is too depressing. Seems we are all progressing but in a two steps forward and one back kind of direction!!

Enjoy the rest of the day everyone!

Lx

Hi Lulu,

I've taken to the drink and after an antidepressant tablet, sleep like a log.

The neilmed thingy is okay but I get alot of water trapped, which lasts a while.

I'm the same as you with the mucus. Definitely more nasal but a bit in the chest.

My challenge is the fatigue. I tried cutting the rear lawn. No chance. I'll improve, I've got to. I can't, won't stay like this. Everything else I could live with.

We will get there!

Dane,

My stomach has improved thank you and well done for braving through that procedure. Not nice. A couple of years ago I had a camera up the other end. Lovely!

They could get a vein, so it was gas and air. lol.

Hope everyone is well.

You will definitely improve Jim, wasn't too long ago when we were all in a bad place and things have improved a lot over the last couple of months. I need to do the Neilmed wash the consultant was adamant that is what would help me most with the nasal stuff - I suppose it shows it is not that bad that I haven't done it! I do get very tired too but many of my friends have said they feel tired after lockdown - all got used to a slower way of life but I know this is a different type of tiredness from being ill but again I do think it will slowly improve. Back in May/June I literally couldn't get off the sofa to cook a meal or anything - looking back helps me see the improvements.

All these procedures, if someone had said someone was going to stick a camera up my nose and down back of throat six months ago I would have freaked out but now I just don't care so long as it is a means to an end to get us back to full health they can do whatever they like!

Take care,

Lx

Thanks, Stuart, that's interesting info about eyes, I think looking at screens isn't helping my eyes, I'll have to try to rest them more.

I've ordered Nutravita coenzymeQ10 from amazon, I looked at the reviews and liked the sound of it. Hope it helps!

Lulu, I agree with you, I don't want to be post-viral, I just want it to go away and not come back. Let me know if you try Neilmed, maybe I'll give my nose a blast!

Dane well done for surviving that ordeal, hope they'll be able to advise you now, and things improve for you

Thanks Jo, Jim, Lulu, Stuart

Guess it's a bit unpleasant whichever 'end' it goes through!

Consultant who referred me for the test didn't think they'd find anything and that kept me thinking. ..well then why am I doing this? Glad to have done it as it's properly diagnostic.

Throat very sore but otherwise ok (fatigue but nothing out the ordinary!)

Morning everyone!

Have a face to face with respiratory guy Weds eve if anyone has any additional questions. Saw on Sky news last night that the Telegraph running article that the lungs will heal in 3 months even after severe Covid - ENT guy told me they had made progress researching the effects on lungs and to speak to specialist Weds so maybe this is what he was referring to . It may not be 3 months for some of us but overall positive news.

Hope everyone has a good day.

Lx

Morning Lulu,

Thank you for the information.

Would you please do your usual and disseminate your conversation with the consultant.

If I think of any questions I'll let you know.

Thanks Lulu your a star.

Hope everyone is well.

Jim.

Hi Lulu and everyone.

Lulu thanks for letting us know about your face to face appt. Could you please ask the specialist about breathlessness occurring after eating? This is a common occurrence for me, within 30 minutes of food I'm feeling short of breath and congested, with post nasal drip and lump in throat, doesn't matter what food it is . I'm now using my inhaler to try and stop it as it is quite an uncomfortable feeling and think it might be asthma related. Any info would be great.

I agree with you about not getting into the mindset about post viral syndromes. It is best to remain positive. We will get better. The only thing that bothers me is that I'm not as good as I was weeks ago. I was walking twice as far and faster. Now I'm slower and not able to walk as far without repercussions. Last night I had a 20 minute walk which left me with chest pain and an increase in mucus, congestion and fatigue. Wish I could understand what the hell is going on. It doesn't make sense. Two glasses of rum came to my rescue though!!! At the end of all this crap I might be finally cured but in the meantime become a raging alcoholic instead! 😂

Joanne thank you for the info on the coenzyme Q10. I'm going to buy some

☺️👍

Hope you all have better days to come. Cheers!

Ps has anyone seen a specialist via NHS yet or are all the appointments so far through private?

Hi Stuart,

Sure of course will ask that question. I do find that when I do a long hilly walk I seem to get more mucus and congestion than if I don't walk so far but I tend to think that is a good thing (I am going to ask about this too) as I think from what I've read it is very hard for the body to clear the mucus from the lungs that is why the recovery period is so long and the exercise loosens it.

I'd have no hesitation hitting the rum if it does the trick!! - do you drink plenty of fluids during the day - I find the best is peppermint tea it makes a real difference.

Anyway, stay positive it will improve and I'll give you a full update when I've seen the specialist.

As you know, I gave up on the NHS around week 6 and all my appointments are now private - my surgery was really good at issuing sick notes and repeat prescriptions but if you needed any medical advice or help forget it - I was better off googling it 🙄 shocking really that we have had so little support. I know there are a lot of #longcovid groups pushing for recognition and help many led by health professionals who are still struggling like many of us six months on - I follow a few on Twitter and there are a lot of sick, worried people all trying to get answers but still no recognition by the Government - it probably doesn't suit their agenda of getting people back to work for people to know if you get ill you can be sick for months even if you are fit and young - people still believe it is mild flu symptoms which I spose for some it is but for many it is not.

Lx

That's really good news lulu thanks you for the update had a few drinks the weekend thought I would try what Stuart said and it gave me a good sleep both nights but came back and bit me on the back side so to speak chilled most of the day though and back to work tonight you really have made my day with the news wasn't too sure about the breathing hope everyone is getting better Gary

Hi Stuart,

The care I'm getting now is only nhs, had the endoscopy from a referral and have a face to face appt with respiratory specialist on the 22nd. After whinging and whining to my GP for weeks she eventually got me referred to the post covid team at Barnet hospital. It's all veeerrryyy slow but at least it's something. I think there are quite a few post covid clinics around now might be worth telling your GP to refer you.

Thanks for the positive words Lulu and I very much appreciate you asking the specialist for me, very kind of you. Have a nice evening ☺️

Hi Gary, sorry you got bitten. I only have a couple of glasses... Or sometime three. Glad you slept well though!

Have a good evening.

Thanks Stuart sometimes I get a bit carried away peroni goes down so well and when you get chatting forget how many I have and at the time I forget about my symptoms I'm on nights now so recovering in both respects hope you continue to improve Gary

Hi Dane, thanks for your reply. I asked my new doc about being referred to a post covid clinic and he said he hadn't heard of such things! He was totally useless. Now I am confused as to why he doesn't know.

It's great you're finally getting some care. I am still waiting since May to see a respiratory specialist.

Have you actually visited a post covid clinic now or still waiting?

Out of interest, did you ever test positive for the virus?

Hi Gary, beer doesn't seem to help me at all, although I love the stuff. It tends to make more mucus for me, or so it seems. I don't get the same medicinal effects as Rum etc. I think the warmth helps a lot (and strength 😂)

Hope work goes okay, you're doing a great job Gary. Amazing. 👍👏

Thanks Stuart but to be honest I have a good job that I can take it easy if I feel the need to that mucus will ease soon for you enjoy your week Gary

That's annoying.

Whereabouts are you? You can maybe try find out yourself online if any of the local hospitals have anything. I remember years ago wanting to get a certain test done and when I asked my then GP to arrange he had no idea what I was talking about and proceeded to google it for ages and still couldn't find it. I ended up going home, googling it myself and ordering it! That was a lesson for me that sometimes have to be a bit proactive with my healthcare, it's annoying but it is what it is.

Haven't visited the clinic yet, only had a chat (a very long one) with a respiratory specialist over the phone.

I've only tested positive for antibodies, got the virus before the lockdown when they weren't swabbing unless admitted.

Have you got an appointment for a specialist?

Hi everyone hope you're all doing ok. I contacted my GP last week and she prescribed me Otrivine it's a nasal spray. She said it would help with the congestion. Lulu thanks for telling us about Neilmed like Jim I've been using it and if you don't mind the feeling of drowning lol it helps clear the congestion too. There's not much change with me still waiting for a miracle !!

Morning guys,

There are a couple of articles on long covid on the BBC and Daily Mail websites.

They are running duplicate articles, so take your pick on which you read. The BBC one is more comprehensive though.

Hi Dane, I tried Googling for post covid clinics but I don't get anything. I'm in West Sussex. Really annoys me that there seems to be no care and no service in place. I feel pretty left out of the loop really. I was referred to a respiratory specialist back in May I think. No news. If GPs got back to doing their jobs properly and at least did the basic respiratory tests for asthma etc it would be a help. Anyway thanks for responding, I hope you get seen soon. Cheers 🙂

Hi Steph, I'm waiting for that miracle too, hope it comes soon!

Seems to be all in the nose, throat eyes, ears.

Thanks for info on lungs, Lulu, I wonder how we know when they have fully recovered? I'm never sure if soreness is back or lungs. It's hard to tell.

Good luck with Q10 Stuart, I've started on mine today, hoping for more energy!

Well done on the nights, Gary, I don't think I'd survive that, I'm rubbish in the evening

Have a good day everyone 😃

Hi Joanne, good luck with the Q10. I have to be honest I hadn't noticed the price and when I saw it I realised I can't afford it (embarrassingly) as I'm not working and self employed. I need to know it works before spending even more money. I'd be very interested to hear how you get on with it though as that would convince me.

Hope you have a nice evening. ☺️

Hi Lulu,

I hope everything has gone well with your appointment.

Jim.

Hey Stuart,

That is annoying. If you haven't completely despaired I would suggest you keep nudging the GP to help you out on the odd chance they actually do something eventually.

Hope you're improving in the meantime.

New restriction news feels a little harsh. As a family of 6 that means we can't socialise with anyone not even my sister and family! I think it's important to take the extra caution now especially as winter approaches, on the other hand...yikes!

I've been doing ok, sore throat is settling down. Have the odd muscle aches and bit of reflux but mostly managing.

How are you all doing?

Hi Jim and everyone!

Had a long consultation last night - really nice, helpful, reassuring guy who has had C19 so very understanding. These are the points which hopefully will reassure people.

Exercise/walking - definitely do as much as you can and set goals to gradually increase. Helps strengthen lungs and also helps with mucus clearance. For me he thinks the mucus is more in the back of the throat and could see signs of reflux from scan so told me to keep taking the Lansoprazole for time being.

Chest pains /pain in shoulders/back- every tissue in body is affected by C19 including muscles and joints which will cause the aching but this will subside with time. Fire/burning sensation on inhalation is not the lungs it is inflammation of the chest wall and will improve. Pains in the back, shoulders etc. is the body repairing itself. These will come and go and gradually improve.

CT Scan - mine showed a small patch of Pneumonia damage on right lung but will heal and overall lungs look good. Many people's CT scans/Xrays are clear but they still have ongoing symptoms. He said sometimes the changes to organs are microscopic and won't shown on scans but will still cause you to have symptoms. Just need the body to heal and recover which takes time.

More breathless after eating - he said this is because the stomach distends after eating making the lungs smaller and giving the feeling of breathlessness. This will resolve. Try and eat smaller meals more often.

Will lungs fully recover - Yes with time may take up to a year.

Fatigue, depression, sleep disorders - have seen this in many patients. Important to rest, pace yourself, stick with sleep routine and stay positive, things will improve but do think these symptoms are actually caused by virus - it is not in our minds!

Reinfection - believes antibodies lasts for up to 3 months but T Cell memory should protect you from another infection for much longer unless you are exposed to a massive load of the virus so shouldn't consider yourself immune and still take every precaution (pretty sure we will all do that anyway!!)

Asthma - is seeing many people now showing signs of Asthma after being infected with C19 - he thinks I am showing these signs and although never had before it can be triggered by a virus - will know more in 3 months when I see him how I've progressed. He said cough, chest tightness, wheezing, shortness of breath are all Asthma symptoms - you can have 1 or 2 of these symptoms or all 4. Only time will tell!

Tinnitus - for me thinks linked to the ENT issues.

Had a lung function test which came out above average.

Anyway, hope this helps everyone and as usual just a reminder this consultation was relevant to me and my symptoms! (Apart from the eating one!)

Hope everyone is doing well.

Lx

Thank you very much Lulu. Yet again you've done our little cohort proud.

Great news you'll fully repair!

Sounds as though we'll all have to be patient.

Hi Lulu and everyone, echo Jim in that you've done us proud reassuring us that we will hopefully all get better in time.

I've not felt well with an ear ache and slight temp on and off which started with a headache yesterday. Just so fed up with feeling off it's been too long now !! Take care everyone and thanks again Lulu xx

Hooe you feel better soon Steph.

I really hope we all fully repair Jim its been such a long hard slog and still never know how going to feel one day to next. We just have to believe that things will continue to improve.

Lx

Definitely Lulu.

Sue's doing well. Back to normal.

oh really that is very good news!! Was wondering how she was getting on. So no symptoms at all?

Lx

Lulu,

Her message is on page 74.

Shes back to normal other than an odd day of feeling tired.

Hi Steph

That is it .. just so fed up not feeling well and not knowing what's coming next. I felt rough Monday sore throat etc, , pretty good yesterday, bit chesty and coughy today!! Maybe we over think it but you know when you dont feel right dont you?

Take care, you seem to have had a rough couple of weeks you must be due a good patch! I really hope so.

Lx

Thanks Jim , how's you doing ? Hope you're feeling ok

Yes shame our bodies aren't see through then we might be able to see exactly what's happened and what's going on lool . I went for a walk earlier and it bought back memories of when I was trying to get back to fitness and even a little walk was hard going !! Thank god we're all seeing improvements despite little set backs. Things can only get better !!

Thanks lulu it really puts our minds at rest! I'm so scared that I'll get it again and dredding the winter. Going to have a flu jab on 19th, work want me to start doing the sleep ins again now so will see how I cope as on your own with 5 clients all night 😏

Hi jim how r u getting on now.

Hi Gary how r you doing now.

Thanks so much for sharing that information with us, Lulu. It's really reassuring to know that it is a matter of time before we make full recovery. Even though that is what we keep telling ourselves, it helps that a specialist is saying it too.

Yes I wish I knew what was going on inside too, Steph, just lots of healing hopefully.

Stuart, I don't blame you not buying those capsules. I wish I hadn't, they were so expensive, but I was feeling really low on energy and they sounded like the answer. I've only taken one so far and it gave me energy but took a while to unwind as they're so strong. Maybe I'll take one a month!

All the best everyone, we'll get there:)

Me too am very nervous. Specialist recommended both the flu jab and the Pneumonia one - I dont normally have either but think we need to be extra careful this winter.

Good luck with the nights, keep in touch.

Lx

Lulu I can't thank you enough for asking the question for me. Thank you, thank you. 🙌🙌🙌🙌 It means a lot to me especially as I'm not getting any care. Your whole post is very positive and extremely interesting. Thanks for taking the time.

Dane I am nudging and I am hoping to see a doc tomorrow, hopefully a different one as I need to get my heart checked out because of chest pains. I spoke to a nurse there today who I hoped could help me get am inhaler but she told me to see a doctor and about the pains. The one thing that has really annoyed me is that she couldn't see any record of my first Xray that showed a collapsed lung. I'll have to get to the bottom of that. How can that not be there???

Joanne, Jim has told me I can get the Q10 quote cheaply at tesco. I'll look into into but I'm interested to hear about its almost immediate effects. Sounds powerful. Is it a bit like being on caffeine?

Thanks again Lulu and everyone. All the best and good health.

Stuart

I'll ask about the phenmonia jab I thought it was for old people.

Good evening everyone just checking in before work lulu your a star 🌟 thanks for the information I have to say feeling a lot better I've got time off work after tonight so will be checking on more I have nearly had the tension cease get little on my left ear and right shoulder was my left before glad your nearly there Susan hope you're chest pain goes Stuart sorry to see you're not feeling good steph hope your feeling better tomorrow dane I think we are all better gps now with Google anyways I still haven't heard anything back from my gp since the ent specialist spoke to me Joanne I had the same problem when it was all head ears eyes and throat all nearly gone hope your feeling better Jim I've got to pop off to work I know your all going to get there never thought little sugar would still be here little sod Gary

Hi Sue,

Thank you for asking how I've been.

The past three days have been great until early evening yesterday. All I can say is a very strange feeling came over me. I felt incredibly hot, head, face, neck and chest. The feeling lasted a half an hour. Weird.

This morning I'm congested even after steaming and a nasal rinse.

I really can't weigh this crap up.

Keep on feeling well.

Jim.

Hi Steph,

I was but things change.

Hey ho.

Thanks for asking.

Jim.

I forgot to ask but emailed specialist and he said have both - I can get flu one done at work but will have to pay for the pneumonia one as obvs far too young to qualify!!!

Am a bit nervous as never have flu vaccines normally and hear people say can make you feel unwell with flu like symptoms (just what we need!! ) what is everyone else planning on doing?

Lx

Morning Lulu,

My GP said have the flu jab and my consultant said put it off for a couple of months.

I'm undecided as yet.

Morning Jim

Put it off to give you more time to recover from this do you think?

Lx

Yes, Lulu. That is what he suggested.

That is a good idea thanks Jim x

I don't think I'll rush to get any jabs atm as I don't feel fully recovered from this yet. I've heard the pneumonia one is good though and you don't need to get it every year Lulu. Today I feel like I've got a cold nose really blocked and eyes watery, but ear ache better !! Wishing everyone a nice weekend , think the sun's going to be out !!

I'm with you on that Steph - maybe Jim or Gary will volunteer to have the jabs first and let us know how they get on!!

Hope the cold symptoms dont last too long - one of these days we may have a day with no symptoms at all or god forbid a whole week or month!

Enjoy weekend everyone.

L x

I'm similar Steph. I feel as though I've a head cold. Absolutely sick to the back teeth of it all.

As for Lulu's kind suggestion of volunteering either Gary or me I'll bow out on that one.

Oh this will make you laugh. I was given a respiratory physiotherapy appointment for the 21st of September way back in June. Today I received a letter cancelling it due to covid.

You couldn't write it.

The NHS have totally let us down.

Thanks Lulu I'm hoping a G&T or two will help xx

That is unbelievable Jim!! Agree we have been let down with thousands of others.

Hope the cold symptoms ease for you. I find sometimes just disappear over night so fingers crossed.

Lx

Thanks Lulu.

I was fuming when I opened the letter.

Gordon's has settled my temper and symptoms.

I can't wait for all of this to come out when this is all over!!!

Hi Jim yes feels like a head cold but hopefully it passes quickly. Enjoy your Gordons . Yes we've all been let down by health service.

Morning guys and girls just catching up with you I have never had the jabs either before covid I only ever had a back spasm so like most of you how would it affect me and my gps bless them have not even bothered phoning yet as for me I'm off work for a few days now you will be pleased to know all the tension has eased I only get a little ear tension left one tight chest has also eased I still get a little stabs in the back now and again time will see us through have a good weekend gary

Nice one Gary.

You're nearly there.

Hi Jim how are you doing mate do you still think Christmas or you feeling bit better in yourself I'm still getting mucus but it is nothing to what you get I've been up town with my boy this morning little tight chest now but and left ear tension otherwise feeling fine I really don't think my gp will ring now and to tell you the truth I don't care its not right this day and age that you and others can't get the help you need if I felt like I did three months ago I would be bothered going to ride it out now try and have a good weekend gary

Hi Lulu and everyone. I asked about getting the two jabs last week to the totally useless gp I spoke to (think I'd get more out of a stone lying on the ground.) he said hardly anything other than he didn't think so as it was for people with underlying conditions. I said that after 6 months don't you think I have an underlying condition???? Anyway I got nowhere. So I am non the wiser but I agree with you about the apprehension. I'm scared of making things worse.

I'm due an ECG next week as I spoke to another doc yesterday, who was almost human.

One thing that is stressing me out now is that I'm not getting any money in as I'm self employed and it's a physical job. I have to face the reality that I have to apply for ESA sick benefit, but it scares me getting involved with all that stuff. I will need a doctors note but that means having to speak to them again and making sure they understand and take seriously my condition. Dreading it 😓

Hope everyone has a good day today.

By the way Jim, that's total crap about your appointment. Utter joke. So sorry.

Hi everyone 😃

Enjoy your time off Gary, sounds like you're nearly there, that's great!

I've got mostly cold symptoms, but at least they're more predictable, I know roughly what to expect each day, unless I overdo things. Just getting fed up with it all. And we're having another lockdown here in the midlands 😦

I'm not keen on having jabs at the moment, will see how I feel in a month or so

Hope you can get some sick pay, Stuart, it's a long time to go without earning, maybe ask that nice doctor. I know what you mean though, they make everything really difficult, but it'll be worth it. Yes those Q10 must be the same as having about 10 cups of coffee! The effects lasted a few days.

Jim, they get worse, cancelling your appt, they're totally useless!

Enjoy your weekends

Hi Joanne yes I feel that six months is the marker like lulu said I've just about given up taking any medication I'm not even sure if it did work against covid or not maybe it was a time thing in the first place hopefully your cold symptoms go and your done with it soon have a good weekend gary

Hi Stuart and everyone

Just set aside a morning when you have plenty of time , take a few deep breaths, a large swig of rum and deal with the sick benefit application - you are entitled to it, you have been really ill so should claim it and hopefully it may ease the financial worry, I wonder if it can be back dated? Maybe if the doctor queries how serious your condition is you could suggest having a quick read through of the 4,153 posts on this thread! I read that Matt Hancock (not personally!) was supposed to be updating GPs on long covid but wouldn't be holding my breathe (even if I could!)

Sounds like everyone feels a bit apprehensive on the jab front - but good advice from Jim to leave it for a bit longer see how we feel mid/end October. Another six weeks will make a difference to how we feel.

Have a great weekend everyone, hope the cold symptoms have eased Jim and Steph and Jo. Sounds like you are doing well Gary, we must be nearly at six months anniversary - we might have to readjust our expectation to Christmas now to be completely back to our pre C19 baseline but hopefully we are on the home stretch now!

Lx

Evening all,

I booked an appt for the flu vaccine because I received a text message that I'm entitled to one so just went and booked. Didn't give a thought to possible after effects. Never had one before. Now you've got me thinking...

Felt a bit off on Friday with slight breathlessness and muscle aches also new weird thing, I can sometimes 'feel' my ear drums going it's pretty strange. Also been coughing a bit more and to make things more worrying, good friends of ours called to say they are displaying symptoms and are self isolating. They live on our street and we hang out with them regularly 😬 so spent the whole time worrying that maybe we need to get checked too and maybe my coughing is something new 🤔 😬 this is all great for the anxiety.

That's the big news from my end. Let's see if we can even book a test.

Hi Dane

Sorry for worrying you about the jabs am sure will be fine I just wondered what others were thinking as I don't normally have them.

Have your friends been tested? Fingers crossed it is just a cold.

I had my ears popping this morning and know Gary has had a lot of ear issues too. I still have tinnitus so was hoping the popping would help but have still got it this evening!

Try not to worry as sure you will be fine and Friday was just one of those rubbish days we are all still having.

Take care and let us know how you are.

Lx

That's ok Lulu, not worried about the jab just good to know what to expect so you can make an informed decision, appt anyway sometime in October so have time.

So annoying all these little ailments like with the ears, you're grateful it's not the big stuff bothering you but it's enough to make you aware you're not back to normal yet.

Friends are struggling to book a test they might just go private.

I'm trying not to worry but of course all I do is think about it all the time!

Hi dane yes lulu is right I have had the ear troubles it is the left one now still giving me tension now and again when I get tight chest but it's easing up and I'm hoping going soon it is annoying but it will go I'm really glad the head tension has gone most of the shoulder and neck tension has as well so if anyone is still getting it it will go eventually Gary

Hi lulu yes your right six months next week what a roller-coaster ride that was can someone stop it now I want to get off I'm hoping the tight chest goes soon then I will start trying to get back to full fitness again with a few beers thrown in I'm doing everything that I can normally and not bothered by it now just taking zinc for the immune system now when I have to go back to work I will be on seven nights so if I get through that then I know I'm close to recovery Gary

Hey Lulu thanks for your advice, I'll have the rum on standby. I shouldn't have to be worried about the doctor not complying with my wishes for a sick note but they've been so useless I can't help but think it.

How is everyone doing today? I'm very chesty and coughing quite a lot. It seems to have got worse these last couple of weeks. Like I have a repeating chest cold with none of the gunk that one would normally expect.

Lulu I'm guessing it was 24 weeks last Friday or have I lost track?

One thing I'd like to suggest - and Lulu you made me think of it, with your suggestion about telling the doc about the amount of posts on here, is can we move to the last page (74) ? I think if anyone new comes here they don't know we are all here posting a few pages earlier so they don't get any support and if for instance a doctor or researcher came here and saw the final page it looks pretty inactive, and we will be invisible to them. Also, the page is lagging for me too so what do you think, can we move?

Just a suggestion. All the best everyone.

Stuart

Hi Stuart and everyone

Yes think it was Stuart and you are on the same timescale as me and Gary I believe. Can't believe we are all still here with symptoms although I have to say I am on the surface much better and pretty much leading a normal life but I know my chest and breathing is still not right. Had to wear a mask for few hours today and now chest is tight. Sorry to hear you have been chesty and coughing again Stuart - have you tried Lansoprazole - Ive lost track who has taken what - I stopped it last week and noticed a real difference had a sore throat again and was coughing more from the mucus in throat.

Sure, let's move pages it definitely makes sense. Shall we move tomorrow? Over to Gary to do the honours!! Hope everyone finds us.

Enjoy the rest of the day.

Lx

Me too Gary am contemplating going back to swimming in the next few weeks and build my fitness back up. It will be a good test to see how the seven nights at work go and from what you say sounds like you will be fine. Does the tight chest just come and go or does it last for a while? I think this is what the specialist was saying to me could indicate me having developed asthma but I am not sure I spose we will just have to see if it resolves over time - that is why he wants to see me at Christmas. Have to say the tight chest freaks me out a lot, probably more than anything else now.

If you post tomorrow can you move us on to the latest page?! We are lagging again 😂

Take care,

Lx

Hi Dane

I know it is pointless to say don't worry, I'd be exactly the same. Agree I think we all know we are not yet back to normal - you always get a little reminder in some shape or form!

Just been in a restaurant which was well organised with socially distanced tables and some idiot sitting there on the table nearest us coughing and sneezing and not covering up - just want to cry why are people SO stupid. Why would you go out at the moment if you have a cold but it seems so many people just don't care. Have come to the conclusion there are a lot of selfish people around.

Hope everything turns out well for your friends Dane and tests are negative then you can stop worrying.

Take care,

Lx

Lulu,

Has your consultant prescribed you a steroid inhaler?

Hi lulu I saw your last message now can't find it so moved us to page 74 Gary can everyone go to page 74 Gary

Hi Jim

No he hasn't he said he wants to wait another 3 months to see whether things resolve or not so have a follow up appointment early December. He said if anything changes or gets worse to get in touch with him.I really don't want to start on inhalers unless it is absolutely necessary so am still hoping things will improve with time.

Lx

Ok so we have moved to page 74!

Hi I'm having my flu jab on sat so will be able to let you know how it goes. I've been feeling like I have a cold coming and phelm again it comes and goes, it's all a worry.

I think it is def wise to have it Susan and thanks for letting us know how you feel after. Sorry you have the cold and phlegm symptoms again, it just never seems really to go away it always feels to me it is there lingering in the background waiting to raise its ugly head. I had cold symptoms start suddenly last night sneezed a few times, nose tingling and blocked, woke up this morning and it has gone but chest feels a bit tight today - I just give up trying to work it all out. Do wonder though if it is to do with the temperature change? If so, we will be in for another blip when it turns colder again! The temperature is all over the place at the moment so probably not helping.

Hope work is going ok and the symptoms lift again soon.

Lx

Hi lulu I know I sometimes think it's to do with the weather I feel more sensitive to everything now which I neveruse to. We all will get there it's a time thing also new virus so we're all learning as we go along I did read that the t cells keep fighting this virus abs will reconize it if we get again?

I really hope it does recognise it if we get it again!! There has to be some good to come out of this and don't think could go through this a second time!

No nor me I couldn't cope again with it fingers crossed we shoukd all be OK 😘😘