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Covid for 4 weeks & still bed ridden. Anyone else had prolonged severe illness without hospitalization

Posted , 209 users are following.

Res35
Res35

Hi,

I've had Covid19 for 4 weeks and if I had the energy I'd be tearing my hair out.

I've had 2 sets of prohylactic antibiotics to safeguard against bacterial infections, my temperature has been up and down but never higher than 38 the entire illness.

I've had severe neuropathy during the illness and some kind of night seizures accompanying the other more well publicised symptoms that mean my sleep is terrible also.

I went to hospital Day 14 after a week of seriously thinking I'm on death's door and my blood oxygen was good enough to be sent home for follow up at the Covid Hubs where they basically just take temperature, pulse and oxygen levels.

I was prescribed a 2nd course of antibiotics there as my temperature was still up and they are checking in on me every few days.

Meanwhile I am having one better day, then another terrible day, then a better day then a worse day..But 'better' is still bed ridden, just means I can breath well enough and not too dizzy to make myself my own cup of tea, have a shower and engage in some small talk with my family.

Everytime I have a good few hours I think, that must be me getting well now, but no, 4 weeks later and the last 24 hrs my breathlessness has been worse than it was for the previous 5 days..Am about ready to shoot myself.

Is there anyone else that's experienced being so ill with this virus outside of an ICU setting where it's carried on this long?

Even ICU patients are recovering in 3-6weeks .

Cannot understand why I'm not getting well yet.

I have no underlying health issues and I'm in my 30s.

I don't know if I still have Covid or if this is post viral inflammation and fatigue..There is no way of knowing as they are not testing community cases. Every doctor just says it's definitely Covid but I have no idea if I've passed the peak of the illness or if i should still be worried it could get worse.

Just feel it's going on forever.

Be great to know if there's any non hospital stories of people being sick, as in still unable to do a thing this length of time.

Thanks!

19 likes, 5383 replies

5383 Replies

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  • tara29825
    tara29825 Res35

    Edited

    evening everyone. I've been following this page since the beginning. I am unfortunately one of the long haul sufferers. I'm just wondering if any one has symptoms of pressure on the nose , popping in the ears and jaw pain at times?

    never suffered with the sinuses before this year.

    thanks

    • Res35
      Res35 tara29825

      Posted

      I got this a lot. Infact had to go osteo to fix my jaw it was so bad.

      The ear pain for me was connected to the jaw pain I think.

  • Lola1961
    Lola1961 Res35

    Edited

    You are not alone. I tested positive the beginning of July and since then have taken 2 more tests (positive results)...I have not been hospitalized but was given medication the first 2 weeks.Since then I have not been on any prescribed meds. I have experienced EXCRUCIATING nerve and joint pain. My chest and throat still have pain. The doctor kept in contact on a weekly basis but cannot offer any kind of relief. I am taking supplements and other immune builders to help myself. I feel left out and forgotten but my FAITH keeps me going. I have never been in this much pain, some days i can bearly walk. I am experiencing lighting effects shoot thru my eyes. I wish this on No ONE.

    • Res35
      Res35 Lola1961

      Posted

      Yeah, it's bloody awful.

      I really feel for you.

      My nerve pain left after 4 months😔. A very long 4 months!

      Now, 6 months later am back at the respiratory specialist.

      Hope it doesn't continue so long for you!

    • jim90098
      jim90098 Res35

      Edited

      Hi Res,

      I see you've gone or are going back to your respiratory consultant.

      Is it for further tests or retaking the same tests?

      I totally understand if you don't want to divulge but I've just had a CT, 7 day 24 hour ECG etc which have come back as normal and you've got me thinking.

    • Res35
      Res35 jim90098

      Posted

      Hi Jim,

      I went back because its now a whole 6 months since I got ill and I'm still having tight chest and cough and mucus. With winter coming soon just wanted some reassurance really.

      He said he wants to see me again in 6 weeks and if my symptoms are not gone by then he will do a CT and also run bloods on my immune system markers as I have a history of long respiratory illness and he wants to make sure this has just been "severe Covid " ( his words, which given i wasn't in ICU is interesting) and that it's not an underlying immune system issue as if it is then I'm going to need to shelter come winter.

      He had got a hold of my last NHS hospital xray which the nhs had marked as normal in May and he was quite baffled by this as he said it was clearly an abnormal xray with the pleural effusion still there in my left lung. Kind of worrying to think they marked it normal to ship me out of there eh? 😂 I guess it was a busy time...Still, it's as well i got better and not worse or I'd be pretty angry about that now!

      How are you doing anyway Jim?

    • jim90098
      jim90098 Res35

      Edited

      Hi Res,

      Still have the fatigue but I've improved quite a bit but nowhere capable of returning to work. Mucus in the nasal, throat and chest is still prevalent.

      But, I've now had four blood tests, two x-rays, two ECG's, sputum test, spirometer test, urine test and a CT scan all of which are normal.

      My consultant wouldn't give a time line for the mucus stopping as it's a new illness.

      I'd push for a CT scan asap, on finding out my lungs are normal the relief was immeasurable.

    • Res35
      Res35 jim90098

      Edited

      That's great about your tests.

      My consultant doesn't want to put me through another CT scan this year unnecessarily due to my age and radiation.

      He says at this point he can be pretty certain of predicting scar tissue and inflammation but that there is nothing that could be done about those two things so he would be putting me through radiation for no good medical reason. Wants to wait a bit and see if i continue to improve.

    • jim90098
      jim90098 Res35

      Edited

      Res,

      You will improve, as we all will. It's just going to take time unfortunately,

      We'll get there in the end.

  • ellen38128
    ellen38128 Res35

    Edited

    im a critical care RN for 38 years with a history of asthma 7/24 symptoms started with the room spinning next day i had diarrhea, chills, headache and fever i knew i had covid 4 days acter symptoms dtarted k weng snd got tested i was positive i started taking prednisone prophylactically i did havd s mild dry cough bug my breathing was ok

    2 weeks after thd initial symptoms i hot tested again as i still was not myself ... the second test was negative .. still i was dizzy

    this morning the diarrhea started again later thus afternoon , body aches , chills and fever of 101 8 what the hell??

  • susan48029
    susan48029 Res35

    Edited

    Hi all not sure if you can see this! I haven't been able to get onto group I hope everyone is doing well. I'm doing well back to my old self mostly now get the odd day where I feel tired or have mucas but overall I'm good. Please let me know if you can see this pls ❤️

    • jim90098
      jim90098 susan48029

      Posted

      Hi Sue,

      Terrific news. I'm so pleased for you.

      Everyone is on page 72.

    • Gazza10
      Gazza10 susan48029

      Edited

      Hi Susan so glad to hear you're doing well like jim said on page 72 Gary

    • Lulu2020
      Lulu2020 susan48029

      Edited

      Hi Susan

      Such good news!! Am so pleased for you. Keep us posted how you get on.

      Lx

    • susan48029
      susan48029 Lulu2020

      Edited

      Hi lulu, Gary, Jim, res and everyone how r u all doing now ❤️

    • Res35
      Res35 susan48029

      Edited

      Doing quite well Susan.

      They are running tests on my immune system to see if the duration of severe symptoms inky case is due to a deficiency, so that will be interesting...In my case thought this is backed up by a long history of not shaking off respiratory illness. Even common colds get me for several weeks at a time.

      Whilst my chest tightness and cough are still coming and going I'd like to say the mucous is improving .

      One thing that's still pretty bad though is the tiredness. I'm tired constantly still and its quite debilitating when I try to act like my old self and do a lot of a weekend.

      Glad to hear you are doing so much better!

    • susan48029
      susan48029 Res35

      Posted

      Hi res yes 8f your prone to chesty colds it is a problem I'm always prone to colds and coughs in winter months but normally get over without a infection. My gp has never suggested I get any checks or bloods done anymore so just getting on but am having a flu jab on sat so will let u all know how I feel after having it,Might ask about the phemonia jab as well .it is a worry going into the winter months and the rise in the number of cases bloody virus wish it would do one 😜😜

    • susan48029
      susan48029

      Posted

      Also my immune system is dodgy might ask for that test as we have phalsemia in our family which dosnt help as make us anemic

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