Covid for 4 weeks & still bed ridden. Anyone else had prolonged severe illness without hospitalization

Hi,

I am new here and want to help as much as I can. I hate that the medical community is not doing enough to help people. I personally feel that they are all waiting on the vaccines to hit the market, which will generate trillions of dollars of revenues worldwide.

I am waiting on the first lady to respond to this same question, which is, what vitamins are you taking for this virus, and at what dosage? I will then share with the community what has worked for our family. I am only here to help everyone for free, if possible.

I personally do not like posting in communities like this because I understand the many scammers who try to take advantage of people, which makes the moderators job much harder. I am here sincerely to help and share our experiences.

im afraid i am 6 months post onset of symptoms and still having a lot of problems so not the best person to ask for positive comment im afraid.

I really hope, like the majority of people, that you will have a mild and short illness.

Thankfully we here are not the majority, albeit still a significant minority.

Hi

Many of us got sick in March and still have symptoms. Hopefully yours will improve soon but should you have any shortness of breath or breathing problems take yourself off to A&E would be my best advice.I think many people recover in 2/3 weeks from the acute virus but symptoms can last much longer. Make sure you rest and take good care of yourself.

Lx

this is surely hard to deal with both physically and mentally

it leads to me having breakdowns too

I hope it gets better soon for all of us

Tzumi xx

Hi

I'm sorry to hear that

I'm just dealing with the smell and taste loss and the anxiety I get because of it

That also leads me to have acid reflux and it's really frustrating

I hope it gets better soon for all of us

Tzumi xx

Did you go on your push bike today?

No Jim will give that a go tomorrow its raining here today Gary

The weather was sh*te first thing here but has dried up now.

We're popping into tier three on Friday.

It's all starting over again.

Here we are on Page 76!

Hi Gary/Jim and everyone

Sorry to hear you have your sore throat back again Gary - I can join you on that one as I have too - SO annoying - took some Flarin this morning but still sore. I also have a lot of aches across back and shoulders - I find it hard to work out whether it is muscular or from being ill - I do Yoga every morning so never sure if it is that but don't think it is.

Have got the flu jab at 3.00 today - feel anxious about it as never had before and just don't want anything to make me feel any worse than I do already! Had quite a bit of chest pain especially on right side - I think all this stuff makes you anxious as you are never quite sure what is going on and most of the time just have to hope for the best!

Horrible day here, am trying to stay positive but probably like everyone it is quite a challenge - just keep telling myself things could be much worse!

Lx

Lulu,

I had no adverse reactions to the flu jab.

You'll be fine.

Hi lulu yes page 76 who would of thought it's strange these tensions won't go let me know how you feel after the flu jab like jim says you'll be fine I'm like you never needed it before now not sure I think they said I may get mine next month Gary

Thanks Jim, always been a big baby with medication etc. That is one good thing about this episode of my life will happily pop any pill now if I think it will help!

How you doing?

Lx

Still breathing Lulu. Thank you.

My hours have been increased this week and just an hours talking makes my throat sore causing a husky voice.

I read an article in the Daily Mail yesterday, which rocked me. I've had to reinforce my strategy of avoiding news.

We're popping into tier three come Friday.

It's all starting over yet again.

I can totally understand why.

Yesterday they closed the village school and petrol station, as they'd had outbreaks at both. It's finally hit our little oasis.

I agree I think talking makes throat sore - consultant told me it was my voice box which was inflamed so makes sense - just wonder how can still be inflamed 7 months later?! Good in a way though that you have increased hours a step nearer normality!

Yes I need to do same Jim, I read too many articles and go on Twitter and it can really affect how you feel. Back in April I had to boycott news completely and deleted all the Apps off my phone - definitely was the right thing to do.

Yes saw your region were going into Tier 3 definitely think the right move - I'd be happy if they locked the whole country down again but understand how businesses feel very differently. There is no answer, either protect people's health or businesses - very hard to do both. Think the Gov are in a no win situation.

I can no longer visit my mum, very sad as she doesn't understand why - feel like I have deserted her in her hour of need but nothing I can do.

Back from flu jab, told the pharmacist about long Covid - she asked what my immune system was like?!! I felt like saying if anything like rest of my body it's probably totally f***** - how the hell would I know what my immune system is doing?! She said jab may not be as effective if my immune system not functioning properly - oh well - whatever!!

Lx

I'm with you on that Lulu, it's time for full lock down, govt losing control it seems. Non teaching staff member at my children's primary school has tested positive and 1 student from my oldest daughter's class as well....so anxious!

Pleased for half term at the end of this week so they don't have to be in school 😳

Been feeling off last few days, same old stuff, tight chest, reflux, fatigue etc.

And headache today.

Weather not helped, feel like it's been dark outside all day.

I had flu jab and was fine, sounds like all of us have been ok after jab.

Let's hope tomorrow is a better, brighter day!

Sorry to hear that Dane, so disappointing when the symptoms come back - it sends you into despair as to whether it will ever end - we have to believe it will!

I bet you can't wait for school to break up must be such a worry, I personally think children do transmit the virus but generally don't get sick but also appreciate they need to be educated so have to go to school. It is all a balancing act.

Such a miserable day here too, it is going to be a long tough winter but apparently the sun is going to shine here tomorrow - just when I am working!!

Jim's neck of the woods is headline news tonight - hope it is not too tough for everyone living in that area - the numbers are very high so needs to be done.

Take care, hope you pick up again soon Dane. Hopefully half term will give you a chance to recharge (can't remember if school holidays are harder or easier, it's a long time ago for me!)

Lx

Hi Lulu and everyone,

I could never understand the thinking in having students travelling the length and breadth of the country to congregate in a close vicinity without having mass out breaks of the virus.

It's the same with schools and colleges. The vast majority of the young will be asymptomatic, however their patents and older relatives won't be and will suffer greatly.

Sheffield university had 1000 confirmed cases in the first couple of weeks. Think of the public transport use, cafes, bars, pubs and clubs. Sheer madness.

Thank God for lockdown.

The problem is you can't save lives and protect the economy. It's either one or the other.

One thing thought, you can't have a strong economy without a healthy work force.

Rant over.

Hi all found you, I'm just beginning to feel better after my heavy cold, did loose my smell and taste, no temp coughing a bit but work said no need to do test as it's a cold and nhs said cold as well, 🤧🤧🤒🤒I've never had a test don't think I'm destined to have one lol but work r bringing then in nove so will have one every other week.

Hope your all OK. Sorry Joanne about your father in law sending you big hugs ❤️

Morning Sue,

Glad you're on the mend.

I've just arrived home after seeing the ex ENT consultant.

A pleasant chap who examined my nose and throat. Nothing structurally wrong.

He explained the nasal and sinus lining is inflamed but said it's strange the symptoms come and go.

His advice is to steam with salt water but nasal rinse prior to using Dymista, which he says is the best nasal spray and the only treatment available for our on off symptoms eg nasal drip etc.

I asked about the fatigue to which he replied that it's an unknown quantity at the moment, so who knows. I liked his honesty.

It's a beautiful day in God's county. The sun is shinning through wind blown autumnal trees that have an amazing array of colours.

Hope everyone has a lovely day.

Jim.

Hi jim thanks for the info will try the spray. I has been a beautiful day walked on beach with my doggie sun was shinning and warm let's hope it last, are u in tier 3 lockdown its OK down here at mo

My immune must be crap as caught a heavy cold 🤧🤒😢😢

Sue,

Tier three from Saturday, which I'm my humble opinion is too little, too late.

The virus hit the village a couple of days ago. Both the school and petrol station have closed due to outbreaks..

You'll have read my posts about the sights I've seen when out and about.

On top of which Sheffield having an influx of 250,000 students every year it was bound to increase the cases. It's not rocket science.

They can have any tier they want for me.

When I go out for a walk I'm always the person who crosses the road to avoid walking passed folk. Everyone else round here carry on as if it's 2019.

Hi Susan

Glad you found us and are getting over the cold that is really good news! How are your Covid symptoms are they improved at all or is it hard to tell having had a cold? Be good to get tested every other week at least you will know what is going on.

Am pretty sure my immune system is rubbish too - I think stress doesn't help it and we've had plenty of that this year!

Glad you had a sunny beach walk - all that fresh air must really help.

Jim, it is not just you who crosses the road, I do exactly the same - totally paranoid but no one else round here seems at all bothered. All my friends going out to restaurants (with their family) etc. but then they don't know what we do!

Take care,

Lx

It is the Young people who spread it maybe we should lock them down in schools colleges etc til next year, let them get on with it lol we're only moderate here at mo.

Lulu,

I'm so glad to hear I'm not going stark raving mad crossing the road, diving down isles in a shop etc and you're the same.

The other day I went into the chemist and stood waiting to be served. There were two people being served but had to wait for their prescriptions filling. The lady serving asked what I was after and beckoned me to the counter. I dare not move near as the other customers just stood there. Eventually the penny dropped and they moved. No wonder it's increasing.

I think that until people have been personally touched by the tragedy of the virus they'll just crack on, as normal.

Absolutely agree Jim, after all the Gov have been banging on about mild flu for the last 7 months no-one round here cares and it is the same in our shops people look at me like I'm mad - the problem is for many it is mild but no-one knows who will be the lucky ones and who won't - it is like Russian roulette!

Glad your appointment was helpful and hope the nasal rinse works. I have a constant sore throat at moment but have to say think the mucus has improved in back of throat but who knows how long that will last for?! Have had quite a bit of congestion on chest this week - feel very weary with it all 😢.

Good news is flu jab seems ok, was hoping it might be a miracle cure but seems not!

Take care,

Lx

Good news about the flu jab.

Hows the fatigue?

I still feel very tired but it is not that all consuming fatigue which I had a few weeks ago - overall I do still feel making really slow progress - I don't seem to have that constant head cold feeling any more. It just seems that never get a whole day symptom free, if the sore throat goes then the mucus comes back, if the mucus and sore throat go, the shortness of breath comes back - it's just so frustrating.

Do you still feel you are making progress or hit a plateau?

Lx

Very hard to say whether I'm making progress to be honest. My pal says I have, which is a positive especially as he's someone that only sees me one a fortnight.

However, I'm not sure I am. In my eyes if there is an increment it is slight.

Id I could shake the fatigue I'd be ecstatic.

Agree, it is so hard to tell as differs from day to day for me but think the overall trajectory is in the right direction. It's good your friend can see the progress - we need positive people around us.

I am nowhere near back to energy levels I had but as I said think slowly improving - just wish I could sort my mucus, sore throat and chest out - its been particularly bad last few days lots of chest pain which makes me anxious. I think it is when the mucus builds up.

Hope everyone has a good weekend 😃

Lx

Morning lulu and everyone well just morning went out on bike yesterday only a couple of miles it's still not normal but like you say lulu improving my throat is OK might have been talking too much I've been coughing though I didn't really have a problem with that before my chest is easing daily I would say that the shoulder and neck are weird not pain but feels like I've done something when I know I haven't sounds like the same with yours lulu I don't think it's the yoga we need another full lock down I'm hoping none of my friends or family catch it Gary

Hi Gary,

Nice to hear from you pal.

I'm impressed you got out on your push bike. Even a couple of miles us something.

Yesterday, I managed to wash my car, which was the first time since March.

This will sound sad but I usually wash it every 4 or 5 days. Didn't do the full monty, as normal but it's clean on the outside.

Today I've a sore throat, hoarse voice and feel cold. Nothing really.

Hope everyone has a good weekend.

That's great Jim because even though you never done the full monty you cleaned it I'm trying to be normal work and live still pace just hoping more than anything the fatigue will go my job is easy at the moment we now can go in do our work and go home I'm off till next week anyway keep improving Jim next week finish your car off if you've got the energy suns out here I'm going to walk my kids dog after my daughter finishes work only about a mile I'm going to have a few beers later before we get locked up as well Gary

Good idea Gary.

My car will be back to it's usual cleanliness by Monday.

I've just done my walk. Only 0.8 of a mile but in 18 minutes. I don't have to breath through my mouth just my nose, so it's not bad at the moment.

I've work at 4 but I'm finished at 8, so I'll join you in a few G&T's.

Good on you Jim we have suffered a great deal and we are still but we have to try to get back to normal I'm hoping I will have the flu jab next month just in case no side effects for anyone so it won't worry me enjoy your evening Gary

Will do pal. You too.

There's three of us on here that have had the flu jab without incident. It's got to be worth having.

Blimey jim I haven't washed or cleaned inside my car for a year, what a minger I am, will have to bring up to you. I'm feeling alot better today bit fatigue after my heavy cold bit been out walking with dog and walked into town with grandson and daughter, going back to work tomoz. Hope everyone is OK this increase in virus is a worry for everyone.

Sue,

I'm pleased to here you're feeling better.

As you are, scrub that car! Only joking.

I've OCD when it comes to my toys.

Enjoy your evening.

hear. I need to proof read.

Morning Jim and everyone, glad to hear you're all feeling better and hopefully things are heading in the right direction. I've been taking the steroid drops for nearly 2 weeks but still feeling the congestion, so not sure it's working. I've got another 2 weeks and then it'll be the tablets the doctor said. Glad the flu jab's been ok , I'll ask my doctor about having it when I speak to her. Hope you all have a fab weekend !!

Hi Steph and everyone

Disappointing the steroid drops haven't worked yet Steph but maybe they'll kick in over next couple of weeks these things normally take a bit of time - I've had really bad congestion on chest and soreness and tightness since Thurs (same day that my sore throat stopped!!) - it really makes me feel nervous. I have to cough and that clears it a bit but comes back. Did a couple of long walks end of last week but think going to knock those on the head for a while and see if it improves. The University College Hospital London (UCHL) have a post covid clinic which was featured on the news - I've emailed my respiratory consultant to see if he can refer me - was going to ask the GP but decided that would be a waste of time. Just feel this has been going on too long and all well and good seeing ENT guy and respiratory guy but they only look at the symptoms they specialise in and not the whole/bigger picture and how the symptoms are linked.

How's everyone else doing? Anyone else still got chest issues and tightness? I actually felt quite unwell Friday but don't think was anything to do with flu jab think just coincidence as same symptoms as have been having since March.

Hope everyone had a good weekend - glad you got out on your bike Gary must've made you feel good, and Jim cleaned his car (not sure I've ever cleaned a car!) Good news you are feeling better Susan after the cold.

Take care,

Lx

Morning lulu and everyone sad to say that still round my shoulders neck and chest got a week off and it really doesn't bother me too much only thing that does is it easing or moving had a weird day yesterday got that horrible feeling come back really noisy stomach and a case of the two bob bits but after that was OK legs and hands have felt heavy for a couple of weeks now not stopping me from doing anything but it's there suns out today and it looks like I need a hair cut done it myself last time not risking scaring the life out of my daughter again though 😂 enjoy your day Gary ps remember when we used to score on a Monday can't wait till hit a ten

Morning Lulu and everyone, yes the sun is shining Gary lovely to see even if some of us are working. Just to say the congestion has felt better the last few days so don't know if the drops have helped ?? Ears, nose and throat feel better. Happy Monday everyone, hope you all have a good week.

That's great steph hope you carry on progressing certainly a nice day don't work too hard Gary

I can't believe my upper back pain is back. Came on yesterday evening while sitting at the table. It is very achy and is making me anxious because I haven't felt like this in months! Feel like I've gone 2 steps back 😭 Left a message with the GP, hopefully she'll call tomorrow. I'm about to go right back into work after furlough and though didn't feel perfect was OK. Today I can't do much without taking a break and wondering what on earth this means? It is so hard to accept that you can be fine one minute and not the next! After all these months! Think we've all done our fair share of symptoms now.

Sorry for the big moan...

Hope the rest of you are faring better.

Good to hear congestion has eased Steph. And good luck with the hair cut Gary.

Lulu, Jim, Sue hope you're OK.

I know dane it's not good I had a spell where I was getting the stabbing pain that has passed thought the sore throat had returned thankfully not probably talking too much I've just read an article from my phone on Google news I don't watch the normal news anyway the first woman to get the virus in this country was from Essex and she got it in January and has had to go back to work but is still getting symptoms similar to all of us I'm not sure what we can do now except get on with it I don't take any medication now only zinc for my immune system I really don't think anything works I'm beginning to sound down now when I'm not I will have the flu jab next month just been told one of the young lads from work is self isolating including me that's four from my department had it now Gary

Seems no end in sight. Also where I am there's been lots of community cases.

On a positive note, GP got back to me very quick (not the GP I wanted but still had little expectation for quick response). He doesn't think backache anything to be concerned about. Plus went on with the usual...it's so new no one really knows...can't help feeling annoyed when they say that!

Hi all glad I'm over my cold now without 2 many effects, just a bit puffy at times and nose, ear sinuses

I'm off now for 2 weeks so can relax, there's been 3 staff tested positive for covid in obe of our profound residential houses bit of a worry but I don't work with them, we get tested in couple weeks. Hope every one is no worse. I still give myself 9 1/2. Lol jim will get car clean think illl pay to get it done tho.

Evening everyone,

Sorry to hear that Dane, it is just so weird how the symptoms just come from nowhere - I'm the same definitely taken a big step back but not sure what to do - I feel really congested and keep getting chest tightness and then when trying to clear chest my throat gets sore - have to say hit a bit of an all time low Friday evening - lots of tears (very unlike me) but just so worn out with feeling rubbish and knowing that my lungs are not right - I feel mentally and physically exhausted with it all. I am sure I feel worse now than I did a couple of months ago - how can you still have all these symptoms nearly 8 months later? I have begun to think maybe am just stuck with it just can't see how it will improve after all this time. I remember Stuart saying that he had a major setback and understand where he was coming from now. I think about ringing GP but just feels like a waste of breath - as you say they just fob you off with this is a new virus and it takes time, anxiety etc. etc. but who do you turn to for help- I've really no idea.

Glad you are over the cold Susan that is really good news and also you now have time off and will be tested regularly.

Hope everyone else doing ok and also sorry for the moan!!

Lx

Sorry Lulu ☹ it's awful and physically and mentally draining as you say. I've been really down today. I think we all expected that by now, even if we had setbacks, they'd be small and we would be nearly back to our old selves.

In normal times, we would at least have support from family and friends, going out etc. which we really need. Now, it's almost winter, we can't socialise easily, there's all these restrictions and it doesn't help lift the spirits.

Let's hope things better.

Thanks Dane, you too hope tomorrow is a better day. I think the cold, damp weather not helping.

Lx

sending positive thoughts to everyone, we can get through these setbacks, it will end soon, we're nearly there, don't forget how far we've come 😃

Morning all I had a good day yesterday apart from the ringing in my ears most of the day its raining here looks like a horrible winter day hope your right Joanne I do know it's been one hell of a slog for us half term so going to see kids if they are out of bed I know what you mean about the doctors dane I just look at the letter flu like symptoms and laugh they use the anxiety one lulu because they don't know what to do I had that one the last time I went to the hospital long time ago now not even sure if they have progressed a lot since if people are still getting long covid now how will they be able to help Gary

Thanks for the positive vibes Jo definitely need those! I feel that if I could lie on a hot sunny beach and swim in the sea it might help - but not to be this year!Did think of going away but it is the airport/flight which would stop me.

Yep its a miserable day here Gary, have a nice time with your kids as you say if they are out of bed!

Slept in spare bedroom last night which is cooler and seems to have helped - don't think the central heating is helping the breathing!

Take care everyone,

Lx

Afternoon all,

I can't seem to be at all positive today. I don't know whether it's the wind and rain lashing at the windowpanes or the fact of still being ill after 200 plus days,

Did my usual stroll this morning after the rigmarole of steaming, nasal rinse etc. A mile in 17 minutes. I'm trying to keep any exertion to under 20 minutes.

One thing I do know is I'm totally f&@?ed off with constantly hearing the Government have ploughed £10 million into long covid.

That's a drop in the ocean in comparison to their annual expense claims.

I've made enquiries with regard to long covid hubs in my area, however third world Yorkshire seems to be lagging behind. My GP is unaware of such a phenomenon. Doesn't inspire hope in me.

Right I'm signing off before I explode in anger.

Evening Jim I fully understand your frustration its peanuts to them and the gp should know about the long covid hub I haven't asked mine mind you it would be difficult to sort out especially when it's just as hard to get any sense out of them I really don't know what to do next got Sarah the ent woman due to check on me again soon and she has already sent a letter to my gp which I still haven't heard anything from perhaps it's going to be a Christmas present Gary

Gary,

It's like you've said for awhile we're on our own. We've been let down by the NHS, Government etc.

You would like to think the NHS would be getting to grips with this by now, however my best pals sister got in touch on Sunday to tell me their Dad had passed away.

Apparently he went into hospital with a leg ulcer. Prior to sending him home they tested him for covid.

On Friday(a week later) they rang him to let him know he'd tested positive and to self isolate.

Saturday he called family to tell them he was positive and was struggling to breathe. Before the ambulance or family arrived he'd gone.

Absolutely shameful.

Feel the same Jim, all the palaver with the steaming, nasal rinses is very wearing plus feeling ill for months - it's hard to stay positive and agree the weather not helping.

10 million is a drop in the ocean and Gov are going to have to find a lot more funding than that going forward because there will be one hell of a lot of sick people all looking for treatment in the months ahead. I haven't heard back from respiratory consultant who I asked to refer me to post covid hub so looks like I am going to have to brace myself and phone GP but already know will not get any help - just the usual be patient it takes time, gargle, steam blah blah.

Hoping you feel more positive tomorrow. I think it is hard staying positive in the current climate anyway without having the added burden of being sick for so long. Don't be too hard on yourself - think we are entitled to feel really p**** off - we have had no medical care or help and basically the GPs haven't got a clue what to do with us.

Take care,

Lx

It's a long list of frustrations we have between us all.

It makes me really annoyed that there are GPs out there like Jim's that are just not with it. The virus has been around long enough, they should be going out of their way to keep up with latest treatments and gathering all the info they can.

We certainly seem to know more than them.

When I spoke to my GP yesterday he tried to tell me the backache was muscular and nothing to do with covid, I told him it is definitely connected to covid, even if it's muscular, as I suffered these exact symptoms for months, never had before covid and didn't do any exercise to bring it on again!

Struggled today with the backache and tight chest but feel a bit more positive in myself. I've been busy with some art projects and it's actually helping me to a better mood.

I know what you mean Jim it's just not right and the thing is most of the surgeries are quiet because of the covid so the doctors aren't exactly rushed off their feet just like dane said they just don't know what to do or they haven't got the answers not had them since the start five times I went to the hospital gp gave me optimise when I had blood on my pillow then I changed doctors and they gave me olive oil for the wax when I had migraines and earaches sorry the gp said not migraines but head tension that's why I feel no medication can treat covid unless you're Donald trump like we have been I suppose just got to get on with it maybe they can give us some dexamethasone or remdesivir which they say can treat covid good luck asking for that though Gary

Gary,

Funnily enough, I asked for steroids to be prescribed to me by my GP. For the next few minutes the subject was skirted round like Torvil and Dean.

However, I'm singled minded when the mood takes me.

Once I'd got back on point I was told they wouldn't do anything.

I said they had been prescribed as an anti inflammatory and I was still suffering with inflammation 7 months later. The reply was no.

Guess what. Monday I'll be asking again.

In my eyes they can't do me any more harm than the virus.

That's what I don't understand if they can help us why should we not be able to get them so far I have not been given anything that can help I feel if there is something that we can have that may help we should be given that choice whether or not to take it maybe we will have to try and get it ourselves Gary

Hi Jim, I've just read your post about steroids . I think the drops are helping my congestion. It was my GP that suggested them for a change she was the one concerned about my ongoing symptoms. Defo insist the drops are Betnesol. She said if they don't work she'll prescribe stronger tablets. I know like you that steroids are used for inflammation, which is probably causing our symptoms. They should be trying everyone they can to try get us better now !!

Hi dane, lulu, Jim, Gary, steph, res

Reading your comments same problems still as u all, fatigue, sinuses. Etc. Going to have a test at work next Tues never had one so should be fun, 3 workers in one house tested positive last week and on a couple more of our houses, I'll let you know my results.

Good luck Sue.

My fingers are crossed for you.

In 7 months I've had 6 tests. All negative.

Hi Susan & everyone

Yes fingers crossed it will be all clear - it does seem that it is rife everywhere at the moment though. My fatigue seems a bit better but last night the head cold feeling started and woke up this morning with the sore throat again!! Had it last week but not since about Thursday - seems to be a pattern either the chest/breathing issues or sore throat - I go round in circles!!

Hope everyone else ok - such miserable weather and news - got to keep ourselves positive but not quite sure how!

Lx

Thanks Jim I'll let u know, bit scared, the 3 workers who r off with covid r like us now at beginning very scary for them. Think Brighton and Hove going into tier 2 but I come under lewes and not many cases, my sister works at Brighton his and only 16 in covid ward at mo.

Hospital

Hi Steph,

The Dymista nasal spray I've been prescribed has a steroid in it. I've noticed an improvement too.The steroid inhaler has also reduced my mucus production.

Other than the fatigue my sore throat and hoarse voice are a pain.

I do think the weather effects us all lulu had grandkids stay last night and off to drussilas Park with them tomorrow its Halloween there and shriek week so should be fun keeps me going lol.

It seems to now never dud before March! Have a great time with your grandkids good to do some fun things takes mind off everything else going on!

Let us know your test result but am sure will be fine after the escapade we've had over the last 7 months!

Lx

So your doc relented Jim and prescribed? I might have a go at getting this if you feel it helps. I was diagnosed by ENT guy with allergic rhinitis (basically hayfever) and this is what it is for.

L x

Lulu,

I was given this four weeks ago but forgot it had steroids within. It's help with the old hooter but nothing for the throat.

The steroid I asked for was dexamethasone as they give you that in hospital for any form of inflammation.

I drink a gallon of oil if it would help.

Ah right Jim. The sore throat is horrible, I am taking Flarin to ease it decided I wasn't going to spend the day suffering - I had sore throat for about 3/4 days last week then it just disappeared and I became really chesty and breathless. Even if a symptom goes I know it my heart it will come back again and sure enough it does! Really don't know what the answer is other than keep hoping it will gradually fizzle out.

Lx

Lulu,

To be honest I don't think it's going to go or we'd have been over it by now. We're going to have to live with it. May be the fatigue will improve but who knows.

My positivity has dwindled to nothing. Sorry.

I know where you are coming from Jim but I have to keep believing will fully recover - some days that is much easier than others but have to keep hoping. Just read below so let's hold this thought!

"While experts don't yet have many answers for Covid-19 long haulers, Kuritzkes said such patients shouldn't "get discouraged." He said, "Based on what we know about coronaviruses generally, it is very likely that all of these individuals will completely recover"

Lx

Thank you for that. I'm at a very low ebb at the moment.

Morning Lulu,

I hope I find you well.

With regard to the quote you mention, where did you read it?

Morning Jim

If you google Covid Advisory Board then when on that website search for long covid.

Hope you are feeling better today. We will get better it is just going to take a long time with some bumps along the way!

Lx

Your my little ray of sunshine.

Thank you.

Thank you but not sure my partner would agree with you Jim!!

Every day I start off positive, some days end positive, some don't and I just put those days to bed but for me it is the starting positive with hope that makes a difference. Also taking Flarin again daily for throat helps - a nagging sore throat after nearly 8 months is enough to pull anyone down.

Enjoy your day, hope everyone else doing ok.

Lx

We're all doing well considering what we've had to cope with, we will all get there in the end it's just a time thing 😊😊😊

Hi everyone, just catching up with posts and I too am trying to remain positive and hoping we all get better. I just keep imagining that our bodies have been beaten black and blue internally by this virus so now we're healing !! That's all I can put it down to with the length of time it's taking to get better. The healing has been so gradual but I think it's going in the right direction. Hope you all enjoy your weekends .

Morning guys,

Been through the usual this morning but I'm tentative about going for a walk.

Up here it is like end of days!

Then wind is howling, rain lashing the windowpanes but it's quite warm. Bizarre.

Hope everyone is well,

Same here, Jim, vile weather, hoping it'll brighten up later

I agree, Steph, our poor bodies! My nose has totally given up, I think it's fed up with all the steaming, spraying, rinsing. I had to go back to the olbas oil last night so I could sleep. I remember back to those days, sitting up in bed sniffing olbas oil. At least things are getting better 😃

There are certain scents, aroma's and smells that transport me straight back to April and May, which I can't endorse whatsoever.

I feel for you Sue.

Have you tried Dymista nasal spray?

It's definitely help me with the old hooter.

Good afternoon everyone weather here is like my stomach awful besides a little tight chest and little stabbing pains in my back I'm feeling OK looks like locking everyone up soon or is it down maybe one day they will get something right wouldn't bank on it though back to work in the morning easy enough now we get to do our work and go home seems like everyone is suffering from the nasal area etc mines dry all the time not sure if I'm still getting inflammation ears still get tension now and again try and enjoy the rest of your weekend everyone stay in might be the answer Gary

You too pal.

Take it steady at work.

Full lock down barring educational facilities.

So the young don't suffer and are usually asymptomatic. So let them all mix, then go home and pass the virus to older members of their family.

Umm, I wonder what's wrong with that scenario.

Agree with you there.

Obviously need to close unis and high schools at the very least!

My daughter's best friend is now self isolating as her brother has it. This friend is with my daughter a lot and in our school rota 😬

Plus, half term has not helped. We took our children to a trampoline Park, you know they tell you its reduced capacity and social distanced...except its not!

They should have started the lock down weeks ago...

On a positive, my back ache has eased. Still a bit tight in the chest and some headache but OK (though anxious about what's going on 😬)

Oh Dane, I'm sure you'll all be okay.

After you mentioned the trampoline episode, I recalled Legoland expose on the news. It was as if the past 9 months had never occurred.

My only worry is the Government didn't get a grip of test and trace and enforcement of isolation.

Everything I've leaves me to believe they've left it in the vain hope if a vaccine.

They'll be waiting a long time for one that's the panacea to all this.

Morning dane do you get the stabbing pain in your back I do now and again also I used to get the head tension my gp called it as well as the ear tension I have found that since my head and ears tension has eased so has my tight chest it is taking a long time but it is easing same as the fatigue Gary

Hey Gary,

Posted back hours ago but I see it hasn't appeared for some reason...

Yes I do get the stabbing pain but sometimes it's constant and gets worse with movement.

I wonder if my headaches are also tension, they are usually in the left side of my head, never had them pre covid.

Its like Lulu said, the symptoms come and go, one day it can be headache, next day it can be backache and breathlessness and some days I can feel OK.

Hope you're having a good day Gary.

Didn't hear about legoland and but can only imagine...there was also a problem at Thorpe Park recently. Some people seem to be living on another planet 🙄

Yes I think I'm getting basically the same I have had the tension headaches and earaches for ages they are easing the same with the back stabbing I'm feeling fine with it I'm getting a really loud stomach with it also now and again it just seems like it doesn't want to do one enjoy the rest of your weekend gary

Hi Gary & everyone

Yep am glad we have gone into lockdown it needed to happen but obviously feel very sorry for people whose businesses are going to suffer and any hardship people will feel.Agree about the schools Dane, it is such a tough one because the front line workers need the schools open and children need to go to school but it does make everyone else around them vulnerable. They keep saying children are not vulnerable but that doesn't mean they don't catch it and spread it.

Glad your back has eased Dane and you sound like you are doing ok Gary. I feel ok, have got an underlying sore throat and roof of mouth but am coughing less and chest feels a bit clearer but still notice if I do a hard walk my lungs are nowhere near right - if I exert myself it seems like my lungs produce mucus presumably to protect them.

Anyway am feeling better than I was so am ever hopeful this is the tail end. Annoyingly both my hospital appointments, ENT and respiratory were beginning of Dec so probably be back to telephone consultations.

Enjoy rest of day and let's hope it will be a good week for everyone.

Lx

Hi Gary,

Funnily enough you mentioning your stomach.

During the third and fourth weeks I had runs, noise and a burning sensation.

I asked for antacid tablets and my GP prescribed Lanzrapole. Originally 30mg then she reduced it to 15mgs.

I tried to stop taking the reduced level to zero but after a couple of days the acid reflux really started to grate on me. I did read coming off the medication you would see an increase in symptoms prior to it settling.

I've had to start taking them a couple of days ago, which immediately sorted it.

Hi Lulu,

Glad to hear you are okay.

I've received my appointment to see the consultant whom I saw privately but now under the NHS. The 19th of November.

It was supposed to be a long appointment to do various spirometry and lung function tests.

Unfortunately, it's now a telephone call, which like you've mooted will be down to the resurgence of covid.

Hooe everyone has a good week.

Hi lulu yes I'm doing OK thanks but still like everyone can't shake off all the symptoms as I'm typing this my back is stabbing me but I've sort of got immune to it and just getting on with it hoping like everyone else it's just going to get better and do one I thought my sore throat was back but just over talking I think it's OK and I really have noticed the tight chest has eased still there but easing Gary

Looks like I will have to try something to sort out the reflux Jim a few pints of lager might suffice 😂 will try and get on with it Gary

That's annoying Jim, just when after all this time we are able to see consultants in person - it has been so hard to get any proper medical care - I do sympathise with people suffering conditions other than Covid. which need treatment.

Interesting you mention the Lansoprazole Jim - I keep stopping and starting it which I think it is ok to do (take it when you need to) but it does seem to help with my sore throat which is from silent reflux apparently. Did you have reflux problems before? It just seems strange so many people treated for reflux after Covid but I do remember doc saying something about Covid making changes to stomach lining so it seems reflux is a lingering symptom of Covid. I had no symptoms before this.

Lx

I'm on the red pal.

I don't think it helps until I hit the second bottle.

No Lulu.

Before all this crap I took BP tablets and statins due to hereditary heart disease that ran through my fathers side of the family. His father died in his early 50's of a heart attack. My father had three in his 50's ending up with a triple bypass and my brother had one at 42.

I've never had a problem touch wood.

No worries there Jim just have a headache in the morning Gary

That I could live with, if I didn't have to put up with the rest.

That would be nice if only it was that easy Gary

I agree with u Jim its crazy not locking down uni, college and schools, I pick my granddaughter up sometimes and all the parents are standing there talking no social distancing, no masks it will still spread.

I'm on lansoprazole as well I think we all had digestive problems, and nasal.

It frightens the life out of me Sue the way people are so lackadaisical.

On my walk today I caught up with a couple of ladies walking a dog. As I neared them I crossed the road and as we drew level I could see a chap walking his dog on their side of the road. I watched and in total disbelief saw the three all stop and start chatting, all petting the dogs. One of the three had a mask on.

I know we're in a remote village but surely the penny must have dropped when the local school and petrol station/village store closed due to outbreaks.

I'm embarrassed by peoples stupidity or am I so risk adverse I've stopped living my life? Who knows.

Do you take it every day still? My throat/mouth is bad again tonight, didn't take it this morning as trying to cut it out but everything feels inflamed - just taken Flarin but maybe I need to carry on with the Lansoprazole - am never sure if it makes much difference.

Lx

Hi lulu yes I do as I take a tablet at mo which can upset your stomach, I do feel better on it tho I'm sure alot of our breathing issues were from the gut later on and the mucas in our throut and cough.

Hi jim your not paranoid we've been through the mill with covid I've never felt so ill physically and mentally in my life, so we will be more vigilant. I'm trying not to be ott but still being aware and keeping my distance, mind u yesterday I was tired and forgot to wear a mask in the newsagents had to put my coat up over my mouth.

Bless you.

I always felt bulletproof until this came along.

Over the years I've had what dome would say were/are dangerous jobs but I never batted an eye. I don't know if I'll ever regain that feeling/presence but I'd settle for shrugging off the fatigue.

Take care and I hope everyone has a good week.

Afternoon all I've got some good news at last every day now my tight chest is getting better still a little tight in the morning but Im finding everyday it is easing and same thing with the fatigue and tension I have still got ear tension and the occasional headache but nowhere near a few weeks ago I hope everyone else is getting better Gary

Brilliant news Gary.

That's great news Gary, sounds like you're well on the way!

I'm thinking about doing the same as you and giving up all the supplements apart from my multivit and omezaprazole, which I'm trying to cutting down on. I've stopped a few and my nose seems clearer, but I have added a new one too. So confusing, I'm sure they're all reacting with each other, maybe I'd be better off without them.

To our continued recovery 😃

Hi Joanne yes I feel like when the tight chest goes I'm pretty sure that the tension will as well that's what I am hoping for yes I'm pretty convinced that nothing worked against covid and it is just a time thing for all of us now just taking zinc now Gary

Yes I know I am Jim it's just time taking so long but it's all bearable hope your improving every day now Gary

So annoying, WHY do they moderate the posts?? Normally only if you put a link or mention a product or swear (!) but I did none of that!

Anyway, Amazing news Gary really pleased for you. Am feeling better too, back on the Lansoprazole morning and night think it has helped as think the mucus might have been from nose/throat going onto chest. Nose also seems clearer Jo. Still a way to go but let's really hope there are no more setbacks.

Keep us posted Gary and hope Jim the fatigue is easing and you are doing ok.

Lx

Hi Gary that is good news glad your starting to improve alot more 👋👋👋

Hi lulu that's good your feeling better as well, I'm OK at mo just the fatigue think it's because I don't relax alot alwY doing something. Hope your all well ❤️

Ah pleased you are ok Susan that is really good news - I'm same not good at taking it easy but sounds like we are coping and things will hopefully continue to improve on the fatigue front. We must look after ourselves though as far as possible!! I am pleased we are going into lock down makes me feel a bit safer as the rising figures were making me feel anxious when I was out and about - I felt ok when figures were low but not the last few weeks. Hopefully if everyone follows guidelines it will help get things back under control.

Have you had a test yet at work?

Take care,

Lx

Evening lulu and Susan yes I know we are going to get better soon and we deserve to it's been such a long time since we started to chat on here and obviously a big thank you to res for starting the group it may be still a bit longer but I think we are going to see positive progress from us all soon Gary

I really hope so Gary, it has been such a tough battle but we just need to press on and get through the winter in one piece!

Agree, the support here has been amazing and be great to get to the point where all of us feel well again.

Lx

Hi lulu,

I have my test tomorrow will let u know results when I get back, I'm sure it will be negative 😁😁

Ah I'm sure it will be too! Yes of course let us know! Seems if we follow Liverpool we'll all have to get used to being tested regularly.

Lx

Evening young lady absolutely agree with you let's all push on now another month lock down but hopefully all of us will be coming out the other side fit as a fiddle Gary

Fingers crossed Gary!

Hi lulu all my test was negative phew😊😊 hope your all OK. ❤️

Amazing!! I know you thought it would be but still a relief and good to know no traceable virus lingering around after all this time!

Enjoy your day and have a great weekend.

Lx

Great news! That must be such a relief for you 😃

Brilliant. I'm pleased for you.

Morning just everyone great news for you Susan just seen some more great news as well the scientists in New York from the rockafella University have now said that those that recover from the coronavirus will have a faster stronger immune response if infected again obviously we hope that won't happen but good news anyway my week of days over busier than normal week am resting today even though most symptoms have gone still tight chest and very heavy legs today really hoping everyone is improving and feeling better Gary

Hi Gary all thanks for your comments, will be hVing test done once a month now even our learning disability clients had it done and we were all negative. That's sounds promising Gary let hope we get the vaccine soon to lesson syptoms when we have it in future, I def will have it. Have a great weekend all of you.

Hi Jim and everyone

How are you doing? I just read this article below in relation to recovering from respiratory tract infections and thought it was interesting about the mucus clearance which I know Jim, me and a few of us have really struggled with and the fact it mentions it is such a slow progress - think we could have told them that but good to see that confirmed. Article went on to take it takes longer to clear with age.

Glad you have survived the week Gary and can get some rest this weekend and definitely good news about re-infection but let's all hope that doesn't happen to any of us!

Hope everyone doing well.

Enjoy weekend.

Lx

"Why so long to recover? First, respiratory infections cause your body to produce a lot of mucus as a line of defense against the problematic germs — and your lungs don't do a very effective job getting all that stuff out after the infection.

"For recovery, mucus clearance from the respiratory tract and deep inside the lung is important, otherwise it will impair gas exchange," says Harihan Regunath, M.D., a Pulmonary Disease Specialist with University of Missouri Health Care. "Basically you have to cough it up and spit it up or else it has to dissolve by the white blood cells engulfing it and digesting it and clearing it. It’s a very slow process."

Evening Susan I'm glad to hear that they are testing a lot more and you and your learning disabilities clients are all negative not so sure about the vaccine though I feel that may be a long way off and I personally would wait until I was certain that it worked before I had one will have the flu jab this month only because no side effects from everyone on here otherwise wouldn't have had it don't sound very trusting do I wary now I suppose Gary

Morning lulu and everyone must have just missed you yesterday yes have to agree we know it's a slow process and I have got to the stage now where I think I can manage it but know I must not over do it because I had to rest up all day yesterday tension and heavy legs and tight chest told me to just been to do a little shop but will rest again today hopefully everyone is OK enjoy the rest of your weekend gary

Do you feel that you are still making progress overall though Gary? I feel pretty good today but no idea if it will last! Am always hopeful though!!

Enjoy rest of day.

Lx

Hi lulu same as you really I know that I am feeling much better than say a couple of months ago but not over the line so to speak because I know that the symptoms are still hanging about this week I have been a lot busier than usual really felt tired yesterday but today I have relaxed but I seem to feel the symptoms when I do little stabbing pain in the back heavy hands and legs and tension come and goes but bearable if that makes sense Gary

Hi Lulu and everyone,

Thank you for the information, it's appreciated.

My problem now is the fatigue, which is stopping me from doing anything I used to do pre-covid.

I haven't the energy to ride my motorbikes or go to the gym.

Work have been good so far. I'm supposedly doing four hours per shift but they're not really giving me anywhere near enough to fill 50% of it. God knows what will happen when they want me back in. I'll cross that bridge when I come to it.

Fingers crossed the fatigue does one as Gary would say. It's been a very long year so far.

Hope everyone's improving

Jim.

The fatigue will slowly improve Jim it is so gradual its hard to notice. Is the mucus and chest/breathing better now?

Try not to worry about work just take a day at time and its good they've been understanding. You will get energy back in time.

Lx

It's good news Gary and same for me overall much better than couple of months back so no reason we won't continue to improve. I ache a lot in back and shoulders I consciously have to tell myself to relax and can feel a difference when I do. I even tell myself to relax my face! Think this has caused us more stress in our bodies than we realise.

Have a good week.

Lx

I've only got four nights this week I've been lucky enough to work out a schedule lulu with my annual leave I had a few days to use and I still have fatigue but I rest up when I can at work with trying to improve each week if I'm working I don't exercise only walk with my daughter home from work and take the dog out I know what Jim means about the fatigue like you say it will get easier with time just got to manage it Gary

Thanks Lulu I need reminding every now and again.

I've noticed a reduction in mucus, which is now really coming from the nasal area. Still doing the steaming for 15 minutes, nasal rinse then steroid inhaler and spray. Definitely consider the inhaler and nasal spray have helped.

My PF is 600 and above on rising first thing in the morning. The top reading is 660 late afternoon.

Oh I do have a constant sore throat and hoarse voice.

Breathing wise I'm sometimes sat watching tv and my breathing goes funny. As if I've forgotten to breath if that makes sense.

How is your mucus etc?

Sounds pretty much same as me Jim, mucus has reduced and think coming from nose/back of throat more now. It seems if I overdo it, like a really long hilly walk, the next day I have more mucus it must be to protect the throat and lungs. I read that when you are walking and breathing heavily you tend to breathe through mouth especially if nose blocked up and this causes the throat to become sore so I am trying not to get too out of breath when walking. Am still using the Neilmed it really helps, I looked at the inhaler but it is prescription only so will ask ENT guy when I see/speak to him in early Dec if feel I need it. The Lansoprazole seems to be helping with throat so I take it regularly now, think I stopped it too soon last time.

I do know what you mean and I sometimes take random deep breaths or a big yawn just to get breathing back on track.

Overall sounds like you are doing well, stay positive we will heal and get over this, it's just taking a long time!

Lx

You are a little star young lady.

Thank you for the positivity.

You've done a great job of pacing and listening to your body - think we are all beginning to recognise the signs of when we've overdone it and resting when we need it.

Glad it is not too bad a week ahead for you Gary and sounds like a good idea to use the holiday to make the night shifts a bit easier for you.

Lx

We've all done good lulu it's been such a struggle for all of us on here and still is but got to believe sooner or later we will succeed I feel really sorry now for the one's that will still get long covid because there will still not be a lot of help for them it's a vicious circle they do know more about it but how many more people have got that letter flu like symptoms will they still send people home who can breathe I think so will they be lucky enough to find help god I hope so Gary

I know I think the same Gary I often think about all the people who have recently got sick and are fighting for their lives in hospital and also the ones like us who are just beginning this nightmare and will be sick for months on end and yes they do know more about it but as we all know the GPs are generally pretty useless and nowhere to be seen at the moment.I genuinely think there is no real treatment it is just time. I think most people will head for the Facebook forum as it has been well publicised but think the little team we have here are the best support you can have.

Take care,

Lx

Totally agree with that lulu you too young lady x

Hi everyone, how's everyone feeling ? I'm feeling ok but still feeling the congestion and sometimes tiredness. I'll be contacting my GP nxt week to see if there's anything else I can try/take for the congestion. Hope everyone's bearing up in the lockdown.

Evening steph I'm feeling a lot better but can't shake off the fatigue getting stabbing pains in back a lot of tension has eased though so that's good still tight chest but easing as well not bothered about medication no more can't remember if I still have a gp Gary

Hi Steph and everyone!

Glad you are feeling ok. I am same really still have congestion particularly in my right lung and pain on right side and achy back and shoulders. I have probably overdone it, yet again(!!), I worked it out and have walked 23 miles so far this week - mad I know! but I met different friends and ended up doing long hikes and needless to say am knackered now but overall I think the fatigue has improved a lot over last few weeks and feel better generally in myself. I am just so bored with lockdown and hate being stuck inside.

Reckon my GP is in hiding with yours Gary, they are going to have a nasty shock when they have to start the vaccination programme and actually do something.

Hope everyone else doing well.

Lx

Morning lulu and everyone just finished my four nights off for a week now got really tired Monday night but improved the rest of the week I feel like I'm going to get over the line soon but last night I had to go up a steep stair climb and got to the top was out of breath badly and top of my head was telling me your not there yet sunshine so don't push it feeling okay this morning don't know if anyone else has it but I get like ringing noise in my head last couple of weeks comes and goes chest is easing every day now because not hearing from lots of you hopefully your all improving Gary

Hi Gary all sorry been my busy working week, I'm like Gary I'm OK but every now and then I feel puffy when rushing around also the fatigue at time and ringing in ears and still get the mucas etc! Just keeping at it we're get there in the end. Glad the vaccine is going to be soon, we've gone higher risk with our clients at work so starting weekly testing from next week. Hope everyone is well.

Hi Susan good to see your busy and getting through OK how long have you had the ringing in the ears is a strange one I'm slowly getting somewhere how does everyone feel about the vaccine will it effect us or will it just be like the flu jab time will tell I suppose but it would be interesting Gary

Hi Gary and everyone

Glad you finished work and have some time off. I have had the ringing in ears since March and sometimes it is worse than others - ENT guy told me it is worse with stress but personally think it is part of the illness as had it for so long. Felt a bit ropey last couple of days, blocked nose, chesty, pain in shoulders and back but my own fault as I overdid it with the walking and had a really busy/stressful day at work. Annoying because every time you think you are nearly there you overdo it and have a set back and realise still far from right. It is just never ending.

Good to be having the weekly tests Susan and sounds like you are doing well although the same as the rest of us with some symptoms still.

Reckon it is going to be a good while for majority of us to get the vaccine, be surprised if before next autumn, and then it is two shots so the logistics are not going to be easy. Just hope they know what they are doing can't say I am filled with confidence but good there is light at the end of the tunnel!

Enjoy the weekend everyone 🥂🍾🍺

Lx

Hi lulu I agree with you I think the ringing in the ears is something to do with the virus I don't get stressed so think ent is wrong I missed my phone call from mine said she would ring me during the week work has been OK good to have a rest think you have it spot on with the fatigue mine eased last two days did feel the breathlessness when I walked up all them steps bit of a wake up call would like to think it's time it done one and let us get back to some sort of normality I can't say I'm excited about the vaccine either lulu have they got anything right yet no have a good weekend gary

Hi Lulu, Gary and everyone, yes I've got the ears ringing and popping on and off and also the internal shakes which wore off a bit now they're back !! I'd describe mine as congestion normally after a cold or flu but we know it's this little "sugar" Gary I think that was what you called it earlier on in our illness. I remember someone asking what it meant lol . Hoping you all have a fab weekend albeit in Lock down.

Hi all, I've had ringing in ears since March, think I'll be offered vaccine as a carer I hope it's soon. I keep busy as keeps mind of it all best way it's all a worry.

Hi steph yes I did call it little sugar early on called it a lot worse since then though lol 😂 I've only noticed the ringing a couple of weeks ago knew it was something to do with the little sugar I've had about four good days only little tight chest and ringing so hopefully by the time they let us loose we may be nearly there Gary

Hi Susan would be great to hear how it goes when you get the vaccine hopefully soon feel we will probably be nearly normal by then with a bit of luck Gary

I will would they give it to us as we have had it?

That is a good question Susan I don't know how that works maybe if it is like the flu jab I don't see why not if it reacts with someone who has had it I won't be having it Gary

Afternoon,

Just had a good run of days where the fatigue was manageable but I feel totally drained this afternoon.

Still have the sore throat and hoarseness of voice but I can put up with that.

Hope everyone's well.

Jim.

Hi Lulu,

I you think it's self inflicted the fatigue because of all you've done and miles walked and I would usually agree.

However, I've had a spell that's been okay but this afternoon the fatigue has kicked in for no apparent reason. I've done nothing that I've not been doing for may be two weeks. Bizarre.

Hope your well.

Hi Jim at least you have had a few good days like lulu said the fatigue will get better mine has but still getting symptoms ringing in the ears and head now and when I push it headaches and earaches hopefully all will get better with time sooner the better must say don't miss the sore throat Gary

Hi Jim and everyone

Was wondering how you were getting on Jim. Really good news you have had some better days on the fatigue front which does mean you are making progress overall. Strange how it just comes back and hits you though when you feel you are progressing well and no obvious reason - maybe it is just a cumulative thing and I also think this really damp weather is not helping us. Think may be better for us if it was cold and crisp. I think once the fatigue starts improving you will carry on, even with the set backs, I can see a big difference over last month or so.

I definitely walked too far last week and didn't have any rest days so going to try and take it easier this week but did 5 miles today and feeling tight in chest/back. How is your mucus these days? Are you still coughing? I find if I don't do much exercise I don't cough other than first thing in the morning but if I do exercise it seems to loosen the mucus and I cough quite a bit. Not sure if this is mucus that needs to come up or whether I am just producing more by doing the exercise. I have a respiratory appointment on 9th December (unbelievable 3 months since I saw him) and will have another long list of things to ask - was hoping when I booked appointment back in September I would be fully recovered but sadly it seems not.

Take care,

Lx

You're a good man Gary.

Thank you for the positivity.

Hi Lulu,

Regarding mucus, I don't really get much anymore except a bit in the back of my throat. I only had a cough at the beginning to be honest , so it's never been a problem.

If I could shake the bloody fatigue I could live with the rest, if I had to if you know what I mean.

Thank you for being there and you're positivity. It really helps.

Lovely to hear from you Jim, like Lulu mentioned I was wondering how you were getting on. Like you I'm much better but still not 100%, I've forgotten how long it's been now. I'm speaking to the doctor tomorrow so will let you all know what they say if I think it's useful. Feeling positive about the vaccines , never want this again !!

Hi Steph,

Glad you're doing so well.

From everything I've read regarding the three very promising vaccines none will cause any problems to us even if we have suppressed immune.

I just wish they'd attempt to help us.

Hi Jim I take it the mucus has nearly gone that must be a weight off your mind I never really had a lot of it or a cough give it a few weeks and hopefully the fatigue will be better I've just been out on the bike a few miles it seems OK except for the ear tension and ringing other wise all OK Gary

Hi Gary,

Glad you're back out on the bike! Very inspiring.

Woke up feeling a bit better this morning than I did yesterday afternoon.

Yes, the residual mucus is in the back of my throat and married to a sore throat and hoarse voice.

Fingers crossed the fatigue goes soon. I know it's improved but it's hard to tell.

Take care pal.

Jim.

Hi all

Glad everyone's making improvements even though it is so sloooowwww.

I've been trying to pace these last few weeks since bereavement, and tiredness seems a bit less, and nose may be getting clearer ( I've got the ringing ears too, almost forget about it unless it gets loud, I've had it so long.

I've had a bit of a setback though, these last few days, since I tried to go to funeral last week. I had HR spikes and tingling so I wasn't able to go. Really disappointed as I thought that was behind me. I've felt rough since, but gradually improving hopefully.

Sorry for moan, but at nearly 8 months, I hoped I'd be feeling more able to cope with stressful situations. The strange thing was, I thought I was feeling quite calm at the time.

All the best everyone, hope those improvements continue

Hi Jo,

I am so sorry to hear you missed the funeral because of this wretched virus.

Stress causes symptoms for me as well, which is really disheartening as I've a stressful job. I can't see how I will manage going back to my normal job especially with the fatigue.

Moan all you want Jo. If we can't after 8 months when can you!

I've had a good spell but started with a slump on Sunday. Today's not good either.

I hope you feel well soon.

Jim.

Thanks Jim, hope you're feeling better soon too

Jo

Hi Joanne and Jim I have got some good news haven't had the tight chest first thing in the morning for about three days now it's still about but I have had ringing in the ears and head aches like everyone am improving but very slowly hopefully will get a phone call from Sarah the ent woman missed it last week said she would be calling back will ask her if others she talks to are recovering etc sorry you missed your funeral Joanne can't wait to see the back of 2020 and hopefully we all can push on with our lives Gary

Evening Gary,

Good news your end pal I'm pleased for you.

Please update us all when you've spoken to your ENT lady if she's got good news on recovery etc.

Wholeheartedly agree with your sentiments on 2020. It's definitely one to forget.

Great news Gary, you're on the way to that finishing line 😃

Yes good riddance to 2020, hoping for a better 2021

Hi all,

Thought I'd check in see how everyone is doing. Sounds like it's still a bit up and down for some of us.

I've been busy as back at work and have opened a new business which is exciting.

Did the unforgivable and missed an nhs echo appointment because I had written it down on the wrong day! was beside myself after waiting ages for it. Thought they'd take me off the waiting list but I called up and they were quite chilled. Offered me another appt in a few weeks time...was so relieved. Have been having palpitations so would like to know what is going on.

Been OK otherwise, the odd muscle aches and fatigue still haunting me but I'm pushing on.

Hope you all continue improving!

Hi dane was wondering how you was getting on think fatigue has effected most of us mine was bad but is easing still getting tension ears and head got the ringing last couple of weeks but the tight chest is easing not had it last three mornings I'm still forgetting things now and again probably should write them down as well glad they gave you another appointment Gary

Afternoon Jim and everyone just got off the phone with the Sarah the lady from the ent I asked her how she was feeling and how she was coping she laughed a bit told her was feeling a lot better except still getting symptoms went straight to the point and asked if she had any one who was getting there and she said yes there were but very slowly she told me that if there was anything that I was unsure of go to the doctor like a new symptoms told her I have only had the ringing in the ears for a couple of weeks tinnitus she said that lot of others are experiencing it as well I said I wasn't sure what would be coming next and that I was just getting on with it best I could she then said if I experienced something I wasn't sure about to ring her which is good because I don't think I will bother with the gp I told her about the stairs and the breathlessness others are the same she will ring again before Christmas hopefully be nearly there by then Gary

Hi Gary,

Sorry for the late reply my pal.

Thank you so much for the news from Sarah. The news that people are improving however slowly is a boost.

Yet again you're a positive force among our little cohort.

Thanks pal.

Hi Jim no problem at time got some spare at the moment yes so we will get there just some before others I suppose I'm hoping like all of us soon would be nice hope everyone is coping with your symptoms whatever they may be right now Gary

Hi Gary and everyone

Thanks for this - it is reassuring and interesting about the tinnitus it is obviously another side effect my ENT guy tried to pass it off as stress but I know it is not as have had it from the start.

Sorry to hear you had a set back Jo, it must have been so sad and stressful - I definitely feel any stress makes the symptoms worse it is as if body just can't cope with the unexpected. Hope things have settled down now.

Glad you are doing ok Dane and congrats on the new business must be good to have something positive to focus on.

I am not too bad but still not right!! Will I ever be?!!

Take care everyone and enjoy weekend!

Lx

Gary,

Where did you find Sarah? Feel like I might need a Sarah in my life 😂

Lx

Hi lulu I had a feeling that the tinnitus was the virus but wasn't sure I'm back to work tonight and Sunday day then a week of days so it won't be a problem for me she did mention because it was still new to a lot of doctors they are still learning which surprises me because a lot of people where ill February and March and still ill so surely they know a lot more now she sent a letter to mine two months ago asked if they had rang me said no got a message for the flu jab they must be so busy lol Gary

Tbf the tinnitus has improved but still there - it doesn't bother me too much and as you say surely they must know more about the virus now but seems to be that there is such a wide array of symptoms.

My main concern is my lungs can live with everything else and I know when I exert myself get breathless and can still feel the inflammation in my chest - that can't be right after 8 months!

Lx

Might be time to try and talk to covid doctor or specialist from the hospital I'm not sure if they would talk to me over the phone I've still got the letter with the doctors names on they should know a bit more at least Gary

Hi lulu I don't know if you remember when I got sent home with the letter from the hospital flu like symptoms possible covid well after that I was getting phone calls from the virtual hospital in hemel one of the doctors then told me that they didn't have a clue about the virus then well a couple of months ago or maybe three I was having trouble with my migraines and earaches told the doctor at my last surgery whom I think got in touch with Sarah and she rang me lovely lady she keeps in touch by phone with hundreds of people with symptoms similar to ours just thinking about it was about may or June time I keep forgetting how long we've been ill for Gary

Afternoon everyone,

Good news on your new business Dane. It's really positive news.

Lulu its good to hear you're still battling and I'm sure you're lungs will improve.

When are you seeing your chest consultant again?

I received a call from my chest consultant yesterday. He said they are setting up a post covid hub in Sheffield. He's emailed them about me, so hopefully they'll be in touch.

From my PF results he doubts I've got asthma, as the variance between higher and lower readings has reduced.

Hopefully he's having me into his department fir lung function and stress tests.

He's said to keep taking the steroid inhaler. Went on to say it won't do any harm.

I ran out of Dymista steroid nasal spray on Monday, so went two days without it. I was surprised how quickly the congestion reappeared.

I best get back to work.

Hope everyone is okay and have a good weekend.

Jim.

Wow your consultant is good Jim - I emailed mine and asked about a referral to post covid hub and he didn't even reply!! I think that is what we all need to go somewhere where they can link all the individual symptoms and tell us what is happening.

I have just started using the Sterimar nasal spray together with the Neilmed to see if that helps.

No-one can say we haven't tried EVERYTHING!!

Lx

Do remember now Gary, so good that you have someone to talk to and ask questions. I can imagine they have so many people who are sick they can't cope with them all.

Lx

Hi Lulu,

I'd ask your GP for a Dymista nasal spray. It's a steroid and decongestant combined. It works for me, as has the steroid inhaler.

My consultant has emailed the covid team but I doubt they'll see me. I read a BMJ article when they first mooted the creation of these teams. Apparently they are for the first 12 weeks of illness. If I hear anything I'll let you know.

Take care.

Jim.

I am seeing the ENT guy on 1st Dec will ask him about the Dymista spray Jim - the thought of phoning my GP makes me immediately relapse!!

Yes I think there are going to be lots of loopholes used to stop everyone getting into the Covid clinics - as you say for the first 12 weeks of illness and maybe stipulate that you must have tested positive. We will be needing a clinic that deals with people still suffering after the first twelve months yet alone 12 weeks!

Enjoy the weekend at least we know it will be relaxing these days!

Lx

I'm feeling a lot better thanks, Lulu, getting back to where I was.

I think my nose is improving, I'm using Neilmed twice a day now and it's really helping, I've just bought another huge box, hopefully I won't need it all.

Hope your chest/lungs improve, you're doing some really long walks, I wouldn't be able to walk that far

Enjoy your weekends everyone 😃

Glad you feel better now Jo what an awful time for you on top of everything else.

I am using the Neilmed a couple of times a day now, have got the hang of it and it makes a real difference. I think it helps my breathing - I didn't use it yesterday as was busy at work and felt pretty rough all day but used it twice today and things feel better!

I am cutting the walks down a bit trying to stick to 3 miles a day and not so hilly.

Hope everyone has a relaxing weekend and feeling ok.

Lx

Thanks for all the wishes on the new business, it's definitely giving something good to focus on. It is tiring though, I slept 12 hours last night just because I could and I really needed to because I've worked really hard last week. Symptoms tend to reappear when I tire so need to be careful about that. Had really stinging eyes on Thursday while driving kids home from school, had to stop on the side of the road for a bit! And felt the reflux last night. So still need to pace.

Noticing the brain fog...missed appointments, can't recall names easily, forget what I'm doing etc.....took a while for me to realise I had the brain fog, but can't ignore it. Keep telling everyone to remind me about everything!

Question for all of you: Do you find yourself more sensitive to the cold nowadays? ok today was freezing 🥶 but all I did was walk around the block and my ears were so painful it took me a good half hour to recover!

Good to hear you're ok Jo and sorry you've had a rough time ☹

And glad you're finally getting help Jim, you've waited long enough!

Hi Dane,

Funny you should mention feeling the cold. You're right pre covid I would wear short sleeved T shirts in winter and was never cold. I thought it was due to the lack of movement.

I'll be honest Dane if I could shake the fatigue I could live with the rest,

Good luck with the new business venture.

Can't say I ever wore short sleeves in the winter 😀 but maybe there's something in it that we're both dealing differently with the cold post covid.

My husband said it wasn't that bad outside...I found it impossible. Just ordered some extra warm new winter hats and scarf!

I agree fatigue is difficult to deal with, I still have it a bit but not as crushing as used to be. I hope it shifts for you soon!

Hi Dane

I notice I find it harder to "cope" now get easily stressed by work etc. but that could just be the general anxiety of lockdown and do feel a bit fuzzy in the head but think that is down to my throat and sinus issues and nose being blocked. Am definitely a lot more sensitive to temperature - noticed it back in the summer too when it got very hot and humid it affected me badly and now I notice it - even in the evenings when its starts getting dark around 3.30 and the temperature drops I feel my nose and sinus start - it is as if I am hyper allergic to everything these days!

I am finding if I do around 3 miles walking a day and about 7/8000 steps in total I am ok - I also need to do the nasal wash and yoga every day - the yoga breathing seems to help - it is all a bit of a palaver though I used to just rush out the door, dash around all day and not think too much about anything!

Glad the fatigue is easing - mine definitely is too but not sure I could go out for a big night out/party at the moment - luckily one thing we've not got to worry about at the moment, every cloud and all that ... 😂

Take care,

Lx

I'm feeling the cold too, Dane. I think because my symptoms are like a head cold, I'm more sensitive to it. Yes, I'm wearing the woolly hats and scarves too!

I've also got brain fog, especially when I'm tired. It seems to hit me later in the day, especially if I've been busy. No nights out for me either, Lulu!

All the best with your new business, Dane

Take care everyone 😃

Parties...what are those again? 🤔😁

Yes I also feel stressed easily so try to get in lots of tea breaks into my day. 8000 steps is amazing, I doubt I get close to that.

Thanks Jo.

I guess that makes sense that the cold would worsen your symptoms then if you already dealing with head cold symptoms. Gosh...take nothing for granted anymore!

Morning dane and everyone I have some good news and some bad I'm having a lot of problems with memory don't know if I'm losing the plot or its something to do with my head ringing all the time I've misplaced my new mask and reading glasses which I thought might find them yesterday today I've just got to work and my locker is open which I might have forgotten to lock yesterday never done that before also been making cups of tea and forgetting them etc only little things good news is on the breathing front no tight chest in the morning when I wake still getting it during the day just props up mainly afternoon hoping everyone is improving and no new symptoms Gary

Morning Gary,

I take it work went alright other than the forgetfulness?

Good news on your chest.

I'm hopefully on a zoom conference tonight headed by Dr Spector regarding the vaccines. It's a Q&A type session, so I'll update everyone if and when I can get on.

Take it steady pal.

Jim.

PS Doesn't look like I'll be out for a walk today the weathers horrid.

Hi Jim yes I actually prefer being at work it takes my mind off everything that will be interesting for you Jim a zoom conference with Dr who 😂 spector yes my breathing is getting better with time I'm hoping to get a nice Christmas present all the symptoms to be gone would be nice hope your fatigue is getting better I feel mine is but still can't push it yet Gary

Hi Gary,

Yes, I do agree. When I've something to do, so long as I'm not in the mid throws of a fatigue attack, I feel better, as you say I'm not thinking about it.

The zoom conference is through the covid 19 app where people report their symptoms daily. Doctor Spector is the one that's really pushed for investigations into the different strands of the disease. He's on Youtube. Well worth a look.

All I would like fir Christmas is the fatigue to go. The rest I can live with if I have to.

Jim.

Trust me Jim the fatigue will get better soon can't say when it will go but I know mine is improving not 100 percent I do feel it if I push it but thats the same as the other symptoms perhaps we just have to keep pacing our symptoms till they improve if you feel like your pushing it just rest and go again I've been getting tired in the afternoon then fine a couple of hours later I'm usually tired in the morning anyway but I struggle to get out of bed but once out the door feel OK again Gary

Hi Gary & everyone

Made me laugh I am the same so don't think you are losing the plot - spent ages looking for my wrist warmer gloves yesterday which I was actually wearing and had pushed up my wrists - then today have actually lost them altogether when out on a walk - seems like they were doomed! Also being doing lots of scatty things and generally have a bit of brain fog going on - noticed it at work too. Think it is probably just the stress of everything that has gone on and the tinnitus doesn't help.

Last few days, since Friday when I felt rubbish, have been best I've felt since March 🙌🙌 but pulled a muscle in my back doing yoga this morning, typical just when I was looking forward to a day of feeling well - think its about time we all got a break from this cr&p and were able to feel well again and get on with our lives!

I have been taking antihistamines again, forgot that I took these in the summer and seem to be helping with the head cold feeling and blocked nose.

Good news the breathing is easing Gary, I'm scared to say it but my lungs have felt much better this week!

Lx

Hi lulu yes it's been really strange few weeks for me I must have the brain fog but I don't seem to be getting the headaches just like ache on the top of my head there most of the time still getting ear tension but it's not bothering me like it was a couple of months ago same with the tinnitus drives me mad but a mate at work who had tinnitus said I will get used to it and it won't bother me can't wait 😂 we deserve a really good Christmas present for it to do one I've been feeling better same as you last few days so not worried about it just want it to do one gary

I'm hopeful Gary this time, I definitely feel a lot better in myself and can see that I look like my old self! but let's not jinx it and see how we go. How good would it be if we feel well again by Christmas... that would just be amazing 🤞

Lx

Absolutely lulu Christmas everyone back to normal would be a great present for me you never know could happen would be nice to have my marbles back Gary

The brain fog is so weird...I can't recall people's names easily, forgot all sorts of appointments and also I can find myself in the kitchen wanting to do something but without a clue what it is...only to remember a bit later!

I'm trying to do mind 'exercises' to help me get a bit more with it...just stuff that challenges memory and recall. No idea if it will help but trying anyway!

Hi dane with the brain fog do you get like tension on your head like on the top not a headache just feels like one it doesn't bother me just there good to know we're not losing the plot just everything else Gary

Hi everyone, ditto with brain fog and getting easily flustered. Sorry to hear about your back Lulu get well soon. I've given up on all of the meds now just using vicks for congestion. All I want for Christmas is that we all get back to full health and all our marbles back Lool

Hi Gary,

I sometimes feel pressure on the side of my head but not on top and I don't think that its connected with the brain fog for me. Muscles still tense in my back and shoulders when being active (like folding laundry...not sports!)

Hi dane yes I had the muscle tension that's all gone now still get ear tension only left one head tension on top and the tinnitus I haven't had the back stabbing for a few days so thats good can't wait for what's coming next 😂 Gary

Hi Lulu,

How's your back?

Jim.

Hi Jim and everyone just got back from work and received a letter from the hospital an appointment has been made for me to attend the cardiology clinic at Watford for an echocardiogram which is an ultrasound study of the heart my gp has reffered me for this and I don't know why will go anyway because I'm off work anyway just wondering anyone else had one hopefully everyone is getting better Gary

Afternoon young man,

Yes, I've had an echocardiogram when I was under the private consultant.

It takes all of 15 minutes and the scan your heart from various angles. During the scan the operator will stop and measure the screen to see if there are any abnormalities in the chambers and arteries.

It's definitely worth having. The test cost me £340 plus another 15 minute telephone call to say it was okay to the cost of £110.

Happy days.

OK thanks Jim I will have it done never looked a gift horse in the mouth so to speak and good to know if the ticker is OK hope you're feeling better mate Gary

It's a better day. Thank you.

Hi Jim

Thanks for asking. It's ok not too bad have been dashing around all day and did a really long walk this morning! Been talking a lot this afternoon and chest a little bit tight other than that am feeling pretty good. I have not been coughing like I was and the mucus is much less now - happy days!!

Hope you are ok and the fatigue is easing a bit for you.

Hope everyone is doing ok and good news Gary about the heart scan - definitely good to get that done.

Lx

Evening everyone,

I watched the webcast this afternoon hosted by Prof Tim Spector and one of his senior colleagues on the subject of the covid vaccines.

Having read through the vast majority of the proposed questions there was an underlying theme emanating from a large percentage of guests, which was; if you've long covid would they, the two epidemiologists have the vaccine and which one.

There answer was it could cure the illness.

Any thoughts?

Hi Jim sorry been busy I'm a bit concerned about that could bit and I don't have a lot of faith in people who doubt things especially the government I would like to know what will happen if I took it before I take it bit like anything really especially when I don't think anything works against covid anyway Gary

Hi lulu yes good to know if the ticker is OK I have noticed how much the tightness has eased from my chest it doesn't feel like it's coming up to my throat any more and I don't really feel it now unless I over do it the last couple of days I've had a headache on my left temple comes and goes but it's one of the annoying ones I've found my mask but not my glasses so hopefully I've got part of the plot back lol Gary

So did the epidemiologists answer which vaccine they would take? Not that I think we will get a choice anyway - seems we will get the Oxford one as is going to be much easier to distribute and administer due to being able to store in fridge.

Well let's hope they are right and it does help all the people suffering long covid but I am not convinced.

Thanks for sharing Jim, was there anything else of interest?

Lx

Hi Lulu,

They were asked in the context of a larger question and didn't answer that.

Having just read a couple of articles in the Mail I doubt the Oxford vaccine will be rolled out soon. Numerous heavy weight scientists have found anomalies in the results. Apparently, Astrazenica are doing a further worldwide study.

The webcast was an hour long Lulu and covered a few areas. It's worth watching. It's on Youtube.

No I agree think Boris has got everyone revved up to think it is imminent but realistically I would be surprised if we are offered it before next summer/early autumn if we are lucky. I think the Gov felt they had to share some good news and be super positive as people are really struggling with all the restrictions - well the ones that are following them are!!

I will listen to it Jim, thanks for the heads up.

Lx

Hi Gary,

I'm doing an echocardiogram next week. Been waiting a while for this appointment. This is the one I missed already so here's hoping I remember to go to this one!

Feeling a bit chesty past few days with slight cough, hope nothing is brewing...daughter has a cold so there's stuff going round.

Well done on finding your mask 😷

Morning dane thanks for letting me know yes try and remember to go this time must be a reason for trying to find out if our ticker is OK my head is still ringing while I'm typing this woke up early going to work soon no tight chest first thing which is good so it is definitely easing hopefully someone gets over the line soon let me know how you're echocardiogram goes dane thank you Gary

Hi Dane and everyone

Hope you are feeling ok Dane It must be hard with kids going to school bringing home all the bugs. Yes definitely remember the echocardiogram this time!! I am doing loads of stupid things - added 500g of water to a curry last night rather than 50g - needless to say it was VERY watery - I was following a recipe and read it wrong!

Have probably had the best overall week since March - still a few symptoms and slight underlying sore throat but a definite improvement. Same as you Gary, seems that the chest/lungs have improved and have hardly coughed this week which is a first for me - must just be a time thing as we got sick same week. Let's hope and pray it continues! My ears still ringing too but sort of got used to that!

I was thinking back to when I very first spoke with the respiratory guy in June he said 4/6 months longer to recover so that would take us to December. I am seeing him again on 9th December so will be interesting to see what he has to say and whether they know more about the virus. Also seeing ENT next week on Tues 1 December - will obvs ask about the throat and tinnitus but if anyone anything else to ask either let me know.

Take care and enjoy the weekend,

Lx

Hi Lulu,

You sound in great spirits and improving well.

I love your curry story. I take it you need alot of corn flour to thicken it up.

On previous occasions you have done our little cohort proud with the questions and updates.

May I ask you to enquire your consultants thoughts on whether we should be vaccinated and which one if we have the choice.

I know we won't have a choice through the NHS, however privately all options will be available.

Thank you in anticipation.

The day you see your ENT consultant is the day I've my appointment with my Occupational Health Doctor.

Hopefully both will go well.

Jim.

Of course Jim, hadn't thought of having the vaccine privately but what a good idea if we can choose which one. I will ask them both and see if give the same answer!

Good we have a few medical appointments coming up between us, gives us a chance to ask some more questions and find out what they have found out over last couple of months.

Enjoy the weekend, hope the fatigue is easing now.

Lx

Hi lulu and everyone I'm the same as you I feel I have had a good week only ringing in ears and top of my head is tension did have a couple of days of bad headache on my temple but that's gone also my left ear tension has gone from that breathing is getting better Im hoping for all gone by Christmas will be interesting to find out what the respiratory guy says because I've got a feeling he will know by now Gary

Really good news Gary, think we can all cope with the last few symptoms if slowly improving. I still feel there are a few things bubbling away under the surface - like the sore throat - but a lot better than it was. Just make sure we don't overdo it!

Enjoy your weekend,

Lx

You too young lady I know I can't wait till I get like two weeks of no bloody symptoms at all have a good weekend gary

Afternoon everyone,

I thought I would let you know my consultant has written to me and was good to his word. He has contacted the Post Covid Hub on my behalf. Apparently, they've suggested a blood test to begin with, so when I go for my lung function tests he'll sort a blood test.

Here in Yorkshire we've a blanket of fog and it's cold and raining.

This morning I managed to have a walk without being drenched but looking outside I don't think I'll bother this afternoon.

Hope everyone has a lovely weekend.

Jim.

That is really good news Jim, hopefully they will look at the bigger picture rather than the individual symptoms and be able to reassure you that everything will be ok.

It is same in London very damp and grey - just been for a long walk over the golf course and have to say feel a bit chesty - think this is the worst weather for us at the moment.

Enjoy rest of weekend.

Lx

Hi all sorry not been on but been busy at work etc, hope your all getting there sounds like you are all improving! I'm OK still getting the odd mucas sound in my chest and fatigue and sinuses but improved alot, I'm leaving my job o. 23rd Dec going back into community care privately only have to do to 9-4 each week and get same money with out the shifts and sleep ins and my 1st Xmas off in 9yrs 😁😁 hope the vaccine starts soon I'll get it as in care hopefully.

Good evening Jim that's great that he came through for you I'm pretty sure that the blood tests will be fine I think had four done in the five times I went to the hospital what do you have to do for the lung function test is that like a scan or blowing I think I would like to know how my lungs were after I've done the echocardiogram maybe actually talk to Sarah see if she can help Gary

Hi Susan looks like you landed on your feet good news with work and you must be close to the finish line with the symptoms would you let me know how the vaccine goes when you get it thanks in advance Gary

Hi Gary yes I will if I get 😊

Thanks Susan think you will have it well before us Gary

Hi Gary,

As far as I know the lung function tests are a series of tests measuring accurately the lung capacity, load test, which is where they have you exercising whilst breathing through a machine and other bits.

Takes a couple of hours but worth it.

I'm sure Sarah will be able to sort you out.

Jim.

Hi Jim I hope so because if I know my ticker and my lungs are functioning correctly I will be a happy chappy well I mean happier than normal 😂 Gary

Hi Susan

Lovely to hear from you. Amazing about the new job - that sounds so much better not doing the sleep-ins and more regular hours, what a great start for the new year and lovely to be off work for Christmas.

Sounds like we all have some lingering symptoms but such good news everyone seems to be slowly improving.

Definitely let us know when you are getting the vaccine and how you are getting on with new job!

Take care,

Lx

Hi lulu thanks and I'll def let u know about vaccine and job ❤️

Afternoon lulu and everyone I'm still getting better fatigue and breathing wise but guess what the left ear tension and top of the head tension came back and the tinnitus is constant has anyone had the tinnitus and it has gone? Got four nights now off the weekend hopefully someone will be over the line before Christmas Gary

Hi Gary and everyone

Glad you are doing well. I have had the tinnitus constantly sometimes worse than others but notice it more in the evenings and in bed when it is quiet. I am seeing ENT guy tomorrow I will ask him again about it but last time he tried to fob it off as anxiety but I will push harder to try and find out what else could be causing it. When I do the nasal wash every day my ears pop so I would imagine it is mucus or something causing it.

Felt ok last few days but upper stomach felt a bit sore today when I breathe - have had it before so will ask the respiratory guy next week feels as it is linked to my breathing - think it is the diaphragm area.

Hope you have a good week, will let you know what he says tomorrow evening - appointment is at 6.00.

Take care,

Lx

Thanks lulu I appreciate it I know they fob a lot off to anxiety because they still don't know everything about it and it only started about a month ago to me and I certainly wasn't anxious then to be honest I forget about it till the evening or morning when it's quiet seems like we are not out of the woods yet though hope you're stomach improves Gary

Hi everyone 😃

Hope you are all continuing to improve, it's taking so long, yes would be a lovely Christmas present to finally cross that line

Good luck with your appt Lulu, hope you get some answers. I agree about the tinnitus, I think it's to do with the mucus. I don't understand why sometimes it gets louder though. Hope your stomach gets better, I still think it is one of my main symptoms, affecting physical activity, sleep etc. Certain foods seem to affect it, like chocolate 😦 The fatigue seems to be lifting a bit and my nose seems a bit better.

Enjoy your day everyone

All the best with your new job Susan, that's great news!

Hi Gary and everyone

Saw the ENT guy. He did an endoscopy and said he could see improvement in throat but still thinks could take until Spring to fully heal from the inflammation caused by the acid reflux. He said reflux is made much worse by stress and anxiety. I asked about the vaccine he reckoned we would be lucky to be vaccinated before the summer and no scope to choose to have it privately until all the vulnerable are vaccinated and even then he said he doubted it would be offered privately in foreseeable future due to world demand. He said seen lots of people coming through with tinnitus - still maintains that the main cause is stress and lack of sleep and it will improve. He was very positive still said progress is slow but convinced people will fully recover.

So basically all our symptoms are being made worse by stress and anxiety - not sure I believe that but he didn't seem concerned so that was quite reassuring in its own way!

Hope everyone doing ok.

Lx

Hi Lulu,

Yet again thank you for the comprehensive update. Your consultant is probably right ref the vaccine and private inoculation.

I met a good pal of mine today who's wife is senior district nurse. He was telling me how they are ready now for any of the vaccines to be delivered or any combination of the three. He finished with all the staff are jacked up for a mid December roll out.

I was amazed.

Hopefully he was embellishing the account from his wife. I trust his word though.

Fingers crossed all round.

Thank you lulu not sure I believe it though only because mine as I said only started about a month ago and at that time I was just getting on with it same as now really and I know lm getting better because my breathing is and my fatigue is and I'm not worried about it got to the point where no one asks me anymore as well hopefully the tinnitus stops if not I can deal with it as well as the tension off to work soon looks like we have to play the waiting game for a few months more then had a really good week as well thanks again lulu got the ticker test on Saturday if that's good I'm going to try and get the lung function test that Jim was talking about Gary

That is good news they are all geared up for the vaccine when it arrives Jim - what a huge operation that is going to be - every now and then I still feel like we are all in a bad dream - if someone had told us the whole world would be in this situation this time last year it would have been hard to believe. Hopefully there is light at end of tunnel now.

Hope you are having some good days. Apparently there is snow heading our way by end of week so there won't be much walking going on!

Lx

Yep I'm not sure either Gary, think it is just another symptom which will come and go for a while. Good to have the heart test Saturday and will be reassuring. I've had the lung function test so am sure you will be able to get one. As you say we are just going to have to get on with it and get over the line.

Hope work goes well,

Take care.

Lx

Hi Jo

Glad you are ok. I remember you had quite bad stomach issues all the way along - its strange how we all have some symptoms the same but then we each have our "own" specific issues. I've not had stomach issues generally - must be annoying that chocolate affects you - always the things we enjoy!

Let's hope the tinnitus and all the other lingering symptoms keep improving and we can all just get on with our lives. Glad the fatigue and nose seems a bit better - this is the worst time for all respiratory issues with the constant change of temperature and central heating etc. so we just need to get through the winter in one piece and then hopefully we will be home and dry!

Take care,

Lx

Hi Lulu and everyone, thanks for sharing your ENT consultants thoughts about why we're all still suffering and that he thinks it's going to take until spring !! He's probably right as I've not noticed any improvement in congestion. My ears are still popping and can feel mucus at the back of my throat. I don't agree it's stress or anxiety as before when we were first going through it. It's just a mystery why our bodies can't fight the last hurdle .....Lulu did he mention anything about steroids ?

Hi Steph

Sorry you've not had any improvement with the congestion - some days I think my chest is better then the tightness comes back especially if been out in the cold.

He did say if I didn't continue to improve he could give me steroid drops I assume like you had but he said he's prefer not to. He also said he could do a more intrusive procedure to see what was going on with the reflux but still thinks as it has improved it will continue to do so.

Just seen there is a programme on tomorrow 9.00 Channel 4 Surviving Covid - not sure whether to watch it or not!!

Take care,

Lx

Thanks Lulu, yes I really think that if it were still warm we would feel better. Defo don't want to take the stronger steroids as too many side effects. Yes someone mentioned that programme tomorrow , I think I'll watch it. Take care xx

Hi all,

My daughter had a cold and now I have a cough and struggling with mucus. Never used to get this, am wondering if my body is reacting like this because of the effects of the virus.

Took a covid test just in case on Sunday and thankfully it was negative (impressive same day result!)

Have the echo tomorrow, will let you know how it goes.

Thanks for reporting back from the consultant Lulu...we must be a very patient lot apparently!

Thanks for sharing the information from your specialist, Lulu, it really helps. That explains why it's taking so long for the last few symptoms to go, if it's the inflammation healing. Hope it doesn't take too long, but it seems there's not a lot we can do to help, we just need patience!

All the best with tests, Gary and Dane. Glad we are all generally feeling better and hope it continues 😃

Hi Dane

Sorry to hear this, it must be one cold after the other with the kids. We have been lucky and pretty much isolated but am worried as my son is coming to stay for a couple of weeks at Christmas - he lives in London and works in London so he will be our weakest link! He will get a test before he arrives but no way he will stay in for two weeks. My partner not happy but what can we do?

I find the Neilmed nasal rinse the most helpful for mucus, gargling and also a steamy shower. Breathing exercises help too - inhale and hold breath four times and on the fifth one cough up hard - pretty sure you've seen this on internet but it does help get it up. Been plagued with mucus since March so know how unpleasant it is. Good news you had a negative test - all this constant stress cannot be good for us.

Good luck for tomorrow with the echo test.

Hope you feel better.

Lx

Did you watch the programme Steph - god it was terrifying how sick these poor people were - so if you haven't watched it maybe give it a swerve! I can see now why the doctors classified us as mild/moderate cases even though didn't feel like that for us. What an awful illness.

Lx

Thanks Lulu for the tips.

Have been trying to recall what worked for you guys with the mucus.

Yes with kids it's tricky, plus I'm working in a primary school so that doesn't help!

The echo went fine, thank G-d everything looked ok. Still have to hear back from the consultant but suppose that will take ages.

I'll keep plodding on.

Hope you're all ok!

Brilliant, glad everything looked ok on the echo that's really reassuring for you - yep onwards and upwards!

Lx

Yes watched the programme Lulu, got a bit emotional especially when they were showing film clips of how they were before the illness... Also about how ill we were and hearing the doctors say that they'd never seen anything like it as it can effect all parts of the body. All the guys were between 50-60 so I'm guessing it effects us more in that age group.

Hi Steph & everyone

It was so upsetting I sort of wish I hadn't watched it and yes all four were our sort of age group. I do hope lots of people watched it to understand the seriousness of it and for many it is not mild flu!

Just spoke to Respiratory guy's assistant as needed to check appointment time for Weds and also have a sort of bubbling sensation in right side (front) of chest. Had it on and off and thought maybe was a bit of mucus trapped but mentioned to her in case she was going to be speaking to him whether it was anything to worry about. Anyway she is a right chatterbox (just like me!!) and she told me that nearly all his patients now are post Covid from March/April, still having issues but they are all recovering but it is much slower than first thought - I know it doesn't change anything for us but reassuring to know we are def not alone!! She said they all have lingering symptoms which are taking time to clear up.

On the off chance has anyone else had a bubbling sensation in chest?! It's not when I breathe necessarily just a sensation which comes and goes and not walked much last couple of days so wondered if it was trapped mucus. Just wish we didn't have all these random symptoms to still worry about after all this time!

Have a good weekend everyone and hope you are doing well.

Lx

Hi Lulu

I haven't had bubbling sensation but one of my earlier symptoms has returned, vibrations which seem to be to do with stomach/digestion, and mostly happening at night when I lie down. Not sure if anyone else has had them. It could be to do with all the choc, cake and wine, as it was my birthday last week 😃I've still got quite a bit of choc to get through, so I'll have to put up with it for a bit.

I couldn't bring myself to watch that programme yet, but I would like to at some point. It sounds really upsetting.

Good news on the echo, Dane, such a relief for you

Hope everyone ok and have a good weekend

Christmas tree is going up this wkend 😃

Afternoon everyone had the echocardiogram this morning said same as dane all seems ok except I have now got high blood pressure so got to ring the gp which I don't like doing but hey ho will do Monday morning never watched the programme you saw but looks like we all have a few symptoms to wait to go I know my breathing is getting better so looks like I will have the ringing to keep me company for a while I still get a little tight chest now and again that bit where it comes up to the throat keep getting the weird top of the head feeling coming and going besides that have felt sort of normal this week off till Thursday night hope you all have a good weekend gary what's left of it

Happy Birthday for last week Jo! Am sure the cake, choc and wine was worth a few vibrations! I had the internal vibrations a lot a few months ago and think others on here did too - just weird how the symptoms go and then come back again, its all very strange. The bubbling has stopped now but no doubt it will be back!

Enjoy the rest of the weekend.

Lx

Hi Gary

Glad the echo was ok and in some ways also good to know about the hbp - it might be contributing to the headaches/tension you have been having - it's possible.

I'm still getting tight chest and odd sensations in back and chest - seeing respiratory guy Tues so will let you know what he says.

Enjoy your days off work.

take care,

Lx

Hi lulu yes you could be right I still think the head and ears tension is still the virus but it is easing wish it would take the ringing with it 😂 I'm thinking you will see the breathing improves as soon as the sensations in the back go because my stabbing has gone I just get a little tight when it comes up to the throat but that is getting better I think a couple of weeks it will be gone a little bit of hbp won't bother me sound like a advert now a little bit of wee won't bother me besides that I've had a good week really hoping everyone is improving Gary

Thanks Lulu, yes it was definitely worth it, hasn't stopped me eating chocolate, not sure now if that's caused it, as it doesn't seem as bad, and I'm still eating it. Yes, it's weird how symptoms come and go, that's good your bubbling has gone, maybe these symptoms go when we mention them, the same way that they return when we say they're improving. 😃

Good news on echo Gary, sorry to hear about bp, are you sure it's not caused by just going to surgery, I know my HR was really raised last time I went

Hope everyone ok, enjoy your evenings 😃

Morning Joanne and everyone I'm not sure about the BP to be honest I have never had it before high I mean wasn't worried about going to the hospital they said it would take about 40 minutes only felt like 10 said everything looks fine just before they done the test took my blood pressure said it was a little high don't know why I'm feeling good today only ringing in ears no pressure on head so hopefully that's done one gary

Good afternoon lulu and everyone I've got a lung function test just been called apparently its part of the follow up post covid got it Saturday afternoon I'm actually looking forward to it that sounds crazy but if my lungs are good and my ticker is OK i can push on from there just the tension and ringing to deal with then and BP didn't ring the doctor do they take your blood pressure when you have lung function anyone know thanks Gary

Hi Gary & everyone

Good news re lung function test Gary. I had one last time I saw respiratory guy and it was ok - they take your age, height and weight I think and punch that into a device to find the baseline. I will probably have another one when I see him this evening.

I think at any medical appointment you can ask if they would take your bp - the things is with bp it is different at different times of days a bit like your heart rate - so really you need to take your bp at the same time daily/weekly or monthly to see if there is a pattern either up or down. We have a bp monitor (amongst all the other medical paraphernalia!) which we bought from Lloyds pharmacy but can get on amazon and it has a booklet tells you what is low, normal or high. Mine is low which can also be a problem as often feel dizzy.

Will let you know what the respiratory guy says later this evening - but if I hazard a guess it will be "it is going to take more time" not heard that before 🙄🤣

Take care,

Lx

Thanks lulu I think we all know now it's going to be a time thing for us all I will ask for a BP test when I go for the lung function test if it's still high I will ring the doctor I'm pretty sure it will go back down again I have been feeling good for the last week odd tension on the head and the tinnitus my breathing is getting a lot better Gary

That is good to hear Gary, think things are improving for most of us now.

Messed up appointment it is tomorrow night at 6.00 - will update then.

The brain fog is real 😕😂

Lx

Yes it definitely is lulu I have made lots of mistakes head wise hopefully that improves as well 😂 as the brain fog Gary

Hi Lulu and everyone, aww bless you the brain fog is a real symptom. I'm still battling the congestion. Would you be able to ask your guy if he knows the best way to clear it Lulu the feeling of mucus at the back of my throat is driving me mad !! Hope everyone is ok and improving.

Yes I definitely have the brain fog! Just tried squirting water up my nose, forgot to add the Neilmed, it was agony 😦 I was trying to work out what was wrong with my sinuses, then I realised what I'd done!

And I ordered something and didn't put my full address, so it got sent back. Oh dear ....

Hi Jo and everyone

Good to know I'm not alone with the brain fog - as well as getting appointment wrong yesterday I also sent flowers to someone and forgot to say who they were from 🙄😂

Saw respiratory guy - he was pleased with me and has signed me off 🙌 He examined me, listened to my chest etc. and said all sounds good, reckons 90% recovered and the last 10% will sort itself out by the Spring - said we are hampered by the weather as we know lungs do not like the cold and damp so will take a bit longer now we are in the winter. Also said reckons definitely have some natural immunity but the vaccine will enhance that so definitely have it as soon as we are called. Asked about the congestion/mucus in throat Steph - he seemed to think it was more related to reflux than the lungs/chest and said to take the Lansoprazole daily - I said I was only taking every other day and he said it's a drug you can take daily without any problems and can take long term so maybe see if you can get a prescription and see if it helps you, I know you tried it once before but I have been on and off it for last few months. Also asked about my stomach feeling sore and he reckons again it is the acid from the reflux. Asked about tightness in chest he said it is nothing to worry about it will gradually improve and get less frequent which it has. I asked if more susceptible to pneumonia/chest infections in future and he said no reason to think that - lungs heal and will be no more vulnerable than anyone else. He reckons there is still some inflammation in body but again will carry on slowly improving.I asked about the post covid hub and he said for me the only benefit would be to meet others who have been through this as have already had scans etc. and don't need physio so he seemed to think a bit pointless.

He did say he was seeing patients with lingering symptoms but he is confident they will all clear up and people are all making progress albeit slowly. He did say some people he is seeing are feeling depressed/anxious and may need to speak to GP about that.

Hope everyone ok and having a good week.

Take care,

Lx

Aww thanks again Lulu you're our "twinkling star" in all this madness !! Yes I'm building myself up to speak to my GP again so I'll ask if I can have Lans , I know when I take Gaviscon it seems to help.

Jim how are you doing ? hope you're doing ok. Take care everyone and enjoy weekend when it comes.

Thanks again for all info, Lulu, it's great news for you being 90% and signed off 😃

I think the reflux is causing a lot of my problems too. I expect I'll be taking omez for a while, I have a review next month.

Hope everyone ok and having a good week 😃

Hi lulu yes agree with steph you came up trumps again I'm same as you I know my breathing is getting better and I know mostly improving with everything else ringing and head tension today I over done it pushed myself on purpose went for a long walk and done loads of cleaning to catch up didn't have the flu jab back to work tonight and tomorrow night I don't mind spring that will give me something to look forward to I'm going to try and have a good Christmas would be nice if the tinnitus done one but we've all lived with worse Gary

No problem, think we have all had to pull together through this and share all our info and what has worked and what hasn't. I think the reflux has been a big problem for me to get my head around as I didn't have any sign of it before C19 but seems I have now - a nice little reminder!! Definitely be nice if the tinnitus did one Gary and also the brain fog - made another mess up at work today nothing serious but am noticing I am finding everything harder and feel easily stressed.

Why no flu jab, was it cancelled or can't get one?

Yep determined to enjoy Christmas and have a few drinks and be merry - feel that we deserve it!! Just a bit worried about my youngest rockin' up from London. Sounds like we might be going into T3 on 16th so at least won't need to worry about him mixing at pub.

Lx

Hi lulu at work at the moment wet one tonight I know what you mean about the brain fog its not nice keep forgetting silly things all the time never really had a problem with the reflux stomach goes crazy quite a lot flu jab was offered to me but I feel I've never needed it before and I'm used to working outside so not going to bother with it I think your right about tier 3 just got to try and have a good Christmas and hopefully a better new year symptoms free would be a great present got the lung function test Saturday Gary

Let us know how lung function test goes tomorrow Gary - yep all we want for Christmas IS ...for Covid to do one, once and for all!

Yep I only had flu jab this year because felt rough still so no point having it if you feel you dont really need it.

Take care

Lx

Hi lulu just had the lung function test very strange nearly blew my head off apparently all good I think made me feel light headed a couple of times but l blew for England 😂 have a good weekend gary

Afternoon Gary and everyone,

Good news then my pal. Smashing!

Did they do your blood pressure?

Lulu,

Thank you for the news from your consultant. Good news all round.

Hope everyone has a nice weekend.

Jim.

Hi Jim how are you doing no I didn't have the blood pressure done I went into the room and never saw any blood pressure machine was going to ask Rosie the girl who was doing the lungs but forgot I got a lot of pressure from the head after but its OK now hope your improving Jim have a good weekend gary

Hi Gary,

Had a better spell prior to last weekend but then received an email about going into work and not working from home. I'd explained my position to our Occupational Health Doctor who had agreed. However, her report didn't mirror what she said to me. The stress floored me being honest.

It's only the last couple of days I've started to come round.

As before it's fatigue that is causing the problem for me. I still get mucus at the back of my throat and a little nasal congestion.

Your sounding well pal.

Still waiting for my lung function test.

Jim.

Sorry to hear that Jim it's not good when you get something you think is going to be alright go against you how was working from home going for you if it was all good is there not a way you could talk to your office and if its not a problem with them sort something that works with both of you with out outside interference you don't need the stress as well as the virus hopefully the fatigue eases soon for you Gary

Gary,

I've explained my position and I think it'll go my way working from home to be honest.

I'm not usually in the Office in my normal job. I doubt I'll get back to doing my old job but I'm trying.

Have a good night pal.

Jim.

Never say never Jim you will get stronger just keep the faith in yourself you have a good one too Gary

Totally agree with you Gary.

I'm trying.

Jim.

Good afternoon Jim and everyone was just wondering how everyone is coping I've just finished work for the holidays not back till January 4th I'm actually feeling a lot better but always a but still getting tight chest now and again and tinnitus but all my head tension has now all gone and the ear tension with it fatigue seems to be OK and I have been doing a lot more Gary

Hi Gary,

That's fantastic news, you're nearly there pal.

I'm still struggling with fatigue but it is what it is.

Enjoy your holidays.

Jim.

It will get easier Jim the fatigue you have a good Christmas too I'm going to try and step up the walking while I'm off to see if it helps the tight chest go Gary

Hi Gary all sorry not been able to get on here, hope your all good and feeling alot better? I'm OK had sinuses trouble for last 2 weeks which is painful behind eyes I finish my job on 23rd and start new job on 28th but only working 2 days a, week and no weekends and sleep ins so hopefully be less tired.

Hope everyone enjoys their Christmas going to be a strange one this year.

Hi Susan do you feel that the sinuses trouble was still covid or just normal any talk of you having the vaccine yet I feel like they are taking so long to get it out there and even when they do the little sugar is still going to be with us just like the flu I'm not impressed with the government at all still nothing from my gp I've had the echocardiogram and lung function test done Sarah is due to ring soon the ent lady just left with tinnitus and little tight chest so still improving have a good Christmas and let us know when you have the vaccine thanks Gary

Hi Gary I'm not sure I haven't spoken to anyone about it seems worse then it normally is tho, still not had vaccine were just having to wait for our works to get it we're on a list. Hopefully the Oxford one will be out soon which is easier to give only need one shot of it. Keep in touch Gary and Jim and lulu.

Hi Susan I think I remember Jim saying that he was waiting for the same one I will stay in touch with everyone till I'm fully recovered whenever that may be Gary

And me I don't like Dr's lol so try and battle on my own.

Morning Sue, Gary and everyone,

I think the roll out of the vaccine is going rather slowly and will take a long time to reach us.

Good to hear you are having the vaccine soon Sue it is needed in health care.

The bane of my life is the fatigue but it is what it is. Just have to get on with it.

I read an article via the BBC this morning on long covid and the new protocols now in place. Shame they didn't have it sorted in time through our venture with covid.

Hope everyone continues to improve.

Jim.

Hi Jim I've had to adjust with the fatigue I thought I had got it right but still forget it is going to be with me for a while yet if I over do it I feel it so I pace myself I changed some sleepers yesterday which is normally tyring and I also done a lot of walking around with my daughter it hit me this morning first thing I'm off today only walk home with my daughter that's to try and recharge my batteries pace yourself daily if you can we've still got some issues to get over the line yet Gary

Hi Gary,

You're spot on pal. Pacing is definitely the way to go.

I haven't been out for two days it's pouring down and windy.

Take it steady my pal.

Jim.

Hi everyone

You're right, Jim, even now after so long we still need to pace. I start to get the warning symptoms when I try to do too much, and I suffer the next day or so if I carry on.

I've got sore sinuses too, Susan, I think it only started with the cooler weather, I don't remember having it in the summer.

Gary you're doing so well, what's your secret? I wouldn't survive doing a physical job.

Yes, we'll have to wait a while for the vaccine, hope not too long.

Well nephew back from uni just tested positive, we were planning a very quiet Christmas anyway.

All the best everyone

Hi Joanne,

Totally agree with you. Gary's doing do well.

Sorry to hear your nephew is positive.

When all the school children and students started going back I said how ridiculous it was. They may be asymptomatic however they'll pass it on to others especially older members of their families who won't be so lucky.

Also who in their right mind thought it would be a good idea to have millions of students travelling the length and breadth of the country to end up in multi occupancy halls of residence.

A recipe for disaster.

Hey ho and we vote these clowns in.

God help us.

Jim.

Hi Joanne I wish I did have a secret to reveal lol but I have been lucky pacing myself but still feeling like it's going to bite my butt I'm still feeling the tight chest but it's easing the things I'm still getting is the tinnitus and a sort of top of the head ache that comes and goes it's the tinnitus thats driving me nuts lol hopefully your nephew will just have mild symptoms hope you have a good Christmas Gary

Hi everyone!

Sounds like you are doing well Gary but am the same with the pacing had such a busy week and had a few days where not felt that great just unbelievable after all this time. I had really bad sinus this week too and have never suffered with it before Covid so is def related to that. Also have tinnitus so you are not alone Gary.

Really sorry to hear about your nephew Jo, hope he is either asymptomatic or very mild symptoms.

Have a massive Christmas tree and chest has felt tight since, just hope am not allergic to it!!

Have a great Christmas everyone! Positive thoughts for 2021. Make sure we all keep in touch the support on here has been amazing!

Lx

Hi lulu I think it's better when we are working takes my mind off it and the tinnitus is driving me nuts I get the tight chest mainly in the morning or late evening I know I'm dealing with it just like all of us though can't wait till it bloody does one try and have a great Christmas and hopefully 2021 will be a good year Gary

Think you are right you don't notice it as bad when you are busy. I notice tinnitus at night mostly and first thing in morning when I wake up.

Just can't imagine how many people are going to suffer long Covid after so many people have become infected. Feel sorry for all those just starting this journey.

Yep 2021 doesn't have a lot to live up to does it 😂😂

Take care,

Lx

Totally agree lulu to think back when didn't know what was going on with our bodies and to still be living with it I feel for those just starting that journey and I wonder if the doctors are still sending people home with that letter flu like symptoms I hope not and they now know how to help people you take care too young lady Gary x

Hi Lulu and everyone can't believe we're back to square one being in tier 4 and the virus mutating, after getting the good news about the vaccine. It's like a never ending nightmare... I haven't been feeling too well past few days but feeling better today. Hoping everyone has a good Christmas after a awful year we've all had. I'm looking forward to eating and drinking lots , well what else is there to do. Roll on 2021 let's see what it brings !!

Hi steph not looking good now this new variant of the virus is mutating really quickly was looking forward to Christmas and the new year to get over the line now I have to say I hope people get the vaccine quickly should have shut our borders when they first knew back in March now I feel like it's going to be a long time before we are out of the woods Gary

Hi everyone

oh dear, tier 4, that's not good, sounds like we'll all be on tier 4/lockdown after Christmas. Just seems never ending, hope we see the back of it soon. I agree Steph, have to concentrate on the eating and drinking this year!

Nephew seems to have mild symptoms, luckily, just hoping he doesn't give it to the rest of his family.

Are you taking antihistamines Lulu? I've bought some, wondering if they'll stop my nose from blocking

Well have a good Christmas everyone! Here's to a better 2021 😃

Joanne,

Ring your GP and ask for Dymista nasal spray. It is steroid based and really helps with my congestion.

Jim.