CPTSD - guidance and support

Edited , 5 users are following.

hello all,

i have recently been diagnosies with CPTSD following my childhood experiences. i have had support from a private phycologist due to feeling the delays in the NHS are only going to make things worse... the phycologist advises i explore medication and have therapy. This is something i have not started yet, at this current time im not in the best of places with me canceling things i enjoy and just feekling so low. im hoping this discussion could offer me some support but also for people to share their journey's of CPTSD and acsessing support

1 like, 15 replies

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15 Replies

  • Posted

    Clinicians do n’t work now, they just prescribe medicine, and then the side effects of the medicine will make people worse and worse.

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  • Posted

    Medication only relieves anxiety, but the side effects are terrible. I took sertraline for 13 months. It was a horrible experience. Now I am recovering. I stopped the medication for 4 weeks

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    • Posted

      Hi Hua

      My son stopped Sertraline too as it was not doing him any good. He was guided at first and then the liaison person just stopped. The NHS is not serious about helping him. We tried therapy with them and they actually forgot to call him in and said to him, they cannot see him as there is a next person's appt. My son has trauma too and currently seeing a private therapist. It's so difficult finding the 'right' one.

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  • Edited

    Hi Hua

    Can you let me know what you do to start recovering please? My son has been ill for almost 2 years now. Any suggestions will help. I am stressed out, don't know how to help him. He has strong intrusive thoughts the whole day and worse in the evening and very very foggy and down.

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    • Edited

      Sometimes mood is important. Patients with PTSD need strong friends. Group therapy is very important. If it can shift his way of thinking and find interest, I know it is very difficult to concentrate. My son and daughter have PTSD. My son likes it. Games, my daughter is undergoing art therapy, they are not serious, because we are all victims of domestic abuse, this year I was taken away by ambulance 8 times, I have experienced the most painful memories and injuries, each patient must Understand, they are not alone, there are many people like them, even more severe patients

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    • Edited

      Dear Hua

      Thank you so much for writing back to me. With this community forum, Like you say, there are many PTSD CPTSD sufferers. You have it so tough and I admire your courage and strength. Wish I have a half of your tenacity. Do let me know how you and your children are doing. Here in the UK, it's the same. GPs do not know what to do except medicine..same for psychiatrists. Switching one med to another. Glad my son has stopped Sertraline but he has to take mirtazapine 15mg in order to be able to sleep. Hmm...wish there is another way. He is seeing a therapist and I pray that this time, it will help him recover.

      Take good care Hua. Msg me anytime k?

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  • Posted

    Hi Hua

    Can you let me know what you do to start recovering please? My son has been ill for almost 2 years now. Any suggestions will help. I am stressed out, don't know how to help him. He has strong intrusive thoughts the whole day and worse in the evening and very very foggy and down.

    Report / Delete Reply
  • Posted

    Hi Hua

    Can you let me know what you do to start recovering please? My son has been ill for almost 2 years now. Any suggestions will help. I am stressed out, don't know how to help him. He has strong intrusive thoughts the whole day and worse in the evening and very very foggy and down.

    Report / Delete Reply
  • Edited

    I have diagnosed CPTSD to. mine was caused by childhood traumas. started when I was aged 5. I'm now aged 43. I have been told by medical professionals that there isn't much support out there for CPTSD. I need therapy for bereavement. but they refuse to give me the support. Every therapy I need, its the same answer. I cant have it, cuz I'm to complex for them to help. I cant have the bereavement therapy until the CPTSD has been treated. but as they refuse to treat the CPTSD, it's a viscous circle. I'm stuck. With no support. Even the crisis team promised to get me the support I need but I've heard nothing. I'm more than happy to keep in touch with anyone here, away from this page, that also has CPTSD. I know there ain't much support by medical professionals, but what I do know is... we have each other. I'm always here to support you as a friend. Take care everyone.

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  • Edited

    My CPTSD is worsening rapidly, due to not receiving support from medical professionals. My memory has got worse so quickly. causing me to start forgetting people's names, and struggling to recognize family members and loved ones. I asked for a memory test, that was way back 2016..... I'm still waiting. my body is crying out for there help and support. but they just cant help. Despite how I am feeling, I am still going to continue to spread awareness and offer support to those who have PTSD/CPTSD. We should be recieving support, and therapy.

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    • Edited

      I feel the same as your experience. I began to have amnesia. I am a CPTSD patient. The family crisis team gave up on me. The doctor was powerless. The psychiatrist told me that all he could do was ask me to take medicine. I want to die every day. Now I am Mother is by my side, she gives me a lot of strength,You also have to take care, for CPTSD, many professionals can do nothing

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  • Edited

    ask for either specialist counselling or EMDR or similar, the success rate for anything like this is very high!

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    • Posted

      Except for staying in the hospital, the short treatment was futile. I know there is a psychological rehabilitation center. I lived for 8 days and I recovered a lot.

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    • Posted

      i wish you luck, cptsd is really awful to deal with and you shouldn't deal with it alone. i hope you get through to someone professional that you need more support.

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