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Hi all, I had my 1st dizzy - off balance spell Christmas 2016. They became more and more frequent until the end of July 2017 since it's been 24/7 and unrelenting! On the 9th of Aug my partner phoned 999 and i was taken straight to A&E as on top of the dizziness my face, hands, arms, feet had all gone numb and they thought i'd had a stroke. I was seen by a stroke Dr and all was fine on that score. I had an ECG and blood tests and was sent home after 7 hrs. I was told it could be something vascular and my GP would be told to do an urgent referral for me to see a vascular surgeon. After having to push my GP my appt finally came through but it was 4 months away, how can that be urgent!!!!!? I had to fight and push and in the end i got an appt 10 weeks after my A&E visit. All my vascular checks came back fine and the vascular surgeon said i should see a neurologist, so my GP referred me. My appt has now come through fir 2 weeks time, which means i've waited 27 weeks, so that's now 38 weeks solid of off balance and dizziness and about 36 weeks since being ambulanced to A&E. I started to write everything down and since my A&E visit i've either been to see or had a phone appt with my GP 22 times begging for help to speed things up and for help but he's been totally unwilling to help!!!
It's that bad i've not been to work since last summer. The dizziness and off balance is 24/7 unrelenting. When i sit down it's like the chair is bouncing, when i stand it's like i'm on a boat or somebody is sitting on my shoulders whilst somebody is pulling at my ankles, when i lay down it's like i'm on a swing. It's really that bad!! I'm only 45 and have a young family. I've not driven since the end if July because i don't wan't to take the risk and have become pretty much housebound due to it all. I'm thinking do i have a brain tumour, MS, Parkinsons and all sorts. If i do i can't believe how much trouble my GP and NHS trust will be in, namely East Sussex Healthcare Trust!!!
Thanks for reading and sorry for the rant.
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