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Creatine was very high but no symtems

Posted , 6 users are following.

barathan53780
barathan53780

Hi I'm Barath age 34 male from Asia 

I have very rare kidney problem which my creatine level is 1215 latest and my gfr was below 5 

But I did not have any symtems and my urine output is normal and I never done any dylasis 

Kindly advice since none of doctor which I meet can give right explanation to me 

And my bp always at 160/100 

0 likes, 4 replies

4 Replies

  • rick39522
    rick39522 barathan53780

    Posted

    Well for certain Barathan your blood pressure is VERY excessive.  This is definitely causing harm to you and not just to your kidney.  You must have seen a doctor to get your blood tested, so did the doctor not prescribe anything to reduce your blood pressure?  Did the doctor not give you any prognosis about your kidney?  You say you are having no symptoms or signs with a gfr of 5.  Are you sure of this number?  You say the doctors give you no explanation, but they must tell you something?  Not even dialysis?  This all seems unbelievable.   Get a doctor immediately who can advise you.
  • marj01201
    marj01201 barathan53780

    Posted

    Barathan,

    First, it sounds as though you need to see a nephrologist (kidney specialist) immediately. If the doctor you have seen is a nephrologist you may want to try another--the doctor you have seen doesn't seem to have done a very good job of explaining your lab results. And, with an eGFR of 5 I'm extremely surprised this doctor didn't talk with you about treatment options for those experiencing renal failure.

    Your blood pressure is high. I would expect your nephrologist will want to address that to get it pulled down closer to the normal range. (High blood pressure is one of two primary causes for chronic kidney disease. However, if hypertension didn't cause your decrease in renal function it has quite likely been caused by your decreased renal function. Regardless, your nephrologist will determine what is going on and set a treatment plan for you that includes blood pressure management.)

    However, your first step is to get to a nephrologist. With an eGFR of 5 you need to do this just as soon as possible.

    Marj

  • Janinec87
    Janinec87 barathan53780

    Posted

    Barathan I am so shocked that you wasnt told you need dialysis straight away and you have just been left...... you need to see a nephrologist, I hope u get sorted, make sure you go to a dr
  • veronica39058
    veronica39058 barathan53780

    Posted

    I recently had that same test with creatine levels 1245 . My gfr was 13 and I also have no symptoms. I was diagnosed 2 1/2 years ago with iga nephropathy. And they only found out through a random blood panel done by my pcp. I was hospitalized for over a week until they finally told me I had iga nephropathy after kidney biopsy ckd stage 4 with gfr ranging from17-21. All I am doing is the kidney diet.I don't have answers either

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