Critically low on vitamin D3 and urgently need help!!

Hi, I am really sorry to hear your pain and what you have been going through. I wondered if vitamin D is the only one that you need? Did they check you for other deficiencis? I hope all this can be behind you soon.

Hi

your symptoms sound very similar to mine when I had low vitamin D.

It can take 3 months of supplementation before you get back to normal and really feel better. 

If you can expose your skin to the sun for at least half and hour daily between 11-3pm (assuming that you are in the UK?) then that will help to top up in addition to the supplements.

Sorry to hear about the pain you are going through. It is horrid. I used to feel as though my muscles were being torn apart. But the pain does go away and energy does come back.

Have you also been tested for anaemia ?

Best wishes

 

I recently got a diagnosis of Tumour Induced Osteomalacia. It has been almost 7 years without a true diagnosis. They can do a blood test FGF23 to determine if there is a Phosphaturic Mesenchymal Tumor which causes Tumor Induced Osteomalacia. They can surgically remove the tumor which can be anywhere in your body. Mine was behind my Knee Cap and they even found one in a ladies ear canal. The good news is once the tumor (Traditionally benign) is removed you begin healing.

I lived with tremendous bone pain etc during this time. I had the Vit D diagnosis but it was only partially correct. They didn't know to go further because this is extremely rare. I believe they said only 300 cases in the USA. 

I hope this helps you,

Don

Don

You already have your help - that is the standard approach in the UK to replenishing vit D levels. Once the 7 weeks are over they should check your levels again to be sure you have a good enough level. And work from there. But it may take weeks before you start to feel better I'm afraid so you have to be patient.

Your level is low because you have dark skin colour which reduces the amount of vit D your body can make by the action of sunlight on the skin. I don't know what sort of clothes you wear but often your traditional clothes prevent sun on skin - and jeans and t-shirts aren't much better. And you live in the UK where there there isn't that much sun that does the job - just between 11am and 3pm from May to September. The rest of the time it is too low in the sky. But many people in the UK with white skin have the same problem - they are working indoors when they need to go out in the sun!

There is very little vit D in food, less than 10% of what we need comes from food because few foods have much in them - oily fish and egg yolks do but you would have to eat loads of them. 

Remember to know why you are deficient in vitamin d. I have same symptoms as you level 13 when diagnosed. Either you are not getting enough sunshine or it's a parathyroid issue.

Get your PTH and calcium levels tested. Its been 10 months and my symptoms have not greatly improved. I just found out i have kindey stones which was a red flag for parathyroid issues. Doctors focus on thyroid and often ignore parathyroid becsuse it is rare, they overlook it. Parathyroid have similiar symptoms to vitamin d deficiency. I will have mine check soon.

If you are low on vitamin d chances are you are low on magnesium too. Vitamin d from the sun stays longer in the body.

Hope you start feeling better soon.

Hi, I had symptoms of not being able to climb the stairs and slow walking. I also had back and rib pain. My bit d levels were through the floor practically non existent but I actually had a tumour that showed up on an mri. You don't mention back pain but some of the symptoms sounded very similar to mine and I think another post had mentioned this. Good luck hope they get to the bottom of it.