Crohn diseases

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As I may get Crohn diseases or I already had it. Just wonder if anyone had it and what is the symptoms. Can we share?

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17 Replies

  • Posted

    Hi, I have crohns.  The syptoms tiredness, stomach cramps, weight loss and lack of appetite. 
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    • Posted

      That is my symptoms. I feel unusual fatigue. I have cramps in stomatch abdomen and I have diarhear. I dont feel want to eat but i try to eat to survive.  How long do you have it? Thanks for sharing
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    • Posted

      hi, I had symptoms for months. I got rush in to hosptail but didn't know it was crohns till after they done tests.  Then,had emerancey operation May 2008. I have permanet ilestomy stoma.
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  • Posted

    May I respectfully suggest you go to your Doctors  who will refer you to your local hospital who will run tests etc and confirm yes you have it or no you do not.  After that  you can then start to ask questions about what is worrying you.
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    • Posted

      Thanks maureen I am waiting for result. My colonoscopy specialist told me that he found 5 ulcers in my intestine and he says I may have Crohn's diseases but he needs result to confirm. I will have the result soon.
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  • Posted

    Hi, I am so pleased you have been to your doctors and you are awaiting results.  The way you worded your original question it seemed that you had not been anywhere with regard to your symptons.  However, I am so glad you are getting it sorted but I will not say that it is a quick fix.  Unfortunately there are so many different tablets that you have to work through them and find the ones that suit you.   When I was first diagnosed I was put on steriods to get me back on my feet but my consultant didn't want me on them for a long time, in the end was on them for 1 year.  As soon as he could he put me on Azathioprine and Pentasa.  Was on Azathioprine for 4 years, but have left them off in January of this year. Still on  Pentasa, which I think I will be on for the rest of my life, unless things change.  In my case things have definitely got better and the tablets have stabalised my condition, thank goodness.  My Brother who is suffering the same, is on different tablets, and he has more flare ups than I do, but compared to some he still holds his own.  I would just add that no two people with this condition are the same.  I do hope you get yourself sorted and you can get back to leading a fairly normal life.  Good luck and I hope this info is of some help.
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    • Posted

      I appreciate your reply. I am very axious. I have had a little bit symptoms of IBS. I wonder if you have the same. I am in strictly diet. Do the probiotic helps with Crohn diseases? I googled the treatment then they saiy it helped with enzyme tablets plus the strictly diet of high process food or drink. My daughter suffers the same she denied it. It worries me that she too gets it. I also know if it is too bad the patient will have to go through an operation and carrying a bag for the rest of his life. Scary when I think of it. I hope I dont have to do it. Keep praying to God that it will not happen to me. Are you in UK? I am in Australia so may be the tablet you use is not available in here. Scary to think about that too because Australia is not good in Medi field like USA or UK. Do you believe that I witnessed a case of appendicitis in which patient died of general anesthetic?  In VN nobody died of having appendicitis done. 

       

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    • Posted

      I appreciate your reply. I am very axious. I have had a little bit symptoms of IBS. I wonder if you have the same. I am in strictly diet. Do the probiotic helps with Crohn diseases? I googled the treatment then they saiy it helped with enzyme tablets plus the strictly diet of high process food or drink. My daughter suffers the same she denied it. It worries me that she too gets it. I also know if it is too bad the patient will have to go through an operation and carrying a bag for the rest of his life. Scary when I think of it. I hope I dont have to do it. Keep praying to God that it will not happen to me. Are you in UK? I am in Australia so may be the tablet you use is not available in here. Scary to think about that too because Australia is not good in Medi field like USA or UK. Do you believe that I witnessed a case of appendicitis in which patient died of general anesthetic?  In VN nobody died of having appendicitis done. 

       

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  • Posted

    Hi again,  I have been actually diagnosed with Ulcerative Colitus which my brother has also.  My mother and father were also diagnosed in their old age and looking back at my Nan's health before she died, I think she had the same but in those days this was not detected.  I always thought that health care in Australia was good especially with what my relations say who are living there.  I think you will find that your health care is much better than the UK at the moment.  Our Health care was excellent years ago but has been stripped back so much over the years.  It desparately needs sorting out but at the moment all the talk and evidence is that it is getting worse by the day.  When you get sorted, and it does take time, you will look back and think that all the worry was not worth it.  I have an elderly friend who has had a bag for 30 years plus and she says that she would sooner have the bag than go through all the pain etc etc.  She is such a happy lady and it has never stopped her from doing anything!!!!!.  Don't keep thinking of all the questions and what if's.  Just wait till you know exactly what is going on and then ask questions and decide.  You may be over worrying which doesn't help the illness. !!!!!!!!  Take care.
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    • Posted

      I just have the result in which my dr showed me and told me that I had multiple ulcers but I need Ct scan for small intestine. He gave me Pentasa 1mg but I need to take two. May be too much for me. How much do you use each day? I wonder if you have reaction with Pentasa? If yes what is it?
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    • Posted

      Hi,  When I first started I was on 8 tablets a day.  Each tablet being 500mg. I am now on 4 tablets a day of 500mg each.  The only thing was my Consultant told me to take all 4 in the morning but I have split them to 2 in the morning with breakfast and 2 in the evening after my meal so that I get an even spread.  The Pentasa you say is 1 mg, I would have thought that the one tablet would have been more than that.  Touch wood I have never had a reaction to Pentasa.  Hope this helps, let us know how you are getting on. 
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    • Posted

      Thanks Maureen, I will do that, split the dosage into two sound good idea. I will do that. Another thing did you have CT scan before your diagnosis. It seems to me my dr seems not too sure if mine is Crohn's diseases or Ulcerative Colitis, he asked me for a CT scan. What he told me is he can get the camera to my small intestine, just part of my instestine that he can see that I have ulcers on terminal ileum. May I ask where is yours? I see on the referal to Radiology that requires taking ct scan on terminal ileminum. I try to contact him and ask him about it. I should ask him about it when I was there. Should I trust him and keep doing what he told me for CT is nuclear and it can cause cancer? Should I go to another specialist? gastroenterlogist?
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    • Posted

      My consultant is a Gastroenterologist, I did not have a CT scan only a colonoscopy and that clearly showed up my problems which were classed as acute.  He gave me all the details and a diagram of my intestines !!!!  Because I was acute, to be honest I had left it too long before getting it sorted, I had high dosages of steriods at first and then the azathioprine plus pentasa, but all I am now left with taking is the Pentasa unless of course I take a turn for the worse which I am hoping not to do.  I do watch what I eat now and I try to  stay stress free as I feel that has a lot to do with the conditon aswell.  However my Consultant says it is nothing to do with Stress, although it is funny that if I get worked up about anything I feel my stomach cramp as if I could be in for a flare up and it does show signs of coming back.  So one thing to remember is stay happy, trust me it helps alot. !!!!
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    • Posted

      Mine is also a gastroenterologist but I dont why he wants me to have scan where the ulcers are. I am worrying that it may cause cancer. I havent got a chance to talk with him. I need to tell him what i think. He is a new graduated and he needs quick money I think so he will do anything to get patient back to his office even consult him again. I will tell him that I dont need chest X ray. It is weird that he ask me to do chest X ray.
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