Crohn’s cure ?

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I saw my GE yesterday, last week I had my 2 yearly MRI and I was told everything is normal and in his opinion I am cured of Crohn's, having been in remission since my op in 2013 he feels it highly unlikely I will ever have another flare-up. He will see me in a year and if all is still good will discharge me from his care. Any research I have done states there is no cure for Crohn's, only long term remission. While I am obviously happy to have been symptom free all this time apart from the bile salts malabsorption I have been left with since the op, I am not convinced it won't flare up again, after all something started it off in the first place. Any thoughts ?

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  • Posted

    Hello anna64644

    Congratulation, can you tell me what are some of the things that you do to stay in remission. I am all ears. I am really happy for you. I have Crohn's.

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    • Posted

      Hi Joe, thank you! I don't do anything specific really, since I had the diseased bit removed and no flare ups I pretty much eat what I want within reason. Some things still upset me like orange juice, tomato sauces like spagbol, then I get surprise upsets like after a fry up but I believe it is mostly to do with the bile salts problem now. I still take B12 and vit D and a multi vit. I refuse to give up one brewed coffee a day. In the beginning I was advised to avoid high fibre, dried fruit and anything dense like doughnuts. I also still drink Yakult for it's priobotic content plus I really like it and apple or any green juice. I eat a lot of chicken and white rice and yoghurt now and again. I don't eat oranges but melon is easy on the digestion and bananas. I still do think about what I eat out of habit, I won't eat mince pies or xmas pud, they just look too rich so I avoid them and hot x buns, anything with a lot of dried fruit in. What upsets one person may be okay for another but I did a lot of reading and online research, I looked into FODMAP and I have several books written by sufferers and it is always enlightening how other people deal with it. Hope this is of use, good luck.

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    • Posted

      Hello anna64644,

      Thank so much, it is just as I though. What works for me. I have been keeping track of what upsets my stomach and I have been staying away from it. So far so good but I an really glad to hear that your in a great place. Thanks for the information.

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  • Posted

    Hello Anna, congratulations your in remission, great place to be. I was diagnosed with Crohn's in 1978. I had a resection total colonectomy. I have been in remission for 35 great ride. In 2017 I was diagnosed with active Crohns so it is possible that it may return. It has been so long ago that I was sick I forgot what my symptoms were, now i know.

    I pray you have a very long run in remission. God Bless you

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    • Posted

      Hi Sandra, thank you very much for your positive reply. Mine was an Ileocaecal resection. How wonderful you have had 35 years remission, hope your re-activity can be contained, good luck

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  • Posted

    I say great news and God bless you! Keep positive, do what you are doing and just maybe it will never recur It is believed that crohns does not have a cure but anything is possible and there are exceptions to every rule and you be that one that exception

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