Crohn’s disease (advice)

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I’m 23 & diagnosed with crohn’s 13 months ago and was wondering why im so tired day in day out I carnt even lift my arms or move I’m that exhausted has anyone else had this or anyone no why im so bad with tiredness, sad i carnt ever do anything,& I’m on mazalazine macaptapurine. Humira and steriods everyday but hunira once a week anyone help please xxx

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  • Posted

    Hi, I am always exhausted, I thought it was a side effect from medication, but apparently it is a product of having Crohn's....I am not tired as in ready for sleep but just a simple walk to the shop feels like I have run a marathon. I honestly did not understand all the complications of Crohn's and I am still learning...I was diagnosed in November last year and still not pain free...waiting for a phone call on Wednesday to see if I need surgery or influximab. I must admit I used to be up at 6.30am everyday but now find it's 9.30 because I am so exhausted. Sorry not to give you a magical answer and hope you feel better soon.xxx

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    • Posted

      Hiya dawn & yeh thats what I’m like i can even just walk up stairs and feel so out of breath & no energy to even speak sometime’s and hope you are alright and u get on the straight with it,keep in touch and we can help eachother,thankyou for your comment please stay in touch smile i had crohns since last March so still pretty confused wit it ill try message u on here if I no how to do it and I’ll stay in touch xxxxxx

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  • Posted

    hi jake , you don't say you are been given  any B12 injections , could be just the B12,they might just help ,xx good luck 

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  • Posted

    It’s the humira injections I’m on but Also mazalazine macaptapurine amd steriods im constantly effetless sad xx
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