Crohn's Disease and Chronic Pancreatitis

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I found this blog while looking for others suffering from the same conditions. I have been struggling finding treatment options for both. I was diagnosed with Ulcerative colitis 9 years ago then last year I found out it was crohn's disease. I have tried all treatment options and the pills for UC/Crohn's is what gave me pancreatitis 3 different times. I then got it again and it has never really left just eased up. Any others out there going through this?

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2 Replies

  • Posted

    hello Sam, sorry for your health issues! I don't have an answer for you, but recommend you to visit an awesome group I'm in.... go to Facebook and look for "pancreatitis survivors" you will get a reply quicker and more people that suffer from CP and P. hope this helps!

  • Posted

    Hi Sam,

    I don’t have Chron’s but I got chronic pancreatitis from a congenital abnormality called Pancreas Divisum. Have you seen a dietitian? When you develop pancreatitis, you’re also at risk of developing food intolerances. It was one of my specialist’s concerns prior to my diagnosis. Furthermore, have you been on pain meds for years (I only ask because reading about Chron’s sounds painful)? If so, I would get tested for gastroparesis (slowing of your digestive system). This condition can be caused by being on pain meds for years. Pancreatitis can cause a slew of problems, therefore I cannot imagine what you must be dealing with or have dealt with. I go every other month for an ERCP to widen my pancreatic ducts (I have two instead of one due to my condition). ERCPS are used as treatment methods for pancreatitis. I had one pancreas specialist advise me there’s a nerve block for abdominal pain but I’m not a candidate because I have a nerve disease that makes my nerves misfire and contract my muscles. I don’t know what your diet is like, but I would keep a journal … when the pain is worse and what you ate that day, etc.  The only advice I can give is in regards to pancreatitis. Stick to a low fat diet, no alcohol, avoid stress (yeah right but try), eat six smaller meals as opposed to three big meals (easier to digest). Ask for an EPI test to see if you need digestive enzymes. Unfortunately, the pain is kinda always a dull ache until an attack (at least for me). I rest my pancreas by not eating solid foods for a couple days, drink Ensure or chicken broth. Stay hydrated as well as you can. I wish I could help with your original question. Best of luck and I hope you feel better soon. 

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