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Hoping someone out there can help me out with what may be causing my current symptoms as I have some doubts concerning my diagnosis of IBS.
For the last 3 years I've been having problems with my digestive system, which has been causing a whole host of symptoms. The main one's are bloating, burping, flatulence, random abdominal and chest pains, nausea, feeling faint and lightheaded, tiredness, unsteadiness like I'm on a boat, infrequent bowel movements, bowel movements going from diarrhoea to normal to constipation, bright red blood after bowel movements. These symptoms happen randomly, sometimes they can last for days, and sometimes only a few hours at most, and then I feel fine. The symptoms also range from mild to moderate, but are generally mild, I have had the odd really bad day but these have been few and far between.
I have had pretty much every test and investigation done on me, numerous blood and urine tests (including 5-HIAA urine test, celiac and thyroid blood tests), sigmoidoscopy, colonoscopies, endoscopy, abdominal ultrasound, stool tests for faecal elastase and calprotectin, auto immune disease tests, head MRI, H. Pylori test and probably plenty more I've forgotten about. I've also seen a gastroenterologist, neurologist and rheumatologist.
From all the testing and investigations done all that was found were rectal polyps which were removed and were benign, internal haemorrhoids (quite bad from what I saw), and 2 positive faecal calprotectin stool test results however no blood present in stools. The positive stool test results were what triggered my last colonoscopy a few months ago, where biopsies were taken. I was told my colon and first part of small intestines looked very healthy and the biopsies were normal, and according to the doctor because of these normal biopsies, the actual look of my insides and all other tests being normal, it is highly unlikely I have Crohn's disease and has therefore diagnosed me with IBS, with the rectal bleeding almost certainly being caused by haemorrhoids. He also said that as my symptoms can change from one hour to the next, and I can go from feeling quite ill to feeling almost normal at the drop of a hat, a lot of my symptoms can be contributed to trapped wind, and / or extreme bloating, which is a big problem for me, I look pregnant most days. He said if I were experiencing a Crohn's Disease flare up, I would be feeling a lot worse than I do, and the symptoms would not come and go in a matter of hours as they do with me, the symptoms would be almost constant and ongoing as long as the flare up was going on.
A lot of what my doctor has sort of helped put my mind at ease, but there is this bit in the back of my head wondering if something might have been missed. When I say I feel normal, I mean as normal as I can, I almost always have a sense of feeling a bit groggy. Are there any of you helpful guys that can maybe help me make sense of what I'm going through please? Does my current range of generally good test results really eliminate Crohn's Disease? Should I be listening to my doctor and trying to get on with life as best as I can? Are there any other tests that I should enquire about?
Any help, comments and thoughts would be very welcome and greatly appreciated.
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