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Crohn's for 40 yrs, no colon, several surgeries, on pentasa 17yrs, remission now active crohns7 o

Posted , 3 users are following.

sandra85955
sandra85955

I have no symptoms Dr wants to try me on humaria. What should I do.

0 likes, 5 replies

5 Replies

  • IndieHannah
    IndieHannah sandra85955

    Posted

    Hi Sandra

    Difficult one as you say you have no symptoms. However, I would say really think it through, talk it through with your loved ones.

    I have been taking Humira for 18 months now and the decision to do so was tough. But for me I was very symptomatic and really wanted to avoid further surgeries (not getting any younger and have had Crohn's for 30years and 4 surgeries). I was terrified because I had managed mostly using diet and liquid diet to control the disease. Humira was a last resort as none of the other drugs worked for me.

    Turns out it's been a wonder drug.....for a while anyway. Definitely some side effects but manageable. The pay off being I can eat food with more confidence and go out more and for longer.

    It's such a personal decision that no one can make it but you. If you have no symptoms it must be difficult to believe that you need it. But you've had Crohn's long enough to know that when it strikes it hits hard!! perhaps the Humira will catch it before it turns ????

    Good luck with your decision. Let us know how you go.

    Hannah

    • sandra85955
      sandra85955 IndieHannah

      Posted

      Thank you Hannah. Yes tough decision indeed. Will know a little more after July 31 scheduled for scope through stoma. They did a pull-up study those results showed active with ulcers and stricter but Dr said cam didn't finish it's job didn't go far enough.

      I have no problem eating anything since surgeries way back in first surgery in 1978 with removal of colon, I'm still not sure why they did that a they thought at that time I had ulcerative collitis, 6 months later I went back for more test the Dr said I had Crohn's, I had a choice to make to keep ostomy permanent but was told if I did I would be sick most of the time, couldn't afford to be sick I was a single mom of 2 girls and needed to work.

      I've had some other surgeries like less then 8-9 Ty's later one surgery in 2006 for bowel obstruction caused from scar tissue, but have been relatively healthy. No problem so I'm just confused about the whole thin

      Woul like to try a Natural way without meds but don't know where to start.

      So if anyone could give suggestions that would be greatly appreciated.

    • sandra85955
      sandra85955

      Posted

      So I should proof read better. That pull-up should say pill-cam
    • IndieHannah
      IndieHannah sandra85955

      Posted

      Maybe you could try MODULEN IBD. It's the best form of liquid nutrition on prescription. It's a tough challenge but with the support of a dietician it can really help. It would give the bowel a rest and still give you the nutrients you need. It's also got a naturally occurring anti-inflammatory component. It's mostly worked for me over the years but I know everyone's different.

      Just thought I'd mention it.

      Hannah

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