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I have had Crohn's now for about 8 years, several flare ups, never completely controlled. I am on azathioprine and humira injections but in the middle of a really nasty flare up now with eurthrma nodosom lumps too. I was just wondering though how people deal with people not believing i'm actually ill? I've worked all the time I've had this disease but now had to give up my job as just couldn't cope with needing the loo 10 times plus a day and the pain and fatigue. I just feel that because I look ok on the outside no one believes me. My friends just think i need the toilet a lot and often make a joke about it. I recently told my friend I was worried about having a colonsocopy because of the amount of blood I was losing and she completely ignored it and started talking about something else. Just makes me feel very lonely. Guess it has to take someone actually going through the same experience to understand? Just wondering how anybody else deals with the non believers?
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