crohns disease

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i have been diagnosed with crones disease 2 years ago and am taking methotrixate and asocal. so far i have been ok. not wonderful, very careful what i eat,. i have had no fruit since diagnosed, no green veg. just carrots potatoes, very boring. now i have started being unwell agin, dont know why sad so im only eating fish. bread eggs , still have the problem? dont know what else i can do. :?

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  • Posted

    i really know how you feel have been suffering for the last 5years with all the symptoms of Crohns and recently it has got worse. I have no life at all and all i eat a day is a yogurt which doesn't stay in me long any way if you know what i mean....I've recently been in hospital for severe dehydration and an iron transfusion due to severe anaemia an have lost 2 stone in weight oh i also have two young children to look after!!

    It has been awful for me and i know it has for you too but please try to stay a little positive i know its hard but make sure you have alot of support and accept all help offered you. None of my family(apart from my husband) realised how ill i was till i was admitted to hospital, so dont be afraid to ask for help, you can't cope all on your own.

    I wish you the best of luck and keep bothering your doctor they have to help you and they should be willing to try anything. x

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  • Posted

    have u tried eating fruit and green veg? if u have and it effects u how long does it take to effect u? and how do u know it is the fruit and veg? im just courious, im still trying to figure this crap out.. i seem to be pretty ok with most foods..
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  • Posted

    Gosh, sounds like you're in the same boat as me, I was diagnosed 4 years ago, I've had 3 major operations since to remove narrowed bowel. I am having pretty much all the drugs they can give me and I am still unable to eat what I call 'real' food. I can only eat steamed rice, white bread, plain chicken, all exciting stuff.

    The worse thing for me is that I am so exhausted all the time and in constant pain, and trying to get family to understand is so difficult. I had to give up my excellent job, and now spend my time in the house. Not much fun for a 42year old lady.

    You need to INSIST on help form your consultant, I have been lucky with mine to date. But you must keep going back and tell them everything, even if you don't think its related to your crohns, mouth ulcers, painful joints, sore eyes etc.........

    Its mighty difficult but try to keep yourself going, good luck :D

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  • Posted

    Hi, I am a sufferer as well and on regualt infliximab. After major surgery in 2007, which saved my life. I'm well on the mend and back to normal weight. I did lose 6 stone in 4 weeks (and my GP did nothing, apart from giving me depression tablets sad ). I'm eating and drinking normal :- curries and beer (in moderation). Keep smiling and dont take no from your GP (I dont think they really know about Crohn's). Seek help from an expert.
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  • Posted

    Hello, I have someone in my family who was diagnosed with Crohn's Disease about 2 years ago, she has already had 2 lots of surgery of bowel resection and has been quite unwell. Her Doctors have told her about the injection Methotrexate and has discussed all the side effects with her, however this has made her very anxious to start it, she is in two minds whether or not to. I am a nurse myself but not really trained in this area and feel she needs a bit of information/advice from people who are actually going through the same thing and help her understand her illness, also to find out if anyone out there is already taking methotrexate and how they are coping with it.

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