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crohns disease

Posted , 3 users are following.

kikidee94
kikidee94

hi every one my names ciara and i would jsut like to see wheater eny one can help me out

from the age of 14 ive been in and out of hospital and the doctores with all crohns like symptoms and celiac disease symtpoms

my probles flare up every mount without a fail and can last for days or a few weeks

im currenly unable to tolaret gluten wheat and dairy foods and ive noctied that when i eat vegibles my flares ups are trebblibe ! i hate it

i go to the doctors all the time and all they give me is tramadol with just masks the pain im in, im only 18 ! so i find it hard to go out to eat as i cant torate eny think. ive had to miss a lot of college beacuse of this im always tryed feeling under the weather and also been told by my doctors that when i flare up theres to much prusure in my eyes so they kill me aswell s every think ealse

i just dnt no where to go from here

i have a lot of blood and musus in my poo nealy every day ! i would just love some help on where to go from here it would be great

thanks guys sorry abou the spelling im dyslexia

x

0 likes, 3 replies

3 Replies

  • Gerry_the_neck
    Gerry_the_neck

    Posted

    Hi

    I've got a friend who has had Crohns for years. He has learned to avoid certain foods and has less flare ups. The most important foods to avoid are green vegetables ( broccoli, spinach, cabbage etc ), brown bread, and brown rice. Basically anything with tough fibres or stems, because they take longer to break down. There.s also a newish treatment becoming available called 'LDN', which although it hasn't been approved yet, is available. Look up 'LDN Research Trust' on net for info.

  • Ann_Ansell
    Ann_Ansell

    Posted

    Hi Ciara - Ive had Crohns for 22 years now and have learnt what to eat and what to avoid. I had major surgery after developing a fistula whereby they removed a large part of my intestine but since then have been in re-mission.

    Try keeping a food diary so you get a vague idea of what upsets you. I cant eat anything with skins tomatoes potatoes etc. have to peel them first which is a nuisance when its new potatoes, another thing is Kos lettuce, I also cant eat nuts.

    I am on salazopyrin and 3 monthly B12 injections.

    I do have the odd 'bad day' whereby im very tired and always running to the toilet but they are few and far between now.

    Keep badgering the Dr as mine was ignored for several years and only got diagnosed when i went in with the fistula. Keep your chin up it may not seem like it now but you will manage it when you've sussed out what you can ear.

  • kikidee94
    kikidee94

    Posted

    Hi Ann - thankyou for replying its a great help

    I do already keep a food diary

    But at the moment I'm unable to tolerate eny Vegetables and its so anyoing !

    I'm wating to go to the hospital on December the 4 to see someone able all my food problems

    I'm having a bad day today as all I've dune is slept just have no engery !

    But I hope every think is well and goes well for you in the future

    X

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