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My 8 year old son was diagnosed in May with Crohn's disease, he was initially put on modulen feeds for ten weeks which had great results but as soon as he started to eat again the problems started. They tried him on azathioprine which made him violently sick vomiting blood And became poorly again so he was put on a course of steroids due to another flare.
The steroids have helped and they tried him 6mp to maintain remission which again he reacted badly too again vomiting, diarrhoea etc. He was supposed to stop the steroids a week ago but hey have kept him on them. I am so worrie as soon as he stops we are back to square one again and I know long term steroids are bad for him. He was in hospital last week due to being in so much pain and they did talk about infliximab. He just doesn't seem to be able to tolerate the immunosuppressants.
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