Crohns of the vulva (vagina)

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I have a ilestomy for 7 years, I had a emerancey operation may 2008. 4 years ago I had my rectum stump removed. Since then, I have been to my gp and hospitail, I have crohns of the vulva.

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9 Replies

  • Posted

    Hi iv'e just been diagnosed with crohn's , i had a flare up in march the treatment has helped but ive had the same problem as you also have a sore mouth , my gp gave me steriod cream that helps but when i stop it comes straight back could this be connected to the crohn's ?
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    • Posted

      Gastro doctor has given me mesalazine to start with ,it's brought the swelling down but i'm still having pain i suppose it will take time it's took ten years to get diagnosed , but at least i know what it is now . Did it come on you quite quickly i see youv'e had surgery ?
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    • Posted

      Hi Kathryn, unknown to me I had for years. I went to see my gp at the time she said it was heavy periods, only went I got blood results back my gp reserved a bed at hospital. Then, in Hosp my big bowel burst had bloods transfusions but I was rushed into surgery. cry
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  • Posted

    Hi that must have been scary for you ,iv'e had a couple of scares when my bowel twisted and next time it blocked , i also have bleeding too , its took me ten years to get a diagnosis due to idiot doctors ,but im happy with the doctor i have now , what treatment are you on for vulva ? do you have splits of the skin its very painful i cant seem to get rid of it . thanks Katy
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    • Posted

      Hi, I am on Azathioprine 50mg, I was told it could take 3 to 4 months fir tablets work n he flare up. I have ulcers on inside their itchy sore and sting.
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    • Posted

      Sorry took so long to reply ,Im seeing doctor in 2 weeks hopefully i get it under control ,Thanks for your replies hope you get better soon 
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