Crohns or ibs
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Hi I have constant pain in my right side, near appendix and next to belly button. I have impaction, smelly mucus from rectum, elevated calprotectin and anemia . Are these symptoms of ibs or something worse? My mum has crohns
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UKMattG chantal_65714
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Many of these symptoms sound likely to be Crohn's/Colitis (IBD) but more importantly what is the gastroenterologist saying? A raised calprotectin would naturally push your care to a specialist.
?Also - do your bloods come back ok for B12 levels? It's common for them to be low with IBD which would cause anaemia.
chantal_65714 UKMattG
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paul75665 chantal_65714
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As Matt said your symptoms do sound like Crohn's / Colitis. Also, I think I remember reading that if there is a history of Crohn's and / or Colitis in your family then you are more than likely to get either or both of these conditions. The fact that they are looking at doing a pill cam investigation on you suggests they suspect something worse than IBS.
Have you had a small bowel MRI or a colonoscopy? I find it strange that the specialist is suggesting a pill cam before doing any of the procedures I have mentioned just to check there are no obvious causes for your symptoms and check for bowel strictures. If there are strictures in the bowels caused by frequent flare ups of Crohn's and Colitis, then this can raise the risks of the pill cam becoming lodged or stuck in your bowels, even more so if you are experiencing faecal impaction. From what I remember sometimes surgery has had to be performed to remove the pill cam on some patients. I personally wouldn't have the pill cam until I knew it was safe to do so by having a small bowel MRI, but they are specialists for a reason, and I'm sure they wouldn't be suggesting this if the benefits didn't outweigh the risks.
I had high faecal calprotectin results on two separate stool tests, however I show no other signs of Crohn's, blood tests are always normal, bowel movements are regular and look formal, no diarrhoea or blood, minimal mucus (our body naturally produce some mucus for bowel movements), hardly any abdominal pain and my last colonoscopy with biopsies came back fine, just haemorrhoids. At worst I get bloating and associated pain and nausea, very rarely do I get bouts of diarrhoea stools and when they do happen I only ever need to pass stools once. They still want to do a small bowel MRI just to be on the safe side, however they have said there is no rush, and I am seriously doubting that anything will be found.
chantal_65714 paul75665
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UKMattG chantal_65714
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Are you in the UK? A 4 month wait is a shambles. Talk to Patient Advice & Liaison Services (PALS). They'll chase it through for you and before you know it - you'll finally have the results. They're usually very helpful and takes pressure off you to keep chasing.
chantal_65714 UKMattG
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stephaney28634 chantal_65714
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chantal_65714 stephaney28634
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I go through stages with my weight, I get scared to eat. I don’t have diroreah I have impaction which is very horrible, several trips to a&e
stephaney28634 chantal_65714
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