Crohns/perennial Fistula flares with bleeding and hardness off and on, when to head to an ER?

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I think this may be common, but wondering how others that have fistula's fair day to day year to year.

In 2014 I was diagnosed with crohns after dealing with ibs for years, that same year developed a perennial abscess and then fistulas with setons.

A few years later had those setons taken out and been on biologics for most of that time until recently. Put a pause on stelara.

After this pause i had really no issues and little drainage surprisingly.

Until the last week or so, the fistula area got hard and sore (likes its done alot in the past), so much i told my gastro they gave me cipro said to get an mri and see a surgeon (doing this week).

As of now its started bleeding (which again its done in the past off and on) but quite a bit though eased up now.

You read horror warnings about bleeding and going to the ER but I dont know if thats really needed or how to tell (no fever just nauseous from the cipro i think).

Anyone go through the off and on flare ups like this? At what point is it better to head to the ER? In the past i'd just wait it out and it would subside again.

Thanks in advance

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1 Reply

  • Posted

    Hello,

    I had a fissure about 2 years ago and similarly I was referred to a surgeon by my GI consultant. I ended up getting a botox injection in the affected area and that healed it completely and I've had no bother since! so hopefully they can do something similar and as quick for u

    to answer your question about when to go to the ED, I'd say you're best speaking to your GP or GI consultant, especially if its someone who knows your history with the illness as they'll know what to advise is out of the ordinary or serious for your particular case... id say from personal experience if its only blood upon wiping or with passing of stools then you're probably okay but im not a medial professional so 😉 but if there was quite a bit of blood and it was bleeding by itself for no reason in particular, you're better to get it checked just in case...

    as I say, I'm not a medical professional, just offering my opinion, good luck!

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