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Crohns test

Posted , 4 users are following.

chantal_65714
chantal_65714

Hi , anyone had a clear pillcam but still have crohns ? 

0 likes, 8 replies

8 Replies

  • rach43
    rach43 chantal_65714

    Posted

    Hi yes i did.
    • chantal_65714
      chantal_65714 rach43

      Posted

      What happened ? I’ve has clear tests but still in slot of pain with elevated calprotectin 
    • rach43
      rach43 chantal_65714

      Posted

      My symptoms started 3 years ago so had loads of tests. Pill cam was normal. Had patchy inflammation and ulcers shown on colonoscopy. 3 lots of steroids which gave relief. Only got a diagnosis of crohns 6 weeks ago so has been a long time!! I am now on azathioprine so hoping they work!! It can take ages but all you can do is plod on and wait 😏

  • las01
    las01 chantal_65714

    Posted

    yes i did, this year, also had a clear colonoscopy but still was having many bad days/weeks especially in the evening, sometimes going to the toilet 15 times a day.  My consultant thinks this may be microscopic crohns and has put me on budesonide which works really well and none of the side effects of pred.
  • Gloria814
    Gloria814 chantal_65714

    Posted

      My last 2 colonoscopies came back clear and I just had a small bowel CAT scan a few wks ago and no evidence of disease.  but I still have the symptoms.  Doctor wants to put me back on a biologic.  I should say i also have RA and a medication that treats both autoimmune diseases

    would be tried.  I didn't tolerate humira or cimzia

    • Gloria814
      Gloria814 chantal_65714

      Posted

       biologics are very costly drugs that are usually tried after the DMARDS are used and you were not able to tolerate them or they didn't work for whatever autoimmune disease you have as a diagnosis

        you need to get approval from your insurance company and unless you can get copay by the pharmacy manufacturer they are out of reach financially for almost everyone.   I do live in the US and we have private insurance that has been allowing me to use them (with copay) but once we are on medicare you are no longer eligible 

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