Crohns without diarrhea

I do! When I first started having issues when I was 18, I was taking Imodium daily. And it never really helped, just slowed it.

Over the last two years, it's been constipation. I actually ended up in the er and had to be digitally de compacted because I was so bad. At first my gastro didn't want to cement the crohns diagnosis because of the constipation, but because my previous biopsy when I was 18 had markers of crohns, along with my MRI in December showing thickening of my ilieum and my colonoscopy he did in December showing erosion, I was officially diagnosed. He actually only has me on probiotics, as he says the main reason crohns patients are on meds are to control the diarrhea through inflammation. I do get terrible daily nausea, and frequent UTI's though, so I guess where I don't deal with the constant diarrhea and cramping(don't get me wrong there are still times I cramp really bad and still get diarrhea) I make up for it in other ways. I have a HIDA scan and ultrasound on my gallbladder Thursday to see if anything else is affected. Hope my reply helps! Good luck!

Hi everyone,

I'm new to this site and only stumbled upon the information an hour ago. I was hoping someone may be able to help with advice? My son who's just turned 17 has suffered with stomach problems since he was 8 yes old. We have been to see the GP more times then I can remember and he was diagnosed with IBS when he was around 10. His symptoms have continued to get worse and I'm convinced he has crohns. All his symptoms are exactly the same and he suffers flare ups at least 7+ times per year. He has an appointment with a specialist (finally!) on the 23rd of this month and I was wondering if anyone had any information on what I should be demanding they do for him? I can't stand to see him in constant pain, not being able to live his life as a normal 27 yr old would and I'm contemplating refusing to leave hospital until they do something to help! 😢😩

Thank you in advance xx

Hi Grace. 

I have crohns as well and although I have occasional diarrhea, I have more constipation with severe abdominal pain a little while after eating. I also have the lower back pain and hip pain.. 

I always find it strange to have these symptoms and wonder if it’s normal 😬

What medication are you on if I may ask? And is it helping? 

I was diagnosed after about a year of strange pains that I couldn't figure out. I don't really have diarrhea but I can if I have too much cream. Other than that most of my pain is pains throughout the abdomen, ribs form time to time, back pain and I guess when it's bad I can get hip pain. I also getting tingling sensations off and on which I think is related to low levels of folate.

I am hoping we can help each other. I have excruciating hip and joint pain. It's so bad sometimes it completely wipes me out and keeps me from doing my regular activities. I had a colonoscopy a year ago and they said I had proctitis. The terrible Dr I was going to treated me a few months as having UC. I HAVE BEEN THROUGH HELL AND LIVING IN IT RIGHT NOW! I have been bleeding everyday very heavily since May 2018. I have had 1 iron infusion treatment and 2 injectafur treatments because my hemaglobin dropped so low. REPEATED colonoscopy and endoscopy 6 weeks ago. NEW DR said my case is severe- ya think? PATHOLOGY looks like CROHNS. I've never had diarrhea, just severe constipation. I don't fit in their 'Crohn's diagnosis box.' I've been on Canasa, Steroids, nothing touches it. New Dr wants me to go on combination therapy with Biologics. One of these drugs is illegal to give past 6 mo to 1yr in UK because of the dangers of non-Hodgkins Lymphoma. Melanoma runs in my family. I'm terrified to take these drugs. New Dr spent almost 2 hrs with me explaining the risks associated with them. He said if I don't do something I am going to get colon cancer. If I do start these drugs I can get cancer. I have kids and this is about killing me emotionally. Out of sheer desperation I started a water fast today. Praying God will help me out. It feels like a quiet hell I live because it's not something you share with people. I've hit a new low. I think when you loose this much blood it plays mind games with you. I just want to feel like the Mom I have always been. Seems like a distant dream.

Hi Grace,

Just curious - what symptoms do you have altogether?

I am having a Colonoscopy and Endoscopy soon to test for Crohns. Am currently in the middle of a flare up - really don't want to hear them say it's just a severe case of IBS!!!

Any info would be fab, thank you!

x