Cronicpanreaitas
Posted , 7 users are following.
Has any one found better ways to control pains as I am on tramadol and oramorph and what food is good as I am loosing wait
0 likes, 22 replies
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Notes on Cronicpanreaitas
emmab gordie16
Posted
There is never an answer to this I'm afraid, I've had chronic pancreatitis for 5 years now and still struggle with pain daily. I take cocodamol 50/ 800g I think is right grams anyway the strongest strength 3 three times a day, also no matter what you eat you will still be in pain. I have had morphine before but I didn't get on with it. Do you take creon with meals and snacks I probably take around 10 creon a day.
best wishes
Emma
gordie16 emmab
Posted
Yes I take creon but no joy as yet but thanks for the reply
emmab gordie16
Posted
There is never an answer to this I'm afraid, I've had chronic pancreatitis for 5 years now and still struggle with pain daily. I take cocodamol 50/ 800g I think is right grams anyway the strongest strength 3 three times a day, also no matter what you eat you will still be in pain. I have had morphine before but I didn't get on with it. Do you take creon with meals and snacks I probably take around 10 creon a day.
best wishes
Emma
Shortie79 gordie16
Posted
With pain the variations are going to be different with each individual, the same goes with food. What one person can handle another one may not. Try resting your pancreas when it acts up. You do this by not eating solid foods for a couple days. Drink broth or Ensure shakes. After a couple days slowly incorporate bland foods like rice. If your stomach can tolerate rice without pain then incorporate more foods, but if you feel pain then stick to liquid diet only. Eat six small meals rather than three big ones, as it's easier on the stomach to digest. Some foods need to be substituted, applesauce instead of apples, frozen veggies instead of raw (easier to digest). Oranges are natural anti-inflammatories and can help with pancreas pain (if you can stomach them). No red meat, too hard to digest, stick to chicken, pork and ground turkey (whatever is low fat). I use low fat milk, eat string cheese, cream of wheat, split pea soup and lentil soup, but to gain weight I have been eating a ton of pasta! Pasta has been my friend lately. With actual pain medications it'll be a trial and error type of thing. Morphine XR can contribute to CP pain and isn't recommended if you have CP. I don't know about regular Morphine. Tramadol isn't going to touch CP pain and I haven't heard of the other medication you listed. I'm on Dilaudid and sometimes that doesn't even help with CP pain. Sometimes I have to go to the ER and get ketamine in order to control the pain. I was born with two pancreatic ducts that never fused together (rare pancreas condition) and it caused my CP. The bile gets clogged up in my ducts and causes attack after attack. I will have my pancreas removed in October. There's also a celiac plexus block they can try but if you have any nerve issues, I do not recommend the block. Keeping on a low fat (20 grams a day) and carb lifestyle with your enzymes is pretty much all you can do unless you have an obstruction in your duct. I've endured 10 ERCPs, the celiac plexus block and been on meds but unfortunately, my only options is removal. You learn to live with a new normal pain level. I hope some of the above information helps you. Good luck and I hope you feel better soon.
gordie16 Shortie79
Posted
I did not you could have your pancreatas removed
Shortie79 gordie16
Posted
Where I live they only remove your pancreas as a last resort. It's not something you want to look for, but in my case it's an option.
emmab gordie16
Posted
I didn't know that either my consultant is useless I look so skinny now but he doesn't care
vedawms emmab
Posted
Finding a good pancreatitis specialist -- not just a gastroenterologist -- is the most important thing you can do. Hopefully they can prescribe pain medication that works, or toward a pain doctor.
It's true that pain control is very difficult to control. I found pain was always worst when I had pseudocysts growing on the pancreas (ask for MRI or CT to see those), or after surgery.
In addition to avoiding alcohol and food that upsets my system, I take Amitriptyline for nerve pain, plus Gabapentin and Tylenol. I've only recently been given opiods (Oxycodone). Tramadol did nothing for me, and I'm allergic. You may have some luck with lidocaine patches. A good heating pad and lying flat on my back help the most.
Good luck, and go find yourself a proper doctor. Or at least one who cares. You can also search for TPIAT and TP/IAT on Facebook. There are two groups that can help explain the pancreatic removal process. There are also several Pancreatitis groups who you can also lean on.
Good luck!!
gordie16
Posted
Thank you for this info as this is all new to me me so finding it hard to deal with as I have always fit and active
heather0315 gordie16
Posted
I have had attacks for years even as a teen and after becoming a nurse finally learned it was pancreas divisum having 2 pancreatic ducts that never fused together! i also had sphincter of oddi dysfunction and they had to do a sphincterotomy on the common bile duct which had lots of scar tissue provably from years of attacks! i feel like i have chronic pancreatitis having all the symptoms and i get sick when i eat fatty foods. many Er trips and worried all the time as i have a family history of pancreatic cancer. i tried creon and did t see it helped.
gordie16 heather0315
Posted
Mine come on two years ago getting worse each year but no family history I'm the first. They say drink and stress is main cause but I don't drink?
vedawms gordie16
Posted
It can be caused by a deformity called divisum, autoimmune conditions, family history, certain medications, blunt force trauma, and more. There are blood tests that can narrow it down.
heather0315 gordie16
Posted
well my attacks started before i ever drank alcohol however attacks got worse after gallbladder was electively removed. i am definately more crampy and bloated since. I've read that maybe gallbladder shouldnt have been removed because it hold the back up of pancreatic juices when you have an attack. too late there. i will say cbd oil you need to take 3 timea a day. only pure from a good company!! not from amazon! cbd one or compassion health solutions in colorado! cbd reduces inflammation in the pancreas. something to look at!!!
gordie16 heather0315
Posted
Thanks Will look this up try anything at this moment
Shortie79 heather0315
Posted
Since you have PD your pancreatic ducts are getting clogged up, I'm just like you, I have Pancreas Divisium, but mine didn't really act up until I was 37 (currently 39). It took my doctors over a year to figure out I had two ducts and I also don't have my gallbladder. I've undergone 10 ERCPs to widen my ducts but they're too narrow and my scar tissue is becoming a problem. I'm having my pancreas removed, have they spoken to you about that? There's also a mutation markers test to screen for PC.
heather0315 Shortie79
Posted
I have talked to dr about stents! they wanted to so but I'm not convinced! my last ercp they nicked my bowel ans i woke with worse pancreatitis and an Ng tube in!they about killed me. I' m 46 and wow your having pancreas removed? i am praying for you!
vedawms heather0315
Posted
Has anyone suggested the Frey procedure to you? It might address your situation and avoid stents. It is a significant surgery, but it's got great results, from what I have read...
heather0315 vedawms
Posted
i will look that up! thanks!!!
gordie16 Shortie79
Posted
No its not a road I want to go down but thanks
Shortie79 heather0315
Posted
I've had a stent and it really didn't help. They're very temporary with our particular condition because of scar tissue and the body can reject it. I felt sicker with the stent in than without it. I'm having the islet transplant to my liver, so once my pancreas is removed, my liver will produce insulin and act like my pancreas. I'll be dependent upon digestive enzymes but I won't be a diabetic unless my liver rejects my cells. It's a last resort option, but at least it's an option.
gordie16 Shortie79
Posted
Hopefully it works for you best of luck
Sunflower13 heather0315
Edited
I know it has been quite sometime, but can i ask if the cbd oil is drops or liquid ? Am having horrible pain still in the stages of diagnosing . Had MRCP yesterday . I was given a prescription for Levsin . Doesnt do really much . Any suggestions even on the diet would be greatly appreciated . Thank you .