Posted , 11 users are following.
I am very new at this in fact I haven't even seen a rheumatologist yet. My GP is the one who did the blood test and found that my CRP was high. My question is what kind of numbers are we looking at as being high. Mine is 12.1. Is that just a little high very high medium high. I just like a ballpark as to where that falls on the scale.
0 likes, 21 replies
We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.
Judyg amkoffee
Posted
Hello, I'm sure There are very helpful kniwlesbke people who can give the ranges , on this forum. My CRP level has been has been as high as 85.
kitsalley amkoffee
Posted
elizabeth20640 amkoffee
Posted
i was diagnosed with PMR over a year and half ago,
first my CRP was 118 and then GCA, it was 128
i was obsessed with having my bloods done to get my CRP result.
but it was a good indication as to the inflammation that was going on inside,
my CRP is 3.1 hope this helps
kitsalley elizabeth20640
Posted
C-reactive protein is measured in milligrams of CRP per liter of blood (mg/L). Normal CRP levels are below 3.0 mg/dL. A standard CRP test often can’t even detect normal levels because they’re so low.
A high sensitivity CRP test can detect levels below 10.0 mg/dL. This kind of test is performed to determine risk for cardiovascular disease. Levels of CRP over 3.0 mg/dL are thought to put you at a higher-than-average risk for heart disease.
elizabeth20640 kitsalley
Posted
I'm reading from my blood test result
CRP.3.1. Mg/l. Range 0.0 - 5.0
kitsalley elizabeth20640
Posted
kitsalley
Posted
Looks like you're within the normal range to me.
amkoffee kitsalley
Posted
I know it's no normal simply because the test says high. But from reading the results from some of these others it not very high.
elizabeth20640 kitsalley
Posted
0.0-5.0
dea13 elizabeth20640
Posted
I have both PMR and GCA .. 3 months now, 6 weeks into it we found the GCA and I have been on 40mg pred for a month, doing blood next week.
Have you had and vision damage?
Many Thanks Cheers Dea
elizabeth20640 dea13
Posted
Hi Dea I started off with flu like symptoms, pain in my neck then pains in my thighs until I couldn't walk, got bloods done CRP was 118 doctor told me to go to A & E I was lucky then doctor in A & E got a rheumatologist to come and look at me and she diagnosed me with PMR,
I was on 20mg pred I was back at clinic on following mon and they told me to reduce after 2 weeks , I was down to 12.5 over 5 days which was too quick,
I went to eat and couldn't open my mouth and then headaches came on and I could see arteries bulging out at temple. I was back at hospital and was admitted I was in for 5 days and they did a biopsy and it was positive.
my dose was increased to 60mg pred, when I left hospital I was fine,and CRP was down to 70mg
But day after I developed severe headaches, so back to hospital and they were reluctant to increase pred and put me on painkillers but didn't work, couldn't put my head on pillow.
I cried with pain anyway a week later I lost sight in one eye but I was lucky it came back I had 3 episodes of this, it was the most frightening time of my life, my dose was increased to 80mg and I was fine except all side effects.
And down to 6.5 mg how are you doing
dea13 elizabeth20640
Posted
Hi, Thanks for your reply, sounds like you had a very hard time of it all. I am so pleased to hear you have your sight back and that you are on the lower Pred now, gives me hope .
I see my Dr tomorrow for follow up and will take it from there.
I have a few other issues at the moment also >
Cheers Dea
ptolemy amkoffee
Posted
FlipDover_Aust amkoffee
Posted
Here's something else to consider - CRP is not always raised in PMR! So although you have only slightly raised CRP it's not necessarily an indication of the presence or lack of PMR!
Other symptoms are also used in the diagnosis - not just CRP. Are you in pain, do you suffer fatigue? Have you lost your appetite/weight loss? Can you lift your arms above your head? Can you get out of a chair or car seat unaided?
amkoffee FlipDover_Aust
Posted
In answer to your questions my original appointment with my doctor was because I was hurting all over but because I have chronic pain from my back I am on opiates so this pain was superseded by pain pills. I can lift my arms above my head and as far as fatigue I'm always tired because of the medicine I'm on so I don't know that I wouldn't notice any extra fatigue. My sed rate has been elevated for the last couple of years. We haven't known why it's elevated and then when I went to the doctor and he discovered my CRP was elevated too he said I had PMR and referred me to a rheumatologist. I can't get in to see one until September. So I won't know what her opinion is until then.
Nolal2 amkoffee
Posted
I too hurt all over and felt like I'd been hit by a truck every morning when I got out of bed. I'd stopped my HRT 12-18months prior and was told by a women's health GP it was due to me just getting older. Every day I was so stiff and sore like I'd run a marathon. My family was sick of me complaining all the time. I recently restarted HRT creams and it's helped with some of the body aches and pains. I've done a lot of research and some websites state sudden drop in hormones can trigger auto immune response in some people. I'm still waiting for my Rheumo appt-2 months to go.
FlipDover_Aust amkoffee
Posted
It's all well and good for them to ask you to wait - in pain and unable to function. Honestly, where do they get off?