1. Community
  2. Bones, joints and muscles
  3. Methotrexate

CRP gone up again

Posted , 5 users are following.

Lisa_Batts
Lisa_Batts

So not feeling great went to doctors. Took my temp which showed at 37.8. Decided she didn't like that so used another thermometer which showed 37.1. Conclusion.... Virus. Every time a virus. Feel like it's a cop out. Does anybody else have this problem?

Also my bloods are regularly high at the moment and the doctor tells me I need to phone my specialist to see whether to take it. My specialist says it is the doctors responsibility so every fortnight I have to do battle to get an answer. My specialist has now faxed my doctors to tell them to make the decision but as they say they are not qualified enough on MTX my confidence is shot to pieces

1 like, 28 replies

28 Replies

Next
  • mrsmop
    mrsmop Lisa_Batts

    Posted

    Oh dear, poor Lisa.  I was told that only a Consultant can prescribe MTX and that is the person you need to see/speak to.

    It does seem as though you are constantly being fobbed off.  I have told doctors in the past, that I would prefer that they tell me they don't know, rather than waffling!

    I have the same problem.  My Consultant told me that if I have a problem, to contact his secretary, only she won't let me speak to him and I have an 'urgent' appointment in a month, which actually makes my follow up appt 2 months late.

    It does make me despair sometimes.

     

    • Lisa_Batts
      Lisa_Batts mrsmop

      Posted

      Lordy Lordy! It's never ending isn't it?!! I was told only the consultant can prescribe it but the doctor can manage the bloods and advise whether you take the MTX or not.... Only problem is somebody forgot to tell them that! 😂😂😂 letting them fight it out amongst themselves hoping it will be sorted by next weeks bloods..... Little miss optimistic! 😂😂 xx
    • mrsmop
      mrsmop Lisa_Batts

      Posted

      You have to be optimistic otherwise you'd just give up!

      The trouble is, all these doctors are only as good as their support and if their support staff don't do what they are asked to do, then chaos reigns!  [As we know!!]

       

    • joanne27239
      joanne27239 mrsmop

      Posted

      I feel for you Lisa, It's the same for me. If it's to do with the Mtx you have to speak to the consultant. But, if it's a problem caused by the mtx I.e. An infection. You have to go to your doctor.

      However, you have to tell the doctor most of the time what you can take or not!

      Hope you feel better soon x

    • Lisa_Batts
      Lisa_Batts mrsmop

      Posted

      We should start our own clinic! Well, if we didn't feel so crap 😂😂😂 xxx
    • Lisa_Batts
      Lisa_Batts joanne27239

      Posted

      Thank you! It's crazy but Mrs Mop taught me to re-educate them which is what I've been trying to do!! 😂😂😂 ☀️
    • mrsmop
      mrsmop Lisa_Batts

      Posted

      I think Mrs Mop has to devise a new plan!!

      I've stopped the MTX because of severe pain and left a message with my Consultant's secretary but don't expect to hear from him because i do wonder whether he has actually been told.

      My GP says that the Consultant is the person to deal with this.

      I suppose I managed somehow before I took the MTX, so I will manage again, though before I started the MTX,  I was taking Pred.

       

    • Lisa_Batts
      Lisa_Batts mrsmop

      Posted

      I think I need to devise a new plan too! Now on antibiotics as fever has got worse. 'So do I take MTX Monday or not?' I ask the doctor. 'Yes' she replied..... '100% sure?' Says I... Well unless you feel really ill.... 🙈🙈🙈🙈 😂😂😂 xxx
    • mrsmop
      mrsmop Lisa_Batts

      Posted

      It won't hurt to miss a week or 2 Lisa, you could try missing Monday and if you feel really rough, you can always take it on Tuesday, or leave it till the following Monday.

      I make a note of when I miss it - and any other drug that I am taking.

       

    • Lisa_Batts
      Lisa_Batts mrsmop

      Posted

      Phoned consultants registrar yesterday lunchtime as I was dubious of the doctors 100% take it.... And actually got a call back about 4pm today saying definitely don't take it!! So not taking it this week. I like to be told when I can't take it or I think if left to my own devices I would miss it out often 😂😂😂😂☀️☀️😊 xxx
    • mrsmop
      mrsmop Lisa_Batts

      Posted

      It's back to this thing that I was told, only Consultants can prescribe it, so it seems reasonable to go back to them to ask the question and their Registrars will be closer to them than your GP.

       

    • Lisa_Batts
      Lisa_Batts mrsmop

      Posted

      Yes but the registrar has now actually written to the doctors to tell them how to make the decision which didn't work out too well 😧😧😂😂 so I phone the registrar which annoys him but as my friend Casey says 'they are bothered and annoyed anyway' 😂😂 xxx
  • david60784
    david60784 Lisa_Batts

    Posted

    Hi Lisa

    Trying to support you. The doctor is right he did NOT put you on meths. The problem is Consultants want to keep you off the waiting lists as it looks good for them. This course of action works BUT can annoy the consultant hey at the end of the day we patients count. Ring the hospital get the switch board operator to put you through to your consultant. If the switch board operator queries who you are say ( do you realise who I am ). If you are TOTALLY fed up with you consultant ask your MP to write to the Health Secretary. IF that fails write to the local PRESS , The PRESS LOVE gossip and they will take the matter further. ALL the best

    • Lisa_Batts
      Lisa_Batts david60784

      Posted

      Thank you David. I have the consultants secretary's number but she is rarely there and it took him 8 days to phone back last time. Usually in fighting fit form I would be doing all you suggested and haven't ruled it out yet! Thank you for your support 😊
  • david60784
    david60784 Lisa_Batts

    Posted

    Hi Lisa

    Forget speaking to consultants secretary. Get the hospital switch board operator to put you through to the consultant. I am on the PPG committee at the doctors. We have new people on the reception. Went to doctors recently receptionist said next available appointment 2 weeks. I LAUGHTED said to her ( I am off to A & E ) that will cast the surgery £ 72-00 . O wait she said 12-30 appoinmeny ok I said yes.  PLEASE do not be fobbed off.

    • Lisa_Batts
      Lisa_Batts david60784

      Posted

      I've taken a screen shot of that thank you. I appreciate what you are saying but they WILL NOT put me through to the consultant. What can I do? I had an hour and a half meeting over at the doctors and they have put 'special measures' in place for me including my own secretary to speak with. So far
    • Lisa_Batts
      Lisa_Batts

      Posted

      Whhops! Swollen fingers hit wrong button. So far it has not made much difference. Will keep trying 😊
    • david60784
      david60784 Lisa_Batts

      Posted

      Hi Lisa

      Where about are you in the country ?? we may be able to make contacts with colleagues I have a BIG network .

      I am active in  many parts so are my colleagues re the NHS.

      We monitor the NHS, daily BUT NOT politically against ANY party. We appreciate each party has a voice and that is important.

    • mrsmop
      mrsmop david60784

      Posted

      I love the notion of being put through to the Consultant,  can't see that happening here!!

      Mind you,  I have found an email address for mine - he is heavily into cancer research too, so the email address is at the Cancer Institute.

      Where are you based David - are you England only?

       

    • Lisa_Batts
      Lisa_Batts david60784

      Posted

      I'm in Essex. What is it that you exactly do to help? I can't get near my consultant....
    • Lisa_Batts
      Lisa_Batts mrsmop

      Posted

      😂😂 what a notion. I can barely get through to his registrar these days! Who I don't trust

      I tried to find his e mail but couldn't. I would imagine they are screened too xxx

    • mrsmop
      mrsmop Lisa_Batts

      Posted

      My Consultant's secretary has just telephoned me and said 'I have discussed your condition with Dr... and he is happy to see you on March 31st.  If you are in pain in the meantime, go to your GP'

      She sounded so arrogant.  The whole point, is that my GP isn't qualified to deal with this, that is why I was referred in the first place.

      I've got other things to worry about at the moment!!  My boiler decided that yesterday would be a good day to flood the place!  Fortunately, it is/was water and not oil, which it could have been.

      Oh life is such fun, isn't it - but hey, the sun has come out to play.

       

    • Lisa_Batts
      Lisa_Batts mrsmop

      Posted

      Mrs Mop,

      Poor poor you. It's things like boilers going that we really can't cope with on top of everything else. Sending you hugs..... March 31st? What's your secret? How so fast? 🙊🙊😂😂 you have to laugh or....... Sending you ☀️☀️☀️ Thoughts. I'm now off to rest my fever. At least it gives me an excuse for watching box sets I haven't opened! Every damn cloud right? 😂😂😂😂 xxx

    • mrsmop
      mrsmop Lisa_Batts

      Posted

      The boiler is fixed, it was a washer!

      The sun is still out, which is nice.

      Box sets seem like a good idea!

      My friend came this afternoon and now I am exhausted

      Hope your fever decides not to hang around Lisa.  

      My washing machine is washing and drying the several thousand [ok, so I exaggerate a little] towels that I used to mop up the water.

      Tomorrow is another day - hoorah!

       

    • Lisa_Batts
      Lisa_Batts mrsmop

      Posted

      ☀️☀️☀️☀️☀️☀️☀️☀️☀️☀️☀️☀️😊😊😊😊😊😊😊😊😊😊😊😊😊😊😊 happy news. The sun is out here too. Mum and Dad visited so I'm worn out too. Antibiotics kicking in and have to miss MTX Monday due to infection ☀️☀️☀️☀️☀️☀️☀️☀️☀️😊😊😊😊😊😊😊😊😊😊😂😂😂😂😂 xxx
    • mrsmop
      mrsmop Lisa_Batts

      Posted

      It has been a lovely day here today but the sun did a bunk quite early, at about 2 o'clock.

      It's nice to see people but it is quite exhausting, isn't it?

       

    • Lisa_Batts
      Lisa_Batts mrsmop

      Posted

      It's lovely to see people but yes exhausting. I had my windows cleaned this week and for the first day of sunshine a bird decided to poop (quite a large bird by the look of it!) on my window. Have they no respect for MTX? 😂😂😂😂😂

      Now laying back and getting lost in The Legacy. 😊😊😊 xxx

Back to top
Next

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.