crp levels
Posted , 10 users are following.
just just my test results back. my CRP is 1.3 normal is 0.0-1.0. I know this has to do with the liver. Now what is this, one thing after another. Getting really scary over here. Please advise. Thx
0 likes, 9 replies
FlipDover_Aust karen81902
Posted
CPR is a substance produced by the liver that increases in the presence of inflammation in the body. So the test 'measures' the level of inflammation you have.
However, returning a 'normal' result doesn't automatically mean you don't have PMR.
Daniel1143 karen81902
Posted
First of all, as my doctor often warns me, these tests are notoriously inaccurate. So do not read too much into it. Second, a CRP reading of 1.3 is effectively zero. My first reading was 17 and my doctor didn't flinch. Some folks are materially higher.
constance.de karen81902
Posted
Don't panic, Karen. Your CRP reading is very low. Mine was over 100 for quite a while at the beginning of my PMR journey (nearly 5 years ago)! It is still between 20 and 30 - and I'm not dead yet!??
You really must try and relax. Gettng 'up tight' about everything will affect your pain and discomfort.
All the best from Constance. ??
EileenH karen81902
Posted
CRP is not "to do" with the liver, no, it is manufactured in the liver in response to tissue damage elsewhere in the body. There are two ways of measuring it and the one usually used for us is used to monitor the prescence of inflammation in the body in much the same way as the ESR (sed rate). Both of them are very non-specific and colds and many other things will cause them to rise. In about a fifth of PMR/GCA patients they don't rise at all. Yours is only very slightly above the "normal" range and in this context, especially if it was higher earlier, means your inflammation is probably fairly well managed by the pred, It isn't a reliable measure though and the doctor should be treating on the basis of symptoms not blood tests. Nor, as Flip has said, does a normal reading mean the PMR has gone away.
I replied to your post on another thread about "acceptance". I know it is difficult but try to relax a bit about having PMR. If you devote the energy you are expending in fighting and getting into a panic about everything you will find life with PMR much easier. If you have to have an autoimmune vasculitis, and of course none of us WANT one, PMR is preferable to most of the others! It may be a pain in the anatomy but it isn't life-threatening and can be managed well with pred in the vast majority of cases. Other forms of vasculitis are not so benign and need drugs more often used as chemotherapy with even worse side effects than pred - yes, that is possible!
andrea93419 EileenH
Posted
Hi all,,, I just want to thank Eileen for Her positivity over PMR,,, I've have it since January 2015 and over that time I've struggled with the 'acceptance' of having this condition! This site has been a Godsend, especially Eileen, finally now and only now 19 months on am I totally relaxed and in acceptance of it!! Eileen is so right, it could be an awful lot worse with some other auto immune conditions!! I'm off on holiday in 6 days time, I'm pacing myself by doing a little packing each day, what used to take me a day takes me 5 days now, but there are lots of people in a cemetery that would like to have our condition! Xxx
Anhaga EileenH
Posted
God, grant me the serenity to accept the things I cannot change,
Courage to change the things I can,
And wisdom to know the difference. ( Reinhold Niebuhr)
That was in 1967.
It took until getting PMR nearly fifty years later to understand it. Still not very good at following it.
jo42444 karen81902
Posted
jo42444 karen81902
Posted
RD_Swede karen81902
Posted
2008. As you see there is hope.. When starting pred I was told I was lucky to get an illness that can go into remission even if it took me 3 1/2 years.