CRP levels in polymyalgia rheumatica
Posted , 9 users are following.
CRP level in my blood tests came in. They are 187 mg/l. Dr says high inflammation present. Started 20mg Preds on Monday. Now pain has become a dull ache but feeling lethargic, weak and generally ill. is this the way of this condition.
0 likes, 9 replies
rachel24455 maria49950
Posted
So sorry Maria but yes, this is it! Many more experienced commentators on here, but for me, the fatigue went after 6 months - or I learnt to pace my day. I think I'm back to 75% of where I was 8 months ago - but couldn't have done it without the support of this forum. And the new puppy! I was 51 when diagnosed and could not believe it. I now realise I have other autoimmune diseases, or its all one big auto immune diseas.
Really recommend the book, and taking advice from fellow sufferers.
YOU WILL GET BETTER!
maria49950 rachel24455
Posted
EileenH maria49950
Posted
Give it all a chance - but yes, I'm afraid the feeling ill bit often takes quite some time to resolve - it is due to the autoimmune disorder that causes the inflammation. The pred only wipes up the inflammation and doesn't really do anything to the underlying illness. Nothing does. The fatigue must be managed by pacing and resting and learning how to live with the gorilla of PMR.
celia14153 maria49950
Posted
Hi Maria, it took a few days before I got the benefit of Pred. I went up to 25mg for three or four, then 22.5mg, then back to 20mg. Fatigue levels vary from day to day, and if I know I'll with my grandson I ensure I have a relaxed day afterwards. I'm also learning how to pace - it's so tempting to do what you used to when you're on a good day, but no good comes of it. Ironing has to wait. Rachel's right. You do adjust and we will get better 😄
adette01750 maria49950
Posted
Hi Maria,
Im sorry for your diagnosis, yes I was 53 last year on my diagnosis of PMR, it was a gp that diagnosed it and as the hospital(s) did not agree initially, other investigations were done and hey presto, x3 auto immune disorders finally confirmed, PMR, sjogrens and Hashimotos auto immune thyroiditis.
The fatigue and pains seem to be common in all these diseases, and now with the prednisolone, my pain is under control mostly, but the pain of the bursitis of my left hip not under control, fatigue is the most debilitating symptom I think at the moment.
A year ago I was on 30mg of prednisolone now on 8.5 mg, so I don't feel too unwell, apart from side effects of the Plaquenil and azathioprine, but they are improving, so there is hope for you as you control your life activities and reduce medicine levels.
The trick is to pace, on a good day don't go crazy, still rest and do things at a slower pace, as you will just crash and burn again, I know it all sounds like pampering, feeling you are prescious, but it is a must, you have to come first for probably the first time in your life, but if you don't you won't be any good for anything or anybody.
Do take care!!!
Michdonn maria49950
Posted
maria49950, came down with PMR about a year ago, notice some relief on 20 mg of Predinisone, but took about 2 weeks before I was PMR pain free. Let the meds try and control the symptoms. I will not reduce if I am not PMR pain free. Good luck on your journey, I have a smile on my face moving forward.🙂
Anhaga maria49950
Posted
Maria, just be aware, as the pred helps you feel better, that you must continue to get enough rest. Don't make the mistake so many of us do in the beginning of trying to do too much on a day we feel well, and then paying for it the next day!
Michdonn maria49950
Posted
Yes maria49950, pace yourself, listen to your body. When PMR pain free, do a little, maybe a walk, rest and walk back. When that is comfortable increase a little. I tried to do the same walk for a few days, making sure I was not over doing it before increasing. Good luck on your journey. Keep smiling! 🙂
pauline36422 maria49950
Posted
i am on my second journey down to 3 mg after a couple of flares, but i am feeling good generaly