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hi have was diagnosed with CRPS in Jan 2015 this year, I had a slip fall in November last year and ended up with soft tissue damAge only. Was expected to have full recovery within two weeks. My dr is a total dick and had no idea what was going on. A month latter my hand is still swollen and burns like someone is holding a blow torch to it if touched and it twitches and shakes. I also has what feels like ants running up and down hitting me. Was refers to a physio. She was great to begin with. Said she thought I had CRPS and needed to see a pain specialist even recommended one to my Dr. My dr did not think was nessasary and kept giving me talks about how the tissue is complex and sometimes needed extra time to knit back together. My fall was at work so was on compo. The insurance company was getting a little unhappy by March and sent me to their specialist. By this time I had had, MRI, ULTRA SOUND AND X-RAYS. the insurance company's specialist confirmed the physio diagnose as CRPS and early adhesive capilitus. Recommended I see a orthopaedic surgeon and a pain specialist. This took me till mid March when a return to work specialist was added. Fantastic lady! She comes to all my GP appointments and was instrumental at getting me an appointment with the surgeon. Still no pain specialist. As gp still did not think was nessasary. My hand is still swollen, red, extremely painful scale of 1-10 sits at a 3 at rest and 10 if touched. It now fells like it's not my hand and does not respond to my commands. Tell little finger to move and thumb may wiggle. Very strange and upsetting. I see the ortho and he say we are going to become best friends over the next two - three years. Says I have CRPS IN MY HAND HAS SPREAD TO MY SHOULDER. he recommends a pain specialist (ps) Finally in June I have my first appointment with the ps. Yep he says I have CRPS. MY Gp still not understanding what this is. I know more about than he does! After a heap of drug trials with the Ps and three ganglier blocks I have now been recommended for a sprinkling cord stimulator trial. This is where my physio( how I have been seeing since Jan ) becomes a little hostile and rights untruths to the insurance company. This is quickly dispelled by my return to work specialist. I have had the first part agree to with the insurance. Eduction on the spiral cord stimulator (scs) this involved the procedures starting with a trial implant . Then she explained that I will have a blood work up to make sure I have no infections and that I need to see a dentis to make sure not issues as this could cause an infection during the trial implant or final implant. I then spent an hour With a psychologist. 200 questions all about me,family live and my disease. This is all to make sure I am the right sort of person to cope with the implantation. I would love to hear other people's stories with CRPS AND IF ANYONE HAS HAD A SCS implanted.
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