CRPS FROM LUMBAR SURGERY???
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My orthopedic surgeon diagnosed me with CRPS 13 months after a lumbar fusion. That was 5 years ago. Now my pain management dr, that has treated me for these 5 years , says I do not have CRPS because you can't get it from a back surgery.
WHAT?? I was dumbfounded!
Has anyone else contracted CRPS from a back surgery???
I have all the symptoms of CRPS. I tend to believe my surgeon and my symptoms. But I've been being treated by a dr that I thought knew my diagnosis and was treating me for CRPS for 5 long years!!!
I've researched, and in a group of 35, 1/3 of the patients that had lumbar surgery. got CRPS in one or more of their lower limbs. Mine starts in my butt cheek, down my leg and out my toes. I had another emergency lumbar surgery in 2016 and CRPS spread to my other leg and foot. It has also spread to my waist and one of my elbows.
Please respond if you got CRPS from a back, lumbar or cervical surgery.
Thanks!
Browneyes58
0 likes, 2 replies
sharon_88951 browneyes58
Posted
I had 3 operations number 1 fusion on my back then 2 to fix fusion then 3 my back that was 2010 then my crps came in 2014 so it is possible because I happen to me done a crps program help a bit but been told for life and don't I know it the pain is out of this world would not wish on anyone cannot take because I have block spend most of my time in tears or sleeping hope this helps I wish you well brown eyes
browneyes58 sharon_88951
Posted
Thanks for your reply Sharon 88951. I'm always so sad to hear of someone else that has this horrible disease and I'm sorry to hear you have it too.
I got CRPS from a revised lumbar surgery too. I had L-4 - S1 fused in 2005 and after about a year of recovery, I was doing very good. I never had back or leg pain....not even a twinge. Then March 2012 I was rear ended by a truck and a car. It broke the fusion and caused hardware failure. When I woke up from the revision fusion surgery my left leg was swollen twice the size of my other leg. It was a funny, shinny color, I couldn't lift it off the bed or wiggle my toes. Also, I had the most excruciating, burning pain starting in my butt cheek, down my leg and coming out my toes! I went through lots of therapy to regain use of my leg and foot, but the burning, sensitivity to touch, creepy crawly like bugs under my skin, swelling, profuse sweating. changes in hair and nail growth, insomnia, unable to stand or sit for very long, and the list goes on and on of symptoms! I've had so many sympathetic nerve blocks that I've lost count, epidural steroid injections, hardware removal, acupuncture, PT. OT, massage therapy, tried every pain medication on the market, Lyrica, Gabapentin, I finally got an intrathecal pain pump December 2014. It helps some. but it's just another tool in the tool box....not a cure and far from controlled pain management, but it does help some days.
My PM dr is not aggressive and treats me lake all his other chronic pain patients across the board. He does not do Ketamine or alcohol drips or anything really for CRPS . I'm still shocked that after going to him and thinking he was treating me for CRPS for the past 5 years is mind boggling to me! I think I need to find a new PM Dr but I don't even know where to start and I'm not sure I have the strength to find a Dr that would treat my CRPS, treat it aggressively and take me with a pain pump another Dr implanted! I'm list and don't know what to do. Guess I'll go back to the orthopedic surgeon that diagnosed me with CRPS in the first place and see if he can help me find a new PM Dr.
Sorry for the rambling!
Browneyes58