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CRPS questions

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kimmywalters.kw
kimmywalters.kw

So my initial injury was due to a fall at work January 8 2014 which resulted in posterior and anterior labrum tears in both of my shoulders. After I would experience severe pain and swelling which gradually over time it has moved all the way to my fingers in both arms. my arms also turn red to purple during these "fits" as I call them. I wasn't diagnosed until a month ago and was limited on treatment. I found out a month after the accident I was pregnant with twins who are now 5 months old. The doctor has me on a medication regimen and I have been in PT for 8 months now. They are suggesting series of nerve blocks to help with the pain. Doctors say doing laproscopic surgery will not help. They are basing from the amount of time and symptoms that it is most likely stage 3. It's so bad now most days I can't even lift my arms especially my right arm which is much worse, more or less carry my children or play with them the way I want to. I refuse to go on disability because I am only 23 and will not except defeat at this point. Does the constant pain or gits ever stop? And do nerbe blocks help? Thedoctor's are starting them asap, they are worried about me losing complete use of my arms. Any advice is welcome. Thank you

1 like, 3 replies

3 Replies

  • PamCRPS_TYPE_2
    PamCRPS_TYPE_2 kimmywalters.kw

    Posted

    Nerve Blocks do work or help temporarly,This is a monster to fight and its

    so complex.The mili-disiplinary angle is so unnerveing,cause  we dream of anwers not bandaids.I feel so bad for you at such an early age as well you have so much need to use your arns and hands that are a must to live life.(WE MUST FIGHT AND NEVER GIVE UP THE DREAM OF HELP ) I have been in a nightmare since 2008 after a surgery that caused my Type 2 CRPS. I am never giving up,I want them to do a permanent block with a catheder I saw on a man on Dr.Oz show. Stem cell injections are a hopeful arena. I so hope and pray for you to find relief as I wish no one else to suffer this inhumanity with little or no help available because of its complexity. We that suffer need each other,cause we understand the most. hope anything I said helped.

     

  • carol91733
    carol91733 kimmywalters.kw

    Posted

    Hi Kim OMG!! You poor thing so young too and with little babies, its seems CRPS is limited in the UK as not enough specialists know enough about it, I wish I could tell you I have had loads of help with CBT, Pain Clinic etc but for the last three years I have been battling on my own trying to keep myself on my feet, its really very hard especially when the swelling and pain takes over you its awful!! The only advise I can help with is where in the UK are you based, there is a Clinic close to Bristol which is where I live but getting into there seems an impossibility due to funding issues?? 
    • kimmywalters.kw
      kimmywalters.kw carol91733

      Posted

      I'm actually from the us, I have only recently found a support group that is both uk/us.

      There aren't many that know much about it here either. I went to 7 different doctors including 3 surgeons before anyone could properly diagnose.

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