CRPS type 2 / atypical symptoms
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My arm was injured last year due to a cycling accident. I have been left with damage to ulnar nerve, and persistent pain. I have self diagnosed CRPS but healthcare workers seem reluctant to give me this label, saying I don't have enough symptoms. I previously had abnormal hair and nail growth; this seems to have stopped but my affected fingers have recently become very stiff and somewhat discoloured. I have muscle wastage and the affected area is always colder than the other side. I have read the diagnostic criteria for CRPS type 2 (i.e. caused by a nerve injury) and i do meet these.
I guess I wonder if type 2 does present in a different way; for example, the pain doesn't normally spread around the body. The problem is I understand this to be a very rare condition. I wonder if the doctors just don't see that many people like me. Has anyone else had "atypical" symptoms, or do you have any info on the differences in presentation between CRPS type one and two?
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sparrowhawk.
Posted
Update. There's so little written about CRPS 2 that I thought others might find this helpful. I saw a peripheral nerve specialist and he wants to operate to move the nerve and potentially graft it. This operation completely eliminates pain in 30% of people and improves it in 40% of others. My injury is complex so this would not necessarily apply to others. But I would urge anyone who has chronic neuropathic pain/CRPS 2 to get a referral to a peripheral nerve specialist. You can be seen on the NHS, google it. I was sure my pain and situation was different to CRPS type 1... I was right!
robin93893 sparrowhawk.
Posted