CT scan
Posted , 4 users are following.
did not show anything at all, so that is not helping figuring much out. The gp says it is migraines causing the pain in the eye etc now.
1 like, 15 replies
Posted , 4 users are following.
did not show anything at all, so that is not helping figuring much out. The gp says it is migraines causing the pain in the eye etc now.
1 like, 15 replies
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MrsO-UK_Surrey
Posted
That result must offer you both relief and frustration at the same time. Not quite sure how to look back on your previous posts with this new system yet so not sure whether or not you are under a rheumatologist. At least you are alert to the risks, so if there are any new or worsening symptoms you will know to seek emergency advice. Do hope the eye pain eases soon.
MrsO
EileenH
Posted
I do hope they can find out what is causign the trouble but unfortunately if it one of the rest of the group of autoimmune arthritis/rheumatic/connective tissue things it is very difficult for them too. At least they are already looking - it is common for patients to go to the doctor for years before they are taken seriously and a cause for the problem looked for.
all the very best in the hunt and keep in touch so we know how you're doing,
Eileen
mrs_k
Posted
I suffered from migraine, more years ago than I can remember. I found Feverfew tablets did the trick. But as you are other medication, if you are going to try them, talk to a Pharmacist first about compatibility.
I also grow Feverfew and have a leaf or two in a sandwich. But not once they have flowered. You can google it to see what it says.
Snaggler
Posted
MrsO-UK_Surrey
Posted
Some other sufferers of PMR who post both here and on the other site have thyroid problems - possibly an auto immune link here.
I have a problem with my sole kidney in that it was found through a blood test a couple of years ago to have reduced function
(not filtering out at the normal rate). The blood test concerned is an eGFR (estimated Glomerula Filtration Rate). In a person with normal kidney function this should read 60 and above whereas mine read 50. I now have 6-monthly eGFR blood tests and the readings have varied between 44 and 50. This doesn't appear to be linked to either PMR or the steroids but possibly to an anti inflammatory during my year of undiagnosed PMR or to the contrast medium (dye) that was injected during a CT scan in the hunt for what was causing my pain - no doubt the fact that I had only one kidney wasn't taken into account with the amount of medium used.
Someone posted recently on the other site that a test result had also revealed a kidney problem; however, everything was later confirmed to be normal and I do hope this may turn out to be the same in your case. It could even be a minor infection which can be resolved with antibiotics or simply a case of dehydration. Whatever the problem, my tip is to ensure you drink lots of water.
Best wishes,
MrsO
Snaggler
Posted
MrsO-UK_Surrey
Posted
Having only one kidney I am paranoid about what I put into my body as regards medication but both my GP and my rheumatologist said that Prednisolone would not harm my kidney and in fact it was actually prescribed for some people who had kidney problems!
I noticed in one of your other posts today you referred to swollen glands but I've been unable to get back to that post. Is it the glands in your throat/neck that are swollen? I ask this because a year ago I suffered from persistent swollen glands in my neck following a severe mouth/throat infection. I was tested for another auto immune disease called Sjogrens Syndrome - apparently when you have been diagnosed with one auto immune disease, it isn't surprising to encounter another! Other symptoms of Sjogrens are dry eyes and mouth. As there are other auto immune illnesses that can affect the kidneys, a rheumatologist should be able to investigate further and perhaps you should also ask your GP to refer you to a renal specialist. I do hope it at least helps to know that it is unlikely that the Prednisone is adversely affecting your kidneys.
MrsO
Snaggler
Posted
mollycoo
Posted
interesting to read you are a migraine sufferer, I hadn't realised that you were. I was a regular sufferer until starting the pred. I had a whole year migraine free whilst on the higher doses, but since being on 5mg and less, they seem to be cropping up again but not as frequent as before pred. I know of other people who have had the same experience. Has it not been the same for you? Cheers, Molly.
Snaggler
Posted
mrs_k
Posted
I cannot remember if you have GCA as well as PMR. If you do not have GCA, I would suggest a long conversation as quickly as possible with your GP.
I would like you to get GCA ruled out completely by either an Opthamologist or Rheumatologist who specialises in GCA and GCA.
Snaggler
Posted
mollycoo
Posted
I'm so sorry to hear of your relentless headaches.Years ago when I was much younger, I used to have very frequent migraines, just getting over one and another one starting, that sort of thing. I know how miserable it is and I feel for you. I wonder if you are on other medication that could be causing the headaches. What does your GP say about it? You could try feverfew, some people find it helpful although it did nothing for me.I used to get pain behind the eye with a really bad migraine. I also notice in your previous post that you have a thyroid problem. I have an under active thyroid and take thyroxine daily. I've never had symptoms from this problem and knew nothing about it until it was picked up in a routine blood test. I hope you get some relief soon with the headaches, they can be very debilitating. Cheers, Molly.
Snaggler
Posted
EileenH
Posted
all the best, Eileen