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Ct scan shows chronic pancreatitis and possible colits....

Posted , 5 users are following.

vallery24040
vallery24040

Anyone have experience with this??? I have an appointment with a GI tomorrow what should I expect???

1 like, 4 replies

4 Replies

  • kay82451
    kay82451 vallery24040

    Posted

    I have ulcerative colitis but had acute necrotizing pancreatitis.   Are you having bouts of pain ?  The colitis I’ve had for over 10 yrs.  that is all about diet. So much bathroom time.  The pancreatitis is also diet, low fat, no alcohol at all and no smoking. Both are life changers !!! 

    Hoping for the best for you.  Let me know what the GI says.  They are not all up on the pancreas and it’s issues.  If he seems wishy washy I’d find some who specializes in the pancreas.  That is who saved my life.  

  • Shortie79
    Shortie79 vallery24040

    Posted

    I agree with Kay in regards to the doctors. I have chronic pancreatitis due to a congenital abnormality called Pancreas Divisum. I was born with two pancreatic ducts that never fused together. The ducts get clogged up and cause an attack. It took the doctors over a year to diagnose me because the tests didn’t reveal the two ducts except the MRCP. I was already on a low fat diet because I don’t have a gallbladder or appendix. You really need to see a good GI doctor that specializes in the pancreas or see a pancreas specialist. In my experience my GI doctor thought my symptoms were IBS related even after the Pancreas Divisum diagnosis. I knew my body and knew the pain and weight loss wasn’t IBS. The pancreas specialist performed an ERCP and I was diagnosed with chronic pancreatitis. I go every other month for the ERCP to widen my ducts. However depending on the condition of your pancreas an ERCP can also be used to treat chronic pancreatitis. Each individual is unique and treatment is also unique. 
  • vallery24040
    vallery24040

    Posted

    The Dr they made me an appointment with specializes in the pancreas... I just really don't understand it though because I've never had any kind of bowel issues and never had pancreatitis... I do smoke but haven't had a sip of alcohol in almost 5 years... Guess I'll be quitting smoking too

    • Shortie79
      Shortie79 vallery24040

      Posted

      That was my problem too, I had no history of any pancreas problems even though I was born with two ducts. My condition is very rare and usually discovered during an autopsy. I started vomiting in 2016 after starting a new medication. I thought it was the medicine, so I stopped it but the vomiting continued. Then the pain and all other symptoms started and never let up. I went through many tests/scans until I was diagnosed. From what I have read usually with pancreatitis people get severe diarrhea but I had the opposite and my blood work was normal … the doctors couldn’t figure it out until my two ducts were found. You can get pancreatitis many ways and not know it. The pancreas specialist will go over everything with you. Just remember you’re not alone and we’re here for support. 
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