Posted , 19 users are following.
Has anybody regained the sensation in their feet after being diagnosed with neuropathy?? I can't detect temperature and feel like my feet are dead. I'm only 20 years old. I can't live like this. I'm depressed and honestly can't see myself living through this.
0 likes, 20 replies
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marshall71 mia31663
Posted
No cure for PN I have small fibre neurophathy chronic ask your doctor
To get you too see a pain management doctor who will work with you
With what drugs you can take and how to manage the pain
I use slow released tramadol and gabapentin plus lidocaine patches for my feet
They work very well.
I also can't detect any temperature in my body I am always cold same with my feet
Only had this disease a year I'm no longer working because the pain is also in my hands can't feel the
Pedals on a car
To beat depression I keep my mind busy listen to music or read a book
I also play the guitar but that's effected by the carpel tunnel in my hands
If you are in the UK
Ask too see the top specialist on PN he's in oxford I spent a day with him having tests
Done plus DNA done
Its a horrible life lone disease try and be positive attitude towards this illness its not easy I know
I am 45 and feel my life is over
rebecca25796 mia31663
Posted
I am sorry you are having such a hard time, you are very young to have to deal with something as challenging as neuropathy.
Do get yourself properly checked by a good doctor. Use the pain relief you are offered. The medication can take a while to work, and the side effects can be difficult at first but as your body adjusts it all becomes easier.
Depending on where the nerve damage originates a doctor can advise wether physio, Pilates, yoga or similar may help.
And finally I do understand how terribly life changing a neuropathy diagnosis can seem - but truly much can be often be done to help. Give it time. Get all the medical help you can. And tell your doctor how desperate you are feeling, there are organisations to help with that too.
Best wishes,
Rebecca
waynescott rebecca25796
Posted
I also have severe nerve pain in my foot (cronic regional pain syndrome) currently on morphine to control the pain, but after seeing a consultant at Walton neurological centre in liverpool, they are putting me forward for spinal cord stimulation operation to try and reduce my pain. Try and get an appointment with a pain management consultancy and see if there may be a way forward for you. I feel for you I know exactly how it's affecting you. best wishes wayne.
phRN waynescott
Posted
tricia75754 mia31663
Posted
mia, please don't give up. You can live thru this. You will learn and adjust. I know it's harsh at first. The reality of having a medical condition. It's upsetting, I know. But you will adjust, and come into acceptance of it. Just remind yourself everything will be ok. You can do this today, sometimes we can't handle if we look to the future of being this way. Just focus on today. Ok that's my pep talk, lol.
I developed neuropathy after being in a coma for two weeks. Talk about the future looking bleak. I couldn't even turn over in bed, let alone walk. I soon worked my way up to it. The neuropathy sucked once I was up and around, because it was so painful to be on my feet. I used to love to walk. I still do, just cannot go for a long time. I have to measure out my energy and pain.
I'm a nurse, So I really love learning about the human body and conditions. Unfortunately, I didn't find very many answers. This is what I learned.
The nerves, have synapses that connect them and relay messages on what to feel, like pain, warmth, cold. It's like a rope cut into 10 pieces, then the way the connect is by a spark one piece to the other.
In neuropathy, the ends of the ropes get frayed. And the spark is misfiring. Sometimes the wrong informing is being relayed. This is why we get spark of pain, or feel cold, and feet are warm to touch, ect.
The doctors have told me that damage to mine is done, permanent.
But there is allot you can do to help arrest this process. The main thing is good circulation. Do anything you can to do that. Exercise, don't smoke, I do foot exercises. I do yoga to teach my body to balance. Try and be just as healthy as you can. Exercise helps with those feel good hormones, endorphins, this will help with depression too.
Get on with your life. Don't let any physical condition keep you down. Be the success person. Hardly any one knows I have this condition, because I refuse to let it define me. Life doesn't happen to me, it happens through me. I decide what my day will be like. I make and keep plans.
For example, I went to Disneyland yesterday with my hubby and nieces. We had a great time, but after 3 hours I was ready to go, and that is fine.
Don't be hard on yourself, we are all learning and growing along the way.
Take care today and do something for YOU. spoil yourself. Get a pedicure, foot massage, ect.
mia31663 tricia75754
Posted
Thank you for the support! However, I'm in college and in a sorority...all my sisters drink and party and I'm scared I'll never be able to do that. It makes me feel so alone and weird
Burnfeet tricia75754
Posted
Hello there I'm new to the site, I've been prescribed amatriptyline 10mg for a burning/numbing/ disabling pain in both my feet I've had lots of blood tests an X-ray plus recently a nerve conduction test, for a possible tarsal tunnel diagnosis, witch I am awaiting results, The pain is worse when I'm at work placing pressure on my feet!! It's almost disabling very scary!! I'm scared I won't be able to work anymore! And these tablets are not exactly making me feel great! I'm worried for my future, and not sure weather to carry on with the amitriptyline or not. Will it be a cure or just a pain reliever!!! So Will I end up on it forever, if no cure is found for my burning feet, would like to talk to someone who has same problems?! Thank you :-)
tricia75754 Burnfeet
Posted
Yes, I feel for you. I know it's very painful and debilitating. I'm on nortriptyline for it. And pain meds. These keep my pain under control so I can work. As of yet, we just treat the symptoms. Hang in there..
Burnfeet tricia75754
Posted
Do you think amatriptyline is right for this issue as I'm worrying if it's the right road to go down!!! Thank you for replying, I feel like I'm letting everyone down. By just not being able to do anything!! Thankyou
cabonick mia31663
Posted
I feel the depression as well. It may sound to a degree kind of funny but if I'm out and about I'm actually kind of jealous of people who can wear shoes. I'm relegated to Crocs and flip-flops
tricia75754 cabonick
Posted
john70350 mia31663
Posted
i cant really help you because i not a practitioner, but i can only tell you what help`s me. i have been in the same position as you since the year 2000, the thing thats help`s me the most after a lot appointments in pain management for this condition, i ended up up by taking gabapentin tablets daily and also a patch that stick`s on my body just like a large sticking plaster called.
transtec
70 micrograms/h
transdermal patch
buprenorphine
which i believe is morphine based, i change this patch every other 3 days. it doesn`t entirely stop the pain, but it makes life a lot more bearable. hope this help`s you, all the best.
Burnfeet mia31663
Posted
So the LATEST UPDATE on my FEET!!! I've had the results for my nerve conduction study back everything normal
And was also given an MRI witch also the results were normal!!! Was very deflated with the results, even though I know it's very good everything is normal!!! I'm still in pain everyday, I thought I was going to finally see some light at the end of the tunnel!!! So they can't even tell me what I'm actually sufficiently with it's been several different diagnoses now! So carry on looking for answers i spose!!!