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curious as to what age you all were, when you first noticed your symptoms ?

Posted , 10 users are following.

emily253
emily253

Wondering what age everyone was when they first noticed the symptoms, and what age you were actually diagnosed? Just curiosity !

0 likes, 16 replies

16 Replies

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  • emily253
    emily253

    Posted

    I should post, i'am 34, and just diagnosed, however, when i look back and connect the dots "per say" i would say i noticed symptoms around age 16-17, starting with arthritis... Anyone get heart palpitations, or valve leaks ?
  • susan69134
    susan69134 emily253

    Posted

    19, woke up with a burning sensation in the top of my leg, went to get up and leg went from under me, then lost all feeling in the skin at top of that leg, feeling never came back. Over the next few years gradually got worse with aches, pains feeling tired etc. was diagnosed at 28, I'm now 55.
    • emily253
      emily253 susan69134

      Posted

      Thank you, interesting we were both on the younger side of the diagnosis scale... Do you suffer from tinnitus at all ? I guess I'm trying to put all my symptoms together and see if it all correlates together... Being not well informed, my brain is full of questions ! Don't feel obligated to answer anything you aren't comfortable with, by any means ! Hope your doing well.
    • susan69134
      susan69134 emily253

      Posted

      I don't have tinnitus, but I do get head rush type of dizzy spells. I still have no feeling in the top of my leg and it still goes from underneath me. Happened in Feb this year as I was going down a step, broke my ankle and foot, still on crutches now.
  • Bee70
    Bee70 emily253

    Posted

    Hi Emily

    I was 23 when I first had pains in my right hand and thought I had knocked my hand against something as the pain was awful. Only diagnosed Aug 2014. I turned 45 April 2015.

  • arwen1972
    arwen1972 emily253

    Posted

    I started with symptoms at the end of 2007. I was diagnosed in 2009. I'm 43.
  • bluesman
    bluesman emily253

    Posted

    I was in my early 40s. Over a long period I went to the doctor with many pieces of the Fibro jigsaw. I didn't think for a moment that all the various symptoms were connected (pains that varied in intensity and location, insomnia, costochondritis, poor memory, pins and needles, cold hands and feet. I was finally diagnosed last year at age 55.  I have changed my doctor!!
  • christine26761
    christine26761 emily253

    Posted

    I was pretty crook for about 8 years..then I got diagnosed ...I've had Fibro and SjorensSyndrime for  23 yrs now...diagnosed..:-) be blessed :-) xxx

    great to hear all your results Emily..

  • Maggers
    Maggers emily253

    Posted

    Definite symptoms late 80s query over earlier ones in early  70s when a teenager. Not diagnosed until 2 months ago - isn't the NHS wonderful!
  • kerrymazie
    kerrymazie emily253

    Posted

    Hi I've just recently been diagnosed this month still don't know that much about it yet but I noticed the pain getting bad when I was 19 I'm now 27 x
    • Bee70
      Bee70 kerrymazie

      Posted

      Hi Kerrymaize

      It's all fairly new to many of us but dealing with a day at a time is a good start. Some days you will experience more pain than the day before or vice sa versa. Staying calm and postive and being stress-free is the key that we all need to do.  I know it's easier said than done, but thats where we all support each other on this forum.

      Hope you have a good day and take care wink x

    • emily253
      emily253 Bee70

      Posted

      I have noticed on days when i have headaches or migraines, my body pain is better. And when i DONT have a headache or migraine, my body hurts more... So strange ! I'm on day 2 of a migraine, was hoping to have the body pain instead this morning, to me , that's much easier to deal with. Hope everyone has a blessed day
  • ann46903
    ann46903 emily253

    Posted

    Im 57 and was going through a great deal of stress about 20 years ago, I used to be woken up in the night with pain going through my body like a scanner. I had to wait till it passed, from head to toe. Then one day I felt a terrible cold sensation come over me and pins and needles. It was terrifying. This went on for years, until I had so many different symptoms I knew it could'nt be normal. Sensitivity to light, odours, itchy skin, swelling, I could go on. I went to the doctors and they sent me for tests to rule out arthritus and other conditions. Finally diagnosed with fibro and it all fell into place. Im now happily married with everything i could want in life, but past trauma comes back to haunt me and the pains i am in daily are driving me insane. I haven't had a decent nights sleep since 1985. I am serious. I get between 4 or 5 hours sleep a night. Its hell and getting worse. I have noticed in the last two years im in more pain than ever, and have so many other symptoms. No one can see it, so I dont know how to convince my family how I feel. So to answer emilys question now ive got all that out, is I first noticed my symptoms at 37.
  • anne90395
    anne90395 emily253

    Posted

    Hello Emily,

    Strange symptoms started when I was 56, raft of tests following two years, now I am 59. Doesn't seem to be a pattern regarding age here, Fibro has no shame- will attack young and old alike!

    Take care, Anne

    • emily253
      emily253 anne90395

      Posted

      I think the hardest part of this diagnosis for me accepting it. I have had 15 years of all the symptoms, but after seeing so many dr's they had me convinced it was stress and anxiety related, and then i see a new dr, go over my history , lots of previous tests didn't show anything, then out of no where, i started getting heart palpitations, and dizzy spells, turns out i have a heart valve leak, but never did before... Now that IM getting more educated, i no know these can all be related to fm. Its tuff to be 34, wake up one day and realize this won't ever go away... Trying to stay positive, and appreciate what i do have
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