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Curious on what to do?

Posted , 3 users are following.

julie11916
julie11916

Good afternoon:

I actully been having headache since march and when I went to the ER they give me a number to call and schedule my MRI. I actually didn't do my MRI until June 21st because of weather where I live at stop me. My neurologist nurse called me to make a follow up appointment to discuess my MRI result. I throught all was normal but it did say Impression: Low-lying cerebellar tonsils extending 5.6 mm below the foramen magnum. Slightly decreased CSF flow along the posterior margin of the tonsils. MRI of the brain is otherwise normal.. I honestly been haven't neck pain for 4 days straight and then it went away but the light headed and dizzyness is still here along with the nasousness won't leave. I've been sleeping it off and when I wake up i keep having headache after naps during the day. I throught maybe it was because of the sunlight shining in my room that cost my headache. they have not Diagnosis me yet with Chiari malformation but i google the result as well. All the symptoms I'm haven't keep getting worse and worse and my neurologist won't have time for me until august 29. i don't know if this is truly chiari malformation but if it is can anyone help me figure out what to do or what will happen to me?

2 likes, 3 replies

3 Replies

  • julie11916
    julie11916

    Posted

    *have been getting worse*
    • blackhawks3310
      blackhawks3310 julie11916

      Posted

      Hi Julie, 

      I’m sorry you’re going through this. If the report says you have any type of herniation, then yes you have chiari and you and your doctor should begin discussing the condition, your symptoms, and treatment. There really is only one treatment and that is a posterior fossa decompression surgery. Definitely make an appt with a neuroseorgeon, not neurologist, as soon as you can. 

  • dionne_x
    dionne_x julie11916

    Posted

    Julie, if you were not diagnosed then hopefully it’s nothing serious. I didn’t have any headaches or neck pains and I was diagnosed with Chiari and needed surgery. 
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