CVST repeated after stopping the Apixaban in six months

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My son 21, got his first CVST while he was at the university last year.

After taking Apixaban 2.5mg QD for almost six months, the Neurosurgeon stopped the medicine. Unfortunately, after 3 weeks of stopping the Apixaban, he got another CVST attack last week and he was hospitalized and discharged after 3 days, prescribed to continue Apixaban 2.5mg BID for a long period (even lifelong).

I was told that repeated CVST is not that good.

I just need someone to talk to who has been in a similar situation

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Thanks for your help!

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