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Quick question... I had the cyberknife procedure about a month ago. I was not having any pains at the time of the procedure about 3 days later my pain came back ( they usually last about 10days then go away for about 45 days) well I’ve been having pain everyday since the procedure. Is this normal? Also, I went up to 400mg twice daily on then Tetrol but now my fingers are jumping by themselves whenever I do something meaning my nerves in my fingers are extremely sensitive. I’m now trying to go back down to doing 300mg in am and 400mg pm ... idk what to do I just want to eat a normal meal instead of mashed potatoes 

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  • Posted

    Hi Wannahelp2017,

    Sorry to hear about the outcome.

    1) Have you considered a zero sugar diet?  

    2) Stay warm (avoid cold drinks/fruits)

    3) De-stress by not working for a month.

    Sugar causes nerve inflammation and worsens TN triggers.

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  • Posted

    I had the Gamma knife done in 2015 and the pain did not go away at all or rather, it was diminished somewhat but not by a lot. I realize these are different procedures but in my experience, most of the procedures for this affliction do have a time table for the pain to subside, even an MVD for some folks (my mvd provided immediate relief fortunately).

    I would contact your doctor with these concerns and see what they can suggest. But it sounds to me like what you are experiencing is to be expected for the most part.

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    • Posted

      Thanks Colin I appreciate your input. I can’t have the MVP for another 9 months bc my job won’t allow the time off from work until I’m there a full year. I was just very hesitant about someone going inside my brain to do anything. But another lady had the cyberknife and said it took 6 months to b completely pain free so I’m gonna stick with it to c what happens. Hoping for the best. But did anyone have the sensitivity from Carbamazepine? 
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    • Posted


      YouTube Gabapentin side effects it's a big eye opener I took it for 1 year up to 900mg per day breast and armpit on left side were causing me extreme pain had ultrasound nothing there changed off the Gabapentin and within 2 days pain in my breast and armpit went away. There are a few more drugs that can be given to you they all have side effects but I am better on this Garbamezaprine dirvitive called Aptiom 200 mg tablets so far they help and I have no side effects.

      Everyone is different to the medications you just have to keep up with your specialist and makes changes to see what works for you.

      Re MVD I had it done July 18 2017 and there was no change in my condition I read all the things people have tried and see if I can find any no surgical way to get rid of the pain. The surgeries have a very low percentage of success and the few that get success it returns within a few years. The surgery is brutal to recover from depending on your age I am 63 but look 50 and in good health it took me 4 months to recover and feel like myself again. Everyone again can be different reactions.

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  • Posted

    Hi Wannahelp,

    I had MVD not cyberknife so i can't tell you any first hand experiences with cyberknife, however i had done plenty of research on C Kinfe prior to choosing MVD.  I can tell you that in my case they told me that the C Knife would not work for any significant amount of time. Infact, they told me that if i went that route , i may experience relief for a few months and then have to come back either yearly or twice a year to repeat the procedure.  ( Each case is different though).  In my case after the MRI reviews, it was recommended that MVD would possible be the only longer term solution and if i wen't through C Knife ( or multiple C Knife's), and then had to have MVD, the MVD would not be effective.I still don't know why, but that's what multiple Nero's told me.  As far as your reactions to the meds, i don't know much about why that's happening. I would ask the neuro.

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  • Posted

    I am not sure what country your in but I am in Ontario Canada we don't use Tetrol here unless it's u Dar another name.

    My nerves in my hands and arm were causing me great pain to the point of feeling like my hands were on fire then we stabilized my dosage and now it's gone. Thank God because it was worse than my face pain and that is pretty bad. I am going g to try accupunture next as someone had the TN for 3 years and after 10 treatments she has no more pain.

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