Cyclical Vomiting Disorder (NO TREATMENT!) HELP

Posted , 4 users are following.

My partner believes he has cyclical vomiting disorder. For five years, he has experienced extreme cycles of intense vomiting when he wakes up in the morning, relentless nausea, light and pressure sensitivity, headaches and crippling abdominal pain. These cycles can last anywhere from two weeks to four months and breaks last for about two months. Every doctor that he has seen has been unable to help him as all conventional treatment they have tried has been unsuccessful. He has already had procedures such as an endoscopy and had many blood tests and scans with no results. Considering that, CVD is untreatable and extremely difficult to diagnose, he has no proof of diagnosis and so, is unable to get anything to help him. It is heartbreaking to see the person you love experience such a low quality of life. He also struggles immensely with anxiety, depression and agoraphobia and so, can barely ever leave the house in order to see doctors and psychologists but is too anxious to have someone come to the house. He feels hopeless as there seems to be no answer. We went to see a doctor the other day and he yelled at him and belittled him and offered us no solution or assistance. The only thing that has been proven to help him is Cannabis and although medical cannabis is legal here, no doctors will help him access it despite the fact that it would give him his life back and despite the fact that the legislation states that he should be able to access the medicine which can make him feel like a normal person. He doesn't feel comfortable leaving the house and he hates having to help himself illegally as it makes him feel incredibly anxious and unsafe in his own home. He can't work, he can't clean, he is in constant pain and he is scared to fall asleep. We don't know what to do and no one will help us so any advice would be amazing.

1 like, 4 replies

4 Replies

  • Posted

    Hi Caityy.w

    Your partner obviously needs cognitive therapy..his condition sounds phycological and not medical..he has great anxiety help in a phsycological best wishes to you both....

  • Posted

    Has his doctor diagnosed him with CVD and has he been prescribed any anti nausea medication?  Stress can sometimes trigger CVD.  I would try seeing a gastroenterologist.  There is treatment for this condition and it can be managed.  He could try walks during his well periods to relax him.
    • Posted

      He has seen a gastroenterologist who couldn't find anything and they have tried antinausea medication with no success. We find it hard to get to a doc and when we we they often insist on doing the same tests that have already proven ineffective.

    • Posted

      If all other causes can be ruled out, then CVS can be diagnosed.  Has migraine medication been tried?  If CVS is diagnosed, migraine meds can help.  Maybe ask for a different anti nausea tablet; the one that has been prescribed may not suit him but others might be more effective.  Do certain foods or being over tired trigger symptoms?  Try a food diary to monitor this and see a different doctor.

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.