Cymbalta for Fibro/Nerve pain?

Posted , 6 users are following.

Hey all,

I got some amazing support when I was newly diagnosed with fibromyalgia, I'm hoping for the same response here. Has anyone tried Cymbalta for treating the nerve pain associated with FMS. I am at my wits end at being sore and tired all the time. I also know that there's no such thing as a magic, miracle pill, so I'd like all the facts before I start on this journey. I try to steer clear of medications whenever possible, and I am starting physical therapy soon… So maybe that will be enough anyways. However, out of curiosity, my doctor recommended Cymbalta... Does anyone have any insight into how it affected them (wether it helped or not) I'll take any advice into consideration when weighing this decision to start on a medicinal program.

Thanks!!

Iggy

0 likes, 11 replies

11 Replies

  • Posted

    I have started using Cymbalta but I haven't been on it long enough to know. I so hope it helps as I am really quite desperate for relief. I am not interested in physical therapy as it hurts me at the present time. Hopefully this trial of prednisone will give me some relief.   
  • Posted

    I was on Lyrica , Cymbalta, and Tramadol for Fibro. I was on Cymbalta and Lyrica for a year. i stopped the Tramadol about 2 months in as it was just another thing for my liver to filter. It was said that I had the worse case of FIbro in South Florida, I was up to 200 mg.of Lyrica 3 times a day and 60 mg. of Cymbalta twice a day. I can say when my doctor ignored me the 10th time for the symptoms that I was telling him about Lyrica and him saying that he was going to increase my mg. above what was recomended by the pharmecultical company. I fired him and went cold turkey. The dumbest thing ever , you should never do that without being under a doctor care. I quit Lyrica cold turkey, the worse of two evils, I was sick for 2 weeks . Then I started dwindeling down my mg. of Cymbalta, it didn't make me sick but man it messed with depression.I was afraid to sleep , Iwas afraid to be by myself. I have been off of everything sice December. I can walk now without a wlaker. I still have some issues with processing, but I think that was due to Lyrica. Everyone is different. I think that my biggest thing that I can say is, decide what you can and can not handle and remember do you want to be on the medicine your whole life, when will you decide to stop. It seems as though doctors forget the weaning off part, You can think more clearly without them, but you know what you can and can not handle. I also did the pain management thing, I did it twice and that didn't help. I do recomend accupuncture, there is research behind how it helps with pain. It helped some. Good Luck, stay true to yourself. Remember if you are in pain and its not working, change it up .
    • Posted

      Thank you so much for your reply. The dr who prescribed me Cymbalta was a pain management Dr. And I fear he is on the bandwagon that pills cure all...

      I am going to try acupuncture and PT first and stick with Tylenol and occasionally Flexeril as it helps every so often at night, while I do more research and connect with my Pcp.

      I've been on Prozac and Zoloft before when I was a teenager and I remember losing myself in the cocktail of antidepressants, so I would rather not resurrect that old pill habit. Again, thank you.

    • Posted

      That made me remember, when I was first diagnosed with Fibro, the Dr gave me tramadol and flexril . I took them for about three days,and then had a voicemail to stop the flexril as taking those two together had potential negative side effects.
  • Posted

    You know I believe the best thing I could do for myself is to get off all this so called medicine as I just keep getting worse. I have literally begged for help with very little response from the doctors. I would love to try the acupuncture but no one in our area does that. I can't even find a rheumatologist that is accepting new patients. The closest ones would be 300-400 miles from where I live and no one able to drive me. I hope all goes great for you. Please keep me posted.
    • Posted

      Good Luck Sandra, it is a truly terrible disease. And it doesn't help that some in the medical industry believe it to be solely psychosomatic.

      Stay strong and keep pushing.

      It would've taken me longer to get diagnosed had I not been calling doctors offices daily and showing up constantly with different symptoms. I literally thought I was dying, and that the Medical team were missing something in all the scans, tests, and checkups... Thank god for my rheumatologist, who within 10 minutes figured out what it was.

      This is a great forum for support.

      Best wishes.

    • Posted

      Also, I'm sure you already know this, but don't go off meds on your own!! I cannot stress that enough. I was on Prozac and Zoloft and tried to go off without tapering... It was a very unnecessary rough couple of weeks. If you make a personal choice to come off any medication, make sure you talk to your doc about tapering off them.
    • Posted

      Check out chiropatric doctors, they sometimes offer acupuncture. I looked online and found one here in my county, its done really unconventional , you come and leave as you want, there is a large too. With recliners that are in a circle ,like how acupuncture was originally and you pay 5- 15 a visit. You decide.
  • Posted

    I was also prescribed cymbalta which I decided not to take, i read some great reviews on it at the time and some awful ones too so everyone is different. I tried Lyrica for a short time as it gave me tachycardia and gabapentin once as i had very odd reactions to it, I used to mainly used high strength cocodomal often and diazepam occasionaly when I couldnt take the pain anymore, i then decided to quit all meds and although im by no means pain free my pain levels have decreased alot, my very bad days are now 5-7 a month where as before it was 5-7 days a month where i wasnt in agony.

    This increase in good days allowed me to start doing some pilates on a reformer and gave me the shove i needed to eat as healthy as when your shattered and in pain 24/7 you crave foods which arent the best. This also then helped with my pain.

    When i (like over easter or christmas) fall off the wagon and eat rubbish my pain increases, it also increases during the time of the month (hormones) and after which i think is due to the fact i take ibroprufen for about 4 days straight and then stop, i think it somehow pushes my pain up.

    I would personally based on my experince not take any meds unless i absolutely have too, i would try diet and gentle exercise first, i spent 6 years not able to do any exercise, it would wipe me out, even hoovering or washing up would make me hurt so bad but I really recomend a reformer, you can go at your own pace and resistance, stretch whilst increasing strength and symmetry and you lay down whilst you do alot of the moves so its not strenuos, I say this whilst ive spent the last few days hurting alot as i have not used it in a few weeks as i had the flu and got out of the habit, ive also not been eating great so I can attest to the fact it does make a difference. They are expensive new but you can get used ones on ebay for £50.00ish

     

  • Posted

    Hi,  I have been on cymbalta for a few months and really like it.  It does help with the pain and fatigue, but not a miracle.  Still it is good if I take it in the morning, and then if I do my exercises, I feel pretty good!  I started on the 30 dose and now am at 60.  I think you can take more, so maybe upping it a bit  I will be even better.  Heard vitamin d3 and magnezium are very important and the B vitamins.  I take a multi and a little extra d3 and drink 6 to 8 glasses of water a day, and get my sleep, even if I have to take half a sleeping pill.  Good Luck
  • Posted

    Hello, I have taken various medications in the past all started off well but , there is always a but Cymbalta having been on it for over a year worked well to begin with then stopped helping so i was offered amatriptalene as a top up it made me feel worse with no relief, so i thought i would stop taking all medication as it didnt help , i wasnt prepared for the withdrawels from Cymbalta i suffered anxiety emotions were all over the place headaches worse body pain ect ect. I read up on other peoples experiences and was relieved and sadened to see that alot of people were going through the same thing, so as hard as it was i stayed off it and now my head is clear still in pain but i just do what i can do and rest when i can. I joined slimming world as i want to try and see if eating differently will help and try a gentle swim ( still working up to that ha ha ). I am awaiting an appointment for therapy ( massage ect ) waiting list was 31wks the letter said . Well you have to make the right decision for you and like i said it did help at first but it was the coming off them that i feel i need to stress to you, just be prepared , and I wish you well. 

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