Cystoscopy

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hi 

have been having pelvic pain, some back pain, nausea, loss of appetite, stinging urine, blood in urine & urine frequency for 5 1/2 wks, been off work for 5. I've had urine cultures, kidney x Ray, kidney ct scan blood tests all normal! Having pelvic MRI tomorrow. I  was supposed to have a Cystoscopy with local today, that urologist only got tip of scope in & I yelled out in pain, so was stopped. I'm now going in & having it under general on Friday. Urologist thinks it cud be adhesions (had a lot of past surgery) & have had them before also spotting of endo, or cud be stricnosis of uretha. Gyne wants to see scan, but cud be adhesions too. Has anyone had any of these symptoms or bad experience with Cystoscopy? I'm now fed up & been on heavy duty painkillers fly weeks. 😩😩

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8 Replies

  • Posted

    Its possible to have all those symptoms with intersticial cystitus, without it showing up on blood tests or scans, only diagnosed through cystascope.

    If the area is inflamed which it sounds to be, and local anascetic might not be strong enough to stop pain when camera inserted, so a g.a better for you.  Check out the c.o.b site as they specialise in bladder probs and will give info and advice on forum, hope they can advice you. 

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    • Posted

      Hi Lynne

      Thanks for replying. My urologist hasn't mentioned this, only stricnosis of uretha. Do you Suffer from intertestical cystitis?

      Thank you

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    • Posted

      Suprised your urolgist hasnt mentioned it, as most of your symptoms common wth i.c. unless he thinks there,s another reason, such as the one you mention, and lve not heard of that. l do have ic and symptoms simular to yours for many years with clear urine samples, blood tests, scans, not till l had scope was it diagnosed. Not everyone one diagnosed with ic gets symptoms as bad as yours, re nausea and loss of appetite, l did at times short lived, l think due to years of neglect, made me more prone to infection, of all manner,  thrush common, my first scope was with anascetic where they often take biopsy, bit of discomfort after, due to being inflamed l expect. but diagnoses and meds for symptoms.   l had one a few month back with just local gel anascetic and no problems.  l,m sure your feeling  lousy, but at least theyre getting on with scope, shame they didnt do g.a. lst time, but Friday not too long and should bring diagnoses whether ic or other, best wishes.
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  • Posted

    Thank you, I'm so out of it at mo with high dose pain meds! 

    yah at treatment do you have? And how long have u had IC if u don't mind me asking?

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    • Posted

      lve had ic a long time, about 30yrs, l was put on cimetidine, amitriptylene, which is commonly used for ic, calms nerve endings, helps reduce output, and helps with sleep, but there are a lot of different meds used for it, and some have surgery minor, but the meds did help my symptoms by 90percent. Wondering if youve infection with having nausea and cystascope unbearable, with ic infection doesnt show in samples but is thought to often be deep seated in bladder wall, some take a daily anti b for it, l did for a few years, but now got a bit of gastritus, take omprazole for that, and avoid anti bs as much as poss.  l hope the week goes quick up to scope so you can get answers, might not be i.c. You could also check on c.o.b forum for more detailed info  and if you feel very bad they do have a phone no you can ring, Good luck on Friday.
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    • Posted

      Thanks Lynne. Wouldn't infection show up in blood tests? 

      Sounds stupid I just hope they find something! (Obviously not to serious) every test so far normal apart from blood in urine on 2 occasions. 

      Read alittlte bit about IC, & that some people can't function daily that well. Has your s been under control? 

      Thanks for the help.

       

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    • Posted

      l dont think everything shows up in blood tests or urine samples, why it takes a scope to diagnose it, the experts think there might be infectiion deep in bladder wall, still researching,  There are some who are badly affected, but most once on treatment manage a normalish life, l have once l got treatment that suited. Sounds like youve some sort of inflammation with the blood in urine, which l still get sometimes, and the pain you got with scope. Hope youll post on Friday night and let us know what they found, and treatment your on, better to find out than what your having now, hope the pain killers are helping, are you flying with them, anyway good luck friday
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  • Posted

    Hi, I had the same experience 4 days ago. I was told the procedure was not painful & it would be 60 seconds once they located the uretha. Once the tip of scope was inserted the pain began. I hollered stop, jumped off the table & ran into the bathroom. The doctor said I could have some blood & frequent urination for a day or two. This is now day five & I burn terribly everytime I urinate. I am scheduled to be put under Wednesday. I am seriously contemplating cancelling. This is painful & very uncomfortable.

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