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Daily abdominal pains

Posted , 3 users are following.

jill18833
jill18833

Hi all,diagnosed proctosigmoiditis,uc,a year ago after colonoscopy. Been on pentasa slow release tablets 3grams and pentasa 1gram enema at night. In remission quickly for several months and reduced meds to 2gram pentasa tablets daily. Recent small flare hence upped meds to 3gram tabs and 1g enema at night. Flare subsided but I get horrendous abdo cramping on almost daily basis. My question: should I be getting so much pain in remission? Wondering if it's the oral pentasa? Do you think a nightly enema would be enough to keep in remission? Anyone else get daily pain whilst in remission? Really getting me down now,thanks all

0 likes, 7 replies

7 Replies

  • madge47847
    madge47847

    Posted

    Hi jill18833

    Sorry to hear you're suffering. I am new to this as well (diagnosed with uc last August after a serious flare). I take 2mg Pentasa every am and 1mg before bed (currently in remission but still experience some bleeding) and I too suffer lower abdominal pain, perhaps not every night but certainly more often than I'd like! I saw a consultant back in Jan and when I mentioned it, he said some of the time it's an unfortunate but expected symptom of uc even when in remission.

    I think if you're particularly worried, speak to your GP or consultant.

    Hope things start looking up soon.

  • jill18833
    jill18833

    Posted

    Thank you Madge,another question! What do people take for reliable pain relief? Paracetamol don't touch the pain when it's bad and co codamol make me feel a little woozy? Just wonder if the Pentasa is causing pain as it's listed as a side effect? Any comments gratefully received as I find the pain hard to deal with some days,thank you all
  • filbyvic
    filbyvic

    Posted

    I find a hot water bottle perfect smile
  • jill18833
    jill18833

    Posted

    Thank you Filbyvic,I do use a microwaveable wheat bag when indoors but need something to relieve pain when I'm out and about,will try curate at packs next I think. Maybe I've been misled but I thought once in remission abdo pain would diminish but I seem to be getting them every second day,anyone else with so called moderate uc in remission getting a lot of pain? Really anxious right now that something else is going on? Thank you all
  • jill18833
    jill18833

    Posted

    Anyone here in the Whitstable area that would like to compare notes?
  • madge47847
    madge47847

    Posted

    I agree with filbyvic- I find a hot water bottle to be a huge help smile
  • jill18833
    jill18833

    Posted

    Thanks all,will try curaheat packs when out and about! Do you get a lot of pain even in remission??
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