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About 7 years ago I got really sick and I could hear something getting louder in my ear, almost like hearing the ocean in a sea shell, then after getting louder and louder I heard a pop. Silence. I had a cold or the flu, I dont remember it's been so long but started experiencing migraines with this noise and slight lightheadedness after getting better it would very randomly occur. I went to the ER a couple times and they said I had an inner ear infection and gave me antibiotics which never helped. Finally after three years and no help, I had tried multiple things as far as medication like alieve, advil, ibuprofen, yet nothing except excedrin migraine or extra strength that is it. Since that would provide temporary relief I stopped asking for medical help. My symptoms proceeded to get worse I was taking more and more medication daily, So I decided to start seeing doctors. The pain from these migraines are disabling. I get weak, dizzy, nauseous, the pain feels like a screwdriver being drilled into my temples while I'm wearing a helmet that is to small and my head feels like it's swelling out of the helmet and its very heavy. I've tried medication prescribed for migraines with no relief, I have changed my diet. I eat alot healthy now and drink lots of water. I rarely eat sugary junk or eat out. One doctor was concerned I had a brain tumor but I had a CT, MRI, MRA, and blood work and even X-rays but it seems I'm perfectly healthy. The ringing/ocean in my ear has gotten worse, I'm not sure the last moment of silence I have had in years. I am now up to 8 pills daily and my scans were done 3/4 years ago and I've seen maybe 8/9 different doctors in the past 7 years, I've lost my job and working part time and it's been a year since I'v held insurance because this has effected my work with my attacks. I have some days when it gets so bad I've not been able to physically walk or drive and I'm so lightheaded that I am shaking and I have to lay down. My memory has suffered, I cant seem to remember what I had for lunch, my daily motor functions, like my typing is poor I'm having to correct almost every word because I'm continuously hitting the incorrect keys and I used to fly on a keyboard, I've started experiencing cotton mouth, and I will be mid conversation and completely say something different than what I am actually trying to say. Like for example we were discussing food at work and I went to say peach cobbler sounded good and I said corn something, it confused everyone including myself. I could picture peach cobbler and said it in my head but the words wouldn't work out loud. My migraines get so bad I'm crying and throwing up. It's been 7 years and I've tried oils, medicines, doctors, nobody knows what's going on and they cant find anything. I have begged for help. This is physically exhausting and this is not living anymore. I'm calling around getting prices for a cash patient to now get tested for manieres disease. Does anyone else deal with this? Doctors seem clueless, I will be getting a job with insurance soon. I'm pretending everything is fine and I have a few interviews coming up. I want to go back to see Doctors but I dont have the money to spend seeing a bunch more doctors and useless tests. Does anyone have the same issues and any advise on the next step? I'm planning my wedding very slowly but this is no life to live so things are on hold until we figure this out and I hate putting my life on hold because something is physically interrupting my life and nobody knows what.
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