Posted , 4 users are following.
It's been some time since I last posted but have some significant news. Essentially all the symptoms I previously ascribed to Gilbert's have actually turned out to be due to dairy allergy (went to a hepatologist for the first time in years). Stopped all dairy intake - not easy, careful ingredients label scrutiny necessary - and have improved amazingly. I feel consistently normal again for the first time in years. Has apparently had pretty much the same effect as coeliac disease on me including mild pancreatitis and moderately abnormal liver function.
Thought I'd share this in case some form of food allergy is responsible for the symptoms of some other Gilbert's sufferers (my Gilbert's has been confirmed genetically by the way, with the promoter variant UGT1A1*28 and probably three other causative variants). Complete left field speculation without evidence, but there's always the chance that a gene for dairy or other allergy/intolerance might be close to the Gilbert's gene such that there is an association, which might explain why some people with Gilbert's get symptoms and others don't.
3 likes, 5 replies