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Daith Piercing

Posted , 7 users are following.

YorkshireLass1
YorkshireLass1

Hi,

Just wondering if anybody has had it done and what results you got from it.

I have totally given up on all forms of preventative medicine as they don't work and none of the GPs and consultants I have seen over the last 40 years gives a stuff about helping me.

I have recently gone a a very dramatic, specialised diet which has reduced the attacks slightly, but I'm still desperate to get help so was thinking of the piercing.

0 likes, 10 replies

10 Replies

  • carolebright
    carolebright YorkshireLass1

    Posted

    hi - sorry to hear you are having so much trouble for so many years.

    I had a daith piercing about 3 years ago now, and it hasnt helped my migraines but i really like it! I decided for the sake of £25 it was worth a try.

    I have heard various reports from people - it helps some, and makes others worse - but which side do you have it ?

    I read this week about a new preventative called Aimovig (erenumab)

    I too have tried loads of preventatives - currently on Candesartan which has helped a bit - im hoping once i am through the menopause that will make a big difference? Triptans are the one thing that do work really well as abortives for me - just have to make sure i dont take to many and get MOH

    Take care

    x

    • YorkshireLass1
      YorkshireLass1 carolebright

      Posted

      Hi Carol,

      Thanks for your reply.

      Sorry the piercing didn't work, but as you say if it looks good then that's a bonus. I get pains on both sides, there is no particular rhythm to any of my attacks so that is why I thought it might not work because of getting them both sides.

      I have heard of aimovig but I'm not going to bother because of my previous history with nothing working.

      I do rely on triptans and without them I wouldn't have a life, but of course we are restricted to the amount we can take.

      As far as the menopause is concerned I had a hysterectomy at 30, I'm now 51 and tbh I haven't got a clue whether it's been or gone or on its way 😃

      Thank you x

  • kimberly49905
    kimberly49905 YorkshireLass1

    Posted

    hey I don't know about it but I been thinking of getting this 2. do u have the aura or just the headache.

    • YorkshireLass1
      YorkshireLass1 kimberly49905

      Posted

      Hi Kimberley,

      I don't get aura, I just get hit with the pain or sometimes it comes on gradually and as I said to Carol it changes sides aswell!!

  • RachRoux
    RachRoux YorkshireLass1

    Posted

    Hi lovely I'm so sorry you are going through this I really do empathise it is so tough to find a med that works

    I've tried every preventative migraine med out there and the one I ended up on was topiramate and it has been an absolute life saver. The side effects were pretty s**t to start off with but you just have to ride them out and find the dose that works for you. I don't take any meds when an attack comes on as I reacted really bad to most of them particularly the triptans.

    When I do get a migraine which isn't often now I take paracetamol and use heat pads.

    I urge you not to give up on however there is a lot to be said in terms of diet which is great that you have looked at that if you suffer with chronic migraine you will most likely need help from medication

    I am also from Yorkshire specifically Leeds and my specialist Dr Agam Jung is based at the LGI, Warfdale and Seacroft hospitals she is very good at what she does and I am sure you would be able to contact her or her team for information or ask to be referred there if you are not getting anywhere with your current specialist.

    If you have tried a minimum of 3 medications and they have been unsuccessful you qualify for botox on the nhs.

    I have had the Daith piercing it gave me some relief in terms of pressure and intensity but my body rejected the piercing as i have a very low immune system unfortunately. Give it a try it might be good for you. It us actually based on an acupressure point so you could potentially go and try acupuncture first and see hie you react to having it in the daith position and if it creates great pressure then you can take it out.

    I find acupuncture really amazing for migraines.

    If you need anything please feel free to message me.

    RRx

    • YorkshireLass1
      YorkshireLass1 RachRoux

      Posted

      Hi Rach,

      Thanks for your long reply.

      A bit more detail on my history, I have tried Amitriptyline, Propanolol, Candesarten, topirimate and epillum. The only one that worked was topirimate BUT I had a really severe reaction and my Neuro thought I had Stephen Johnstone's Syndrome, the most frightening time of my life, as I had to wait 3 months for the blood tests to come back negative. This is why I haven't bothered with anymore prophylaxis.

      I have had acupuncture in the past, homeopathy and kineasiology, none of which worked, so this is why I am so frustrated and desperate and wondered that if the acupuncture didn't work, then the piercing probably wouldn't.

      There is only one specialist in the York area that I have paid privately for about 3 years and I have no faith in him and when I asked for names of others, in particularly Leeds which is only 30 mins away, I was told there wasn't anyone, so I am grateful for you mentioning Dr Jung. I will see if I can get a referral, or happy to pay private if she does that??

      The only thing that works is my eletriptans, I hate taking them, but when I have to go to work I cannot get through the day without them.

      I may message you later to get more details of Dr Jung.

      YL x

  • kath1955
    kath1955 YorkshireLass1

    Posted

    I was seriously considering getting a piercing up to the point of actually speaking to someone who did it but I chickened out because not only it didn't seem to work for everyone (like many migraine preventatives) but apparently it takes a while to heal and then I heard others having problems and having to have it take out.

    Like you I have suffered for over 40 years with them gradually getting worse over the past 20 years. I have been referred to a neurologist twice and think that I must have tried all preventative medication. At the moment I'm on Pizotifen which isn't really making much of a difference. My lifesaver is sumatriptan. I try to eat healthy, don't drink alcohol and exercise. I have come to the conclusion that providing I can manage them, I've just got to live with them but I would have liked to have 'grown' out of them, the menopause hasn't made any difference.

    • YorkshireLass1
      YorkshireLass1 kath1955

      Posted

      Hi Kath,

      My greatest concern is the side effects as it's not just like a normal piercing.

      I am on a gluten, chocolate and alcohol free diet, low carb and sugar, it has made a slight difference, but the main thing is the weight loss which is a bonus.

      I am like you, I have come to the conclusion they are part of my DNA and for some reason Mother Nature decided at 10 years old that I was to have them all my life!!

      YL x

  • migrainefix
    migrainefix YorkshireLass1

    Posted

    hi there, The diath piercing is amazing and the results can be worth a try at least.

    theres a great post on the faceboock page

    Migraine Cure

    it shows some really interesting stats that should help you make the right choice.

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