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Damamma

Posted , 6 users are following.

Damamma
Damamma

Actually there's five connective tissue disorders in the RA category. RA. Scleroderma. Sjogrens. Lupus and polymiositis. I have three first 4 and pretty sure I have the last but not diagnosed. I have slot of reflux and now have esophageal dismotility due to Scleroderma. My esophagus is badly scared and nothing they can do. ER told me to come back when I can't swallow liquids!! Gastro Dr can't help me anymore. Sending me to Cleveland Clinic and said I will need surgery to control did going into my stomach. I have swollen and very tender saliva glands but not given Prednisone for to reflux. Really could use dinner helpful info here

0 likes, 5 replies

5 Replies

  • snailj12
    snailj12 Damamma

    Posted

    Does swallowing hurt? If you can tolerate anything, were you told not to eat?  I don't want to give you information you may already have tried. But what about yogurt, mashed potatoes, really bland stuff , smoothies if you can tolerate them?

    • lily65668
      lily65668 snailj12

      Posted

      Just a comment about mashed potato. I don't have anything like Damamma's problems but I do go through phases when swallowing is slightly difficult. At times like this I find that potato in any form - including mashed - is as difficult to swallow as bread. Seems to be something to do with its sticky quality for me.

      But we're all different, of course.

    • snailj12
      snailj12 lily65668

      Posted

      Fair enough- I guess I was relating it to my dad when he was elderly and had swallowing issues. But that was likely due to something else. Anyway- mash potatoes was his staple. But don’t want to harm anyone. These are all suggestions obviously. 
  • maureen05275
    maureen05275 Damamma

    Posted

    Damamma, you carry a very heavy load.  I do not have Scleroderma but have Raynaud's and have been, since about 1989, a member of a British Association founded by a wonderful woman eventually awarded the OBE for the work she did to raise awareness of these diseases, raise money for research and help those afflicted.  Two or three years ago two associations joined to become 'Scleroderma & Raynaud's UK' or 'SRUK'.  They produce a magazine four times a year.  I am sure you could get help there:  I live in Australia so have not had direct contact with the group but have always been impressed by what I have read in their magazines.

    With very best wishes

    Maureen

    Moderator comment: I have removed the link(s) directing to site(s) unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details.

  • maureen05275
    maureen05275 Damamma

    Posted

    Hello Damamma

    The moderator removed the web link to the association but you just have to goggle the name and this will come up.

    With very best wishes again,

    Maureen

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