Dance show

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I've been dancing since I was three (I'm now 16) and I was diagnosed recently with epilepsy. However, next year, it is one of the dance group's bi-yearly show, where we all take part in various routines. My EEG didn't show photosensitivity, however, I thought under stress, heat etc, it may push me into the (what I call) danger of seizure section. Is this true or would I be ok? I *should* be seeing a new neurologist at the end of the month but I just thought someone else may have an experience/any advice? Anything is appreciated. Thanks!

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  • Posted

    If you get extremely anxious yes it could happen but not always. I have anxiety medication as well so things don't make me so anxious..

    Good luck!

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    • Posted

      I take anxiety meds as well, and I completed my GCSEs a couple of months ago, and I had no fits, I had an unrelated one on Boxing Day (that was my 3rd) and all through exams I was ok (I was taking anxiety and epilepsy meds, along with others) and then the next fit I have was a couple of weeks ago,again, I don't think related to stress. But I think I'll just have to wait until I see a neurologist and get their 'permission'.

      thanks

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  • Posted

    Dear Jemma,

    My youngest son has epilepsy....so my experience with him leads me to believe that you will be able to safely enjoy participating in your dance recital.  Your medicine is controlling your fits well if you are only having a few random fits.  I found with my son that fevers would often but not always bring on a fit but not the heat from exercising.  You have danced for so long, your body must be used to it!

    My son does not have photosensitivity according to the EEGs but often feels a bit "off" around bright lights.  You could always wear sunglasses backstage until it is your turn to dance....  Sorry if that sound silly but that is what I would have my son do.

    His neurologists have always recommended that he live his life as normally as possible and participate in activities.  So, I assume your neurologist will say the same.

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    • Posted

      Dear Rachel,

      Thanks so much. I too feel a bit strange around bright lights, but they, nor a temperature, have made me have a seizure. No, it doesn't sound silly. In fact, it seems quite logical. Yeah, one of my nurses told me to try and lead a normal life, but I'm just scared of the eventualities.

      Many thanks for you help

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