Daughter aged 10 diagnosed with Lichen sclerosus
Posted , 9 users are following.
Hi
My daughter has unfortunately been diagnosed with this condition.
Apparently there is a chance she will grow out of it in puberty.
Does anybody have a child who has grown out of it as they went through puberty?
Many thanks for your help. It feels difficult to get information.
0 likes, 12 replies
chicks Squiff
Posted
Hi Squiff
I haven't heard of a child being diagnosed with this disease. Has she had a biopsy to prove it is LS? She seems too young to be starting on steroid creams so maybe try to control the symptoms with some of the solutions mentioned on this forum. Some women use coconut oil or Emu oil. I use a mixture of 4 tablespoons of Organic Castor Oil, 1 DROP of Lemon Grass Essence Oil and 2 DROPS of Lavender Essence Oil. It is extremely important not to exceed the number of drops and I suggest you use a small dropper for the oils.
Jan
katrina04363 chicks
Posted
Hi my daughter was diagnosed when she was 5, she is now going on 7. The dermatologist said it is rare for kids to be diagnosed with it and thats why they take pictures and are still researching the condition. My daughter was also prescribed the steroid creams too. Honestly when i first seen it i was soo worried my daughter said she had a sore from her bum whilst she was in the bath so i took a look she was bleeding and purple bruising inside the vagina! I thought what the hell? It was the most worrying time of my life. I started asking her questions, which i think any parent would and she said nothing had happened and then i took her to the drs they sent me to the hospital and one of the nurses got a 2nd opinion and as soon as the dermatologist seen it she diagnosed Lichen schlorosus. Since then the purple bruising has gone but she has itching still and i am recently worried because it looks like a purple mole has appeared above the vulva. I've never seen any purple like mark outside of the vagina. So i have booked an appointment with my dr.
TexinSF Squiff
Posted
My twin 5 yr old granddaughters have it. The doc told us the same thing. I hope it is true!! I hope your daughter does too. They are too young for this!!😣🤥
katrina04363 TexinSF
Posted
My daughter was diagnosed at 5 years old too. It's such a shame they have to suffer! My daughter was crying in her sleep for a week until the treatment started working! Thankfully now she is 7 it is under control apart from the itching. I hope it does go in puberty! x
sarb73328 Squiff
Posted
Guppy007 Squiff
Posted
LS is an inflammatory condition and steroid treatment helps to keep the inflammation and the resulting damage, controlled in most cases. Abandoning steroid treatment can lead to complications for children in later life.
A suitable compromise can be made by using steroid treatment alongside holistic treatments, working with a reputable holistic doctor who will not ask you to stop steroid treatment but who will work with you and your child to support quality of life.
chicks Guppy007
Posted
kat00 Squiff
Posted
Chris1230 Squiff
Posted
I think it can go away when estrogen is up but probably comes back later in adulthood.
Squiff
Posted
rachel29764 Squiff
Posted
Hi there, I was just poking around these forums two years after my original post about my daughter's LS. She is now 4 years old and it has been a roller coaster 2 years with this condition. The condition is confirmed by both her gyn at Boston Children's as well as her dermatologist. I am hoping the condition goes away with puberty as they say, but for now I am able to control the symptoms with a combination of topically applied Manuka Honey (first choice! my daughter asks for it!) and also prescribed steroids (last resort). She has not had a fissure or sore in over a year on this plan, whereas before I introduced the honey she always had one or the other. She is finally potty trained, and overall living more comfortably. Her gyn tried to gently steer me away from the honey, suggesting that she ingest it orally rather than apply topically, but this is the only thing that calms a flare up. The redness and tightness of the skin disappears within hours. The white ring is gone by the next day. It is very sticky, and I was told it does sting a little?, but the relief is visible and it is my 4 year old's preferred treatment. Just thought I would share. Always talk to the dr, as ours didn't initially agree with this treatment but agrees that "whatever you are doing is working" at her last check up.
chicks Squiff
Posted
Take care
Jan