1. Community
  2. Pregnancy and newborn
  3. Pregnancy and Genetic Disorders

daughter recently diagnosed with SOTOS syndrome!

Posted , 3 users are following.

lisaolivia
lisaolivia

My daughter was recently diagnosed with SOTOS syndrome, I have researched it online, but is there any help available to myself and my daughter. She is the only known case EVER in northern ireland

HELP

0 likes, 5 replies

5 Replies

  • lisaolivia
    lisaolivia

    Posted

    Thankyou for your reply, I will have a look at that smile
  • colleenmc
    colleenmc

    Posted

    Hi,

    I've just came across your post here and just wanted to say I also have a daughter with SOTOS and I am from Belfast. She was diagnosed when she was 2 that was last year.. If you need any advice I will be happy to help you in anyway.

    Regards

    Colleen..

  • lisaolivia
    lisaolivia

    Posted

    Hi Colleen, great to hear ur from belfast smile do u have a facebook and would you mind if i added you to talk more about the kids smile
  • colleenmc
    colleenmc

    Posted

    Yes no worries Lisa search for Colleen Mc Connell, ive got red hair if it helps you find me lol.

    Look forward to hearing from you.

    x

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.