daughter recently diagnosed with SOTOS syndrome!

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My daughter was recently diagnosed with SOTOS syndrome, I have researched it online, but is there any help available to myself and my daughter. She is the only known case EVER in northern ireland


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  • Posted

    Thankyou for your reply, I will have a look at that smile
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  • Posted


    I've just came across your post here and just wanted to say I also have a daughter with SOTOS and I am from Belfast. She was diagnosed when she was 2 that was last year.. If you need any advice I will be happy to help you in anyway.



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  • Posted

    Hi Colleen, great to hear ur from belfast smile do u have a facebook and would you mind if i added you to talk more about the kids smile
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  • Posted

    Yes no worries Lisa search for Colleen Mc Connell, ive got red hair if it helps you find me lol.

    Look forward to hearing from you.


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