Daughter with swollen lymph nodes throughout abdomen
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Symptoms for 2 weeks now.Swollen lymph nodes throughout abdomen, constant abdominal pain worse at night & in morning, elevated liver enzymes, lower and mid back pain, slight fevers on & off everyday, occasional groin area pain. Blood, urine & stool samples all fine! Only place with swollen lymph glands is throughout the abdomen. Oh and a light rash on face and chest that comes and goes. Weird feeling when someone touches her legs. Dr from e.r. last wk said if stool sample comes back negative & nodes are still swollen in a wk then I can be concerned about the swollen lymph nodes. Family Dr wants to wait 2 weeks before considering a biopsy. I think that's it. No sugar coating. ?
0 likes, 30 replies
rocky31676 td22
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td22 rocky31676
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rocky31676 td22
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So they are causing pain in abdomen. And what was the solution the doctors have for this ?
td22 rocky31676
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They say it must have bn caused by a stomach flu but she didn't have a stomach flu and neither did anyone in our home. They are calling it mesenteric lympadenitis. My dr told me to give her Tylenol even tho her liver enzymes are elevated. They haven't given her anything to help with the pain. ..& if there was an infection wouldn't her wbc count have bn elevated or wouldn't they have found it in her stool?
td22
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rocky31676 td22
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It could be caused by an autoimmune disorder/ indectious condition.
However, lymphadenitis causes swollen lymph nodes in the cervical area.
The abdominal/mesenteric lymph nodes is new to me.
WBC's dont always tell the whole story, as it does not always go up.
Stool also is related to ova and parasite or unless the area has bleeding, it wont be detected. However, CT scan has detected this. So are they going to wait and see what happens ?
td22 rocky31676
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Yes they want to wait 2 more weeks to see if she's better. I know you can't give me medical advice but you sure seem like you know what you're talking about so 1st THANK YOU for replying to me and 2nd what should I do? ? She's in pain everyday and I just don't feel like they are being thorough enough or care. I know something is wrong and I just need to know what it is so we can deal with it and move forward.
rocky31676 td22
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Did the doctors address this part ?
td22 rocky31676
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No they didn't because it comes and goes & they haven't seen it so I don't think they believe us. Her face gets really red sometimes too.
rocky31676 td22
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rocky31676 td22
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td22 rocky31676
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No her entire face gets red and I've never noticed about her hands and feet and she's never complained about it but when I asked she said yes they're always cold.
rocky31676 td22
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Does you or your family or her mother or family had any similar conditions ?
td22 rocky31676
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Not that I know of. . a lot of cancer, heart disease, and fibromyalgia but that's all I really know
rocky31676 td22
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rocky31676
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td22 rocky31676
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Yes ok ANA & anti-dsANA correct? ? What will this look for??
rocky31676 td22
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rocky31676
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anti-dsDNA test
td22 rocky31676
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Ok thank you so much! She has been miserable all night. Running a fever and in so much pain. It's so frustrating not knowing what us causing this so I can help her. Thank you again for talking to me.
rocky31676 td22
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td22 rocky31676
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Ok I took her to the Dr again Friday. They did more extensive bloodwork. Checked her for what you said and cat scratch fever. Put her on antibiotic (flagyl) & medicine for irritable bowel syndrome that is supposed to help with pain and relax her intestines. Tests came back normal and medicine isn't helping at all! What now??
rocky31676 td22
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td22 rocky31676
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They said they were doing the ana and checking for cat scratch fever and other inflammatory stuff. Didn't explain well and I don't have the paperwork yet
rocky31676 td22
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Does she have the swollen lymph nodes still , and what country your from.
td22 rocky31676
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I think so but I'm not sure because I don't have the lab work to look at it? As for lymph nodes yes I believe so because she is still in pain but only at ct scan would show for sure. She had one a little over a wk ago and they were still swollen. United States. You?
rocky31676 td22
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td22 rocky31676
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No she's in so much pain especially at night but can't see a specialist for almost 2 weeks
rocky31676 td22
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td22 rocky31676
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No. Taking her for ultrasound this wk to see if they are smaller, same size or bigger. Then children's hospital next wk. She's in pain, tired and pale. Not getting any better :-(